Hello

Sara - posted on 09/30/2009 ( 6 moms have responded )

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Hi, my name is Sara. My daughter has Erb's Palsy. Trying to find support groups.

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Veronica - posted on 03/16/2014

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Hello everyone, My daughter Cassidy was born with ERB's palsy on her left arm she been going to theraphy since she been born, she has made a lot of progress but after reading some of your comments I had realize that my daughter really haven't been getting the treatment that she needs, I am in the military and I got moved about a year ago to Oklahoma and the Occupational therapist is not doing anything for my daughter all she does is play with toys the same toys for 45 min. Her old therapist back in WA used to talk to me about the muscle transplant and the tendon transplant but I keep asking over here and no one seems to know what I am talking about. She walk around with her arm bent and can not touch her head yet but she has made a lot of progress because she is so active but I am desperate what can I do to help my daughter?

Tracie - posted on 09/12/2010

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My daughter was born with erbs palsy in her right arm. she couldnt move it at all for 3 months and her hand was in an outward position. It has gotten better but her dr wants to do a tendon transfer so she will be able to supinate, externally rotate her arm and also she holds her arm bent all the time and it will also help with that. Deciding to actually do the surgery was very hard but I know it will help her in the long run. Its going to be a very long 6 weeks with an upper body cast but im looking forward to the final outcome.

Leah - posted on 06/29/2010

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My daugter was born with erbs palsy in her right arm . Her hand was fully rotated in the outward position . I was lucky enough to have Kara try a new sleeping harness for her condition which was made for her at BC s Children s hospital . She had to sleep in it for a year and now her hand is in the correct position . Unfortunately it was quite difficult to get her to sleep in it and it became something of frustration when she began to crawl in her crib since she had limited movement when in the harness . I wouldnt change a thing though . I still go once a year so they can evaluate her arm for strength , flexability and dexterity. Her shoulder blade is still quite high and sticks out a bit but she has great movement you wouldnt be able to tell she had this condition . I still make sure she has stimulation to the arm and keep up her physio to keep any stiffness from setting in . I think keeping them active is very important .

Bronwyn - posted on 04/05/2010

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Hi Amy, my daughter has Erbs Palsy in her left arm. We started physio for her at 3 days old, and continued with the exercises every 20 minutes, apart from when she was asleep, as advised by our physio, until she had her operation at 14 months. My partner and I were at a loss as to what to do for her, and the exercises seemed to not be doing anything, but her surgeons (she had 3, and one was a professor), advised to do the exercises no matter what it seemed was happening, as the exercises are stretching the muscles so that they don't constrict and pull the arm back up, making one arm shorter than the other. My daughter had her operation and commenced physio and occupationl therapy twice a week. Teagan is now six years old and the only time you can tell that something is amiss is when Teagan runs, as she holds her left arm stiff. Another thing our Dr recommended was swimming lessons. We told out instructor about Teagans condition, and the fact that she was there for physio mostly, and learning to swim was an extra bonus. I got into the water with the instructor to show her Teagans exercises, so that they could be incoporated into the lession.Teagan now swims laps, in freestyle and backstroke someting that we thought would never happen.
Regards, Bronwyn

Amy - posted on 03/03/2010

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Hi all, my son Zach was born with Erbs Palsy in his right arm and right now we are in the process of getting a specialist appointment to decide what to do as he is only 2 months old and even with exercises it only seems to be getting worse not better. Would you be more inclined to do whatever exercises you can in hopes to get movement back or would you want to do surgery for you child if that would give them back the most movement?

Bronwyn - posted on 02/03/2010

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Hi Sara, my name is Bronwyn. My daughter Teagan has Erbs palsy. I live in Sydney, Australia.

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