Coping with HIE

Jessica - posted on 08/07/2009 ( 7 moms have responded )

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Hi I am Jessica and my 6 yr old son was dx with HIE(hypoxic ischemic encephalopathy) 3 yrs ago. I have been trying to find other people with children with that same diagnosis. I have started a group on FB called Coping with HIE/ CP. If anyone here has a child or themselves with HIE please join the group.

Jessica

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Martha - posted on 08/01/2012

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Hello, I'm patty just want to say hello to everyone I'm new in the circle of moms

I have a 4 year old son with hie and he is the sunshine off my everyday mornings, it's very hard to see my son in this condition but as he grows we learn more he doesn't do much but with time he has managed to let us no what's wrong and what he doesn't like it's funny but he let's us know. In the fist year of his life hewas just laying their but as time pass he started doing a little more. I beleve in God and he is their for them at all times . Things get better with time

Olivia - posted on 05/26/2012

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Not sure if any of you will see it, but there is a group on FB for those of use with HIE children!

https://www.facebook.com/groups/hopeforhie/

My son is 17 months and he was diagnosed with HIE III at 4 days old, after suffered oxygen deprivation which caused severe brain damage at birth. I hope you all will see this.... :)

User - posted on 10/30/2011

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Hello my name is Amanda and I will being caring for a 2yr. old girl who has HIE and was wondering what typed of activities, games, and so forth should I play with her?

User - posted on 10/14/2011

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hey Jessica, i cant seem to find your group on facebook. Can you please send me the link ???

Nancy - posted on 06/16/2011

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Hello my son was perinatal asphyxia with HIE grade 3. now he 3 months 2 weeks old...he respond to smile,he can hold my finger and start to stand up with my help. but I have no idea how he development...so i need help can HIE recovery and how to help my son

Brandi - posted on 05/19/2011

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My son was dx with HIE in Feb 2011. He is 7. I am missing the way he used to be so much, words cannot even describe it. He pretty much does nothing now, except lay there. This is the beggining of a long road for us.

Kim - posted on 11/11/2010

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I also have a son that has HIE, he is actually turning one tomorrow. It is terrifying and I have felt so alone, so it helpful to find other parents going through the same thing, although I wished that there were not! Would love to hear from other parents going through this.

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