Very leaky G-tube

Sarah - posted on 06/24/2010 ( 9 moms have responded )

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My daughter is 9 months old and has had her g-tube since she was 2 weeks old. We had no problems until she went into the hospital for an unrealted surgury. While in the hosptial they replaced her old g-tube with a "mini one" AMT. It is so loose but the surgeon assures me it is the right size. Now we have ALOT of problems with leaking. Sometimes it is so bad I'm afraid all her medications are leaking right out. Her clothes are wet, her bed is wet. It's miserable. The doctors have told us to keep the site, clean, dry, and well packed with gauze to have a tight fit. This seems to work some days but not others. And now I think it might be getting infected. Any suggestions for stopping the leaking?

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Pam - posted on 06/24/2012

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Yes my son had a 17. He is in the hospital now and the took the tube out twice to let the sit shrink a lil but it's still leaking, they put a NG tube, that leaked, the lil bit of soft food he can take by mouth is even coming out. It seem as if they are experimenting at this point. Why r there no solutions. He is three yrs old and it seems as if he stopped growing. I feel like I am about to BUST!!!!!!

Liz - posted on 01/11/2011

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I agree with those who said the g-tube does not fit properly. It should not be leaking unless there's not enough water in the balloon or its not a good fit. I have learned that you have to be firm with some of these doctors.

Bre - posted on 11/17/2010

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Why did they replace the old gtube with a mini one?
My doctors did the same thing and I went to another specialest for a second opinion and the specialest said it was too small.

Ali - posted on 11/01/2010

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My daughter is 6 and had her tube put in when she was 2 1/2. Just recently it has started leaking as well. I replaced it with a new one and it still leaks. I tried adding more water to the balloon but that doesn't seem to help. I e-mailed the enternal feeding nurse at our hospital and she told me to bring my daughter in as it sounds like it's not a good fit anymore. As children grow, they need to have their tubes adjusted sometimes. I would keep on the doctors about it not fitting or contact your enternal feeding nurse for assistance. I too am concerned about medicine leaking out.

Jessica - posted on 09/08/2010

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My son is having the same problem, in his case the leaking is caused by granulation tissue. It has displaced his tube, and now he leaks non stop and has irritated skin. I taped gauze to his shirt so it will catch the icky stuff but he can still have some ventilation. He is getting his second batch of silver nitrate treatments tomorrow.

Lisa - posted on 08/28/2010

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That does sound frustrating. Our daughter is 7 and has granulation tissue. Although this tissue does produce a discharge it does NOT wet her clothing as you describe. To me that sounds like a partly deflated balloon or a gtube that is not a proper fit (like you think). Have you tested the balloon? Make sure it has the amount of liquid recommended in it when you check. Also, yes take note of fluid color as this will tell you what is leaking. I think gauze only works to dry the area not to keep in place because once it is soaked with liquid it will no longer serve its purpose. You'll have to keep drying the area often to prevent infection. We bought a package of those cloth diapers and found that once washed & dried they were great for using as a cloth to dry the gtube site. It is cheaper than gauze and because it is soft is gentle. I don't recommend keeping the area covered unless it is leaking excessively in which case I'd keep bugging the doctor because that does not sound normal. A good source of information is a nurse who specializes in enteral feedings or gtubes. They often have a wealth of info even docs don't have. Good luck!

Jillian - posted on 07/18/2010

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I would start with testing to see if there is enough water in the balloon. Is the leaking clear, formula, medication? Sometimes the leaking can be breaking down of granulation tissue, not actually contents from the stomach. We haven't really had success with gauze (although every dr recommends it), it always made the situation worse. To keep granulation tissue from taking over moist skin we would tape a diaper across her stomach to catch fluid leak, but keep her skin dry. I understand the frustration!!!

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