Leah - posted on 09/16/2011 ( 4 moms have responded )
I just wanted to say that today is my daughters 4th birthday . She has erbs palsy on her right arm . You can see her in the group photo wearing a sleeping harness . That harness was such a blessing for her . About 2 months after being born she was fitted with this device to rotate her hand from outward facing to normal postion and correct the tendons in her arm . It took about 1 year of wearing it and daily physio (taught to me by her doctors) but her arm changed drastically . From barely any movement to being able to raise her arm above her head , bear weight , grab , and eventually climb . If you saw her today you wouldn't see much difference between arms . She still carries a bit of weakness and cannot fully reach behind herself yet but with time this too will improve .
I thank BC Childrens hospital for letting my daughter help others by becoming one of the first infants to be in their erbs palsy sleeping harness program.
I write this to give people hope for their little ones .Never stop asking question . With knowledge come power , hope and healing .