dentinogenesis imperfecta

Elizabeth - posted on 02/22/2011 ( 5 moms have responded )

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have any of your babies been diagnosed with this? if so, what was the treatment? anything that we can do to lessen the wear and tear on the teeth?

for those of you reading this that do not know what this condition is, i'll semi explain...
dentinogenesis is a condition that affects the teeth...not enough dentin is on them...this results in more rapid wear and tear...it is a genetic disorder, with the gene being dominant, meaning that you only need one parent to have the gene in order for the child to have it. i had it and had to have every one of my baby teeth crowned...

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Jane - posted on 12/20/2014

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Both my sons were born with this dental defect, inherited from their father. My sons are now 22 and 31. Devastating for a mother and I can only imagine how devastating for the child. Both my children were treated from age 2 with stainless steel crowns on the back teeth and veneers on the front. Very frequent dental visits because as the children grew the crowns and veneers would pop off or wear out.
As adults one son wears dentures over his adult teeth and the other has had every tooth crowned(very expensive) but worth every penny to see such beautiful teeth. Down the road I expect implants will be the route for both of them but I expect that is a good number of years away.

Michele - posted on 03/08/2014

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Hi - I have DI Type 3 and am 30 years old. The absolute best treatment I had was a full over-denture when I was 14. An over-denture is molded to go over your natural teeth. It was the solution suggested by top dentists at the University of Maryland School of Dentistry, and it was life changing for me. I was able to have normal-looking teeth while we left my natural teeth in and waited to see if my jaw bones would mature enough for me to get implants.

I just had a consult with a periodontist yesterday, and while I don't qualify for enough implants to get a full fixed bridge (the closest thing to natural teeth), I just barely qualify for the implants needed for an implant-supported denture. I'll be having my natural teeth extracted and the implants placed immediately, and I am so excited to be done with my natural teeth. So excited! And the dentures I had as a teenager looked completely natural. If I got brave enough to tell people that my teeth were fake, they were absolutely floored. The trick is to find a good prosthedontist.

Other than that, the best thing you can do is keep good oral hygiene, and have regular visits with a dentist who understands DI. Even with the best care, teeth will still fall apart and abscesses can develop despite heroic efforts to prevent decay. Many dentists don't understand that and will blame the patient, but I have a research study from geneticists at Johns Hopkins University that backs me up.

Sony - posted on 04/28/2012

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I am so glad you posted this! My babies have this too and I am trying to decide on treatment. I'm trying to start a support group for this condition since I have not found one yet. I opened a face book account at https://www.facebook.com/#!/profile.php?id=100003680083491 if anyone would like to chat further.

Elizabeth - posted on 02/22/2011

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it can...it just depends on the severity of the case...my adult teeth are pretty good...i am losing some enamel on the bottom part of my top two front teeth....but they are not bad at all...no problems with excessive cavities or breakage either

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