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Families of children with rare diseases

Families of children with rare diseases

For moms whose child/children have been diagnosed with a rare disease. Facing the challenges of the illness as well as the lack of knowledge, support, and treatment the comes with a "rare" diagnosis.

30 members
Privacy: Open
Category: Health, Disease & Special Needs

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2

Sanfillipo Syndrome Child

Started by Tina on 04/08/2009 in Families Of Children With Rare Diseases

Last update on 02/20/2010 by Chris

2

Just wondering about doctors and whether or not you want to get them off your childs case?

Started by Leigh on 09/28/2009 in Families Of Children With Rare Diseases

Last update on 02/20/2010 by Chris

1

Chronic Infalamatory Demyelinating Polyneuropathy

Started by Tracy on 12/09/2009 in Families Of Children With Rare Diseases

Last update on 02/20/2010 by Chris

4

Looking for answers...can y'all help?

Started by Tammy on 03/16/2009 in Families Of Children With Rare Diseases

Last update on 02/20/2010 by Chris

1

Well hello there everyone....

Started by Aisling on 08/26/2009 in Families Of Children With Rare Diseases

Last update on 02/20/2010 by Chris

0

Fibrous Dysplasia

Started by Mandy on 04/17/2009 in Families Of Children With Rare Diseases

Last update on 04/17/2009 by Mandy

2

Hello

Started by Karen on 02/20/2009 in Families Of Children With Rare Diseases

Last update on 04/10/2009 by Mandy

Karen

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