Any special needs babies?

Brenda - posted on 03/08/2009

Thanks Nicole-We sure do enjoy her!!! She is such a blessing to our family. And we love having a baby...even longer than most.

Bren-

Michelle - posted on 03/05/2009

My son Dalton has Duanes Syndrome type 2 and he also has been diagnosed as "failure to thrive" although I am not sure of your child's diagnosis but I have learned my son is very demanding and even more so now that he is trying to walk. Because of his Duanes he has a hard time with his balance and is unsure of his walking as to he can't see very far out of his left eye. Not to mention all the Dr. appt's we are constantly haveing.

GL with your little one they are definatly a wonderful blessing from God!!

Lora - posted on 03/05/2009

My daughter Maddison was born with Lipomeningocele which is rare form of spina bifida.  We have been very blessed that she had no paralysis when she  was born and she is up and walking and getting into everything.  Although she does have some medical issues that go along with her diagnosis that require her to be cathed 4 times daily and is on medicine to help her bladder and bowels.  I have learned so much from her and found that I can do things I never dreamed of doing.  Each child teaches us so much.  I don't know about anyone else with special need children but I have found that my little girl is so much more determined to do things than what my son was.  I guess that is a good thing.  So as I don't know exactly what you are going through because I have never heard of your childs diagnosis - I can certainly empathize with you.

Nicole - posted on 03/05/2009

Quoting Brenda:

Any special needs babies?

As you know, we  have Thomas and Shreya, 4 and 3, with Trisomy 21. My advice with special children are to celebrate each progress they make and don't compare them to anyone else. Thomas walked the first time when he was 3 1/2. My attitude  always was to facilitate him in meeting his potential, and not worry about him staying up with other kids his age. Take ALL the pressure off to meet developmental goals and enjoy these special kids for who they are. Let them grow and develop at their own rate. If you take on this attitude, it's fun to have kids who have no expectations to do something at a certain age. Babies grow up too fast, these special babies stay babies longer. Enjoy that!