I have a 2 year old with growth and eating problems.

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Hi my name is Amy Hoffmann and I have a 2 year old son, Braedon who has had eating problems since birth. When my son turned 2 in June he was diagnosed with FTT and it scared me to death (he just doesn't like to eat and is really small, below the 3rd percentile.) I did some research and found an AWESOME

feeding clinic here in Denver called Toomey and Assoc. Dr. Kay Toomey is a pioneer in the feeding disorder community. Braedon was evaluated by Dr. Toomey and her staff and they concluded that in

addition to having really bad reflux, he has developed a fear of putting food in the back of his mouth ( leading to poor chewing) and some mild sensory issues (he doesn't like the feel of cold or slimy foods.) Well, Braedon has been working with Dr. Toomey in group therapy feeding sessions for about 12 weeks now and we have seen some amazing improvements! Braedon has gained over a pound a month going from 18lbs 2oz to 22lbs 6 oz at his last weigh in. He is now experimenting with

different foods such as hotdogs and puddings and has improved his bite and chew.



Now, don't get me wrong things are not perfect. I still fight with him at least once a day to eat and struggle to meet his caloric recommendation at times. However, I am now starting to feel that there is a light at the end of the tunnel and that things can and do get better.



I would love to talk with other moms who struggle getting their children to eat and bounce off ideas off of each other. I would also love to find and give support to others who are dealing with growth and eating problems!

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11 Comments

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Beccablake452 - posted on 03/04/2014

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Marie I know this is a very old post but does your son Have 15q11.2. My sons two only weighs 18lb 8oz he contstantly refuses food his not eaten in 6 days (he has special dietrician milk) that keeps him going x does anyone have any advice? Could this be a mental problem/ eating disorder x his got a pediatrician and a dietrician but nothing seems to be getting any better anyone know what else I can try x

Jennifer - posted on 01/27/2010

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I have a son who is 2 1/2 and was in the 3% for weight for at least six months. I started when he was 2 giving him 1 pedisure a day on top of his 3 meals. He gain 3 pounds in 4 months which is HUGH. He is now 28 pounds still very skinny for his age and not an ounce of fat on him but he ia gaining and that is great progress. A frined of mine told me about it and it worked for her as well. Good luck everyone I know what it is like to fight over food every meal every day.

Khushi - posted on 01/17/2010

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my daughter is 5 and refuses to eat on her own,i have a maid for her. also she chews or keeps her food only on the right side of her mouth . i dunno what to do???

Rachel - posted on 01/03/2010

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My 3-year-old daughter has a feeding disorder and cyclic vomiting syndrome (which probably caused the feeding disorder). We go to the feeding clinic at Children's Hospital of Wisconsin. Things are 100% better than they were a year ago when my dautghter lost weight for 6 months in a row, but we still have to work very hard to get enough calories into her. I'd love to talk if you are still looking.

Tracey - posted on 11/17/2009

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Hey Amy
Great to hear your son is eating and experimenting more. That clinic sounds fantasitic! My son also is 2 years old and has growth issues due to lack of eating. He has been tube feed since he was 5 months old as he had really bad reflux and refused to take anything orally (oral food aversion). He also has just started to make a few gains taking alittle bit of food orally ontop of his tube milk feed. I really sympathise with you i know exactly what it is like to fight with your child to eat without pushing too hard at the same time! Some days i feel the whole day is all about him and tube feeds / food.
We have found that our son is more into the crunchie plain type foods and also not sooo great on the slimy/sticky textures. We were recommended to do lots of messy play with the textures he isn't good with, and exposing it to him at dinner table. Like having a side bowl of jelly for example every meal with no pressure to touch or eat it. over time he has slowly got used to the smell and look of it, then he started playing with it and eventually he put some in his mouth. It is all about taking it really slow and baby steps. Good luck!

Rachel - posted on 07/29/2009

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I have an amost three year old was diagnosed with a feeding disorder at 14 months. She was on an only liquid diet until after she was 2. She is treated at the feeding and swollowing clinic at Children's Hospital of Wisconsin by a behavioral psychologist and a speech pathologist, a nutritionist and other health care professionals, She eats yogurt and Boost pudding every day, high calorie liquid nutritional supplements, and some small amounts of food. But, we have to fight with her at least once a day to get her to eat, and recently she lost weight between appointments. Things are much better, but it can get really tought. When we travel, she stops eating altogether. Although I feel like the light at the end of the tunnel is closer, sometimes it still seems very far away.



And I get very tired fighting about eating even once a day with her -- as my husband put it, its a total moral buster for the day.

Cindy - posted on 04/21/2009

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unfortunately i am still getting no where with my son the dietian didnt work they only gave me strategies to use on him and i have tried every single before even getting to the appointment at this moment my 2yrs 8mths old is 12.4 kilos and is about 88 cm in height and the doctors said as long his weight and height percetile are the same there is nothing they can do but my 7mth old is only three kilos behind him and i am really getting worried about him. it is good to talk to other people who have problems with their kids eating

Sarah - posted on 04/19/2009

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I have a son that just turned 3 who just now weighs 20 pds We have had several test they always say short stature or failure to thrive I am so happy that their are other people out their that have eating problems. It is nice to be able to ask for help or ideas on how to feed the lil man! Has anyone thought of growth hormones, I want to but our family members are against it.

Cindy - posted on 11/26/2008

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i have a two yr old that i have to fight and struggle with every day to at least eat one meal i have pested the doctors about it and have gotten no where but now that i have spoken to a speech therapist about his delay in talking they have referred me to a dietian but i am unsure whether it will work. the speech therapist thiks the fact that he does not eat properly is the reason for not talk as he is not using the mouth musles properly

Marie - posted on 11/24/2008

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That is amazing! My oldest is 7 yo. He has a chromosomal deletion that causes small stature in the first place and then it also caused a severe cleft lip and palate which caused all kinds of feeding issues! My 4 yo has Asperger Syndrome with Sensory Processing Disorder. That has been a lot harder. Where my 7 yo's issues are mostly mechanical (he does have mild SPD too) the 4 yo just can not tolerate so many foods due to texture, color, smell- all kinds of things. I am open to any and all ideas that would help! :)

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