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Gluose Traspoter Type 1 Syndrome

Gluose Traspoter Type 1 Syndrome

this is a rare syndrome that my daughter has just been diagnosed with also known as Di Vivo Disease I am looking for other moms I can talk to about this it affects fine and gross moter skills as well as speech and seizure's I am just learning about it so anyone on with info from anywhere would be great

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Kimberley

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