Any special needs babies?

Brenda - posted on 03/04/2009 ( 4 moms have responded )

3

24

0

My daughter, Tatum, has partial Trisomy 18, along with some other issues. Wondering if there are any other moms out there that could understand some of what we are going through. Tatum still cannot sit unassisted and is just learning to roll over, where her peers are walking and making all kinds of strides. She is our 7th child and an amazing gift to the family. And she is teaching me all kinds of things about motherhood that I never knew before!
Bren-

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

4 Comments

View replies by

Brenda - posted on 03/08/2009

3

24

0

Thanks Nicole-We sure do enjoy her!!! She is such a blessing to our family. And we love having a baby...even longer than most.



Bren-

Michelle - posted on 03/05/2009

69

10

5

My son Dalton has Duanes Syndrome type 2 and he also has been diagnosed as "failure to thrive" although I am not sure of your child's diagnosis but I have learned my son is very demanding and even more so now that he is trying to walk. Because of his Duanes he has a hard time with his balance and is unsure of his walking as to he can't see very far out of his left eye. Not to mention all the Dr. appt's we are constantly haveing.



GL with your little one they are definatly a wonderful blessing from God!!

Lora - posted on 03/05/2009

2

12

0

My daughter Maddison was born with Lipomeningocele which is rare form of spina bifida.  We have been very blessed that she had no paralysis when she  was born and she is up and walking and getting into everything.  Although she does have some medical issues that go along with her diagnosis that require her to be cathed 4 times daily and is on medicine to help her bladder and bowels.  I have learned so much from her and found that I can do things I never dreamed of doing.  Each child teaches us so much.  I don't know about anyone else with special need children but I have found that my little girl is so much more determined to do things than what my son was.  I guess that is a good thing.  So as I don't know exactly what you are going through because I have never heard of your childs diagnosis - I can certainly empathize with you.

User - posted on 03/05/2009

1

0

1

Quoting Brenda:

Any special needs babies?

As you know, we  have Thomas and Shreya, 4 and 3, with Trisomy 21. My advice with special children are to celebrate each progress they make and don't compare them to anyone else. Thomas walked the first time when he was 3 1/2. My attitude  always was to facilitate him in meeting his potential, and not worry about him staying up with other kids his age. Take ALL the pressure off to meet developmental goals and enjoy these special kids for who they are. Let them grow and develop at their own rate. If you take on this attitude, it's fun to have kids who have no expectations to do something at a certain age. Babies grow up too fast, these special babies stay babies longer. Enjoy that!


 

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms