[deleted account] ( 25 moms have responded )
Hi, My name is Rachael. I created this group hoping to start a place where moms like myself can find advice, comfort, and solace, with others who can understand what we go through.
My son, Jonas is almost 4 years old. He was born small, and remained well below the 3%tile on all of the growth charts. It wasn't until he was about 2, and he was still refusing solid food, and his growth curve was falling that Drs started listening to my concerns. It isn't just about him being small, but about him not growing at a normal pace. Since he never even was near the 3%tile line, when he stopped growing at 2 years old, it made a huge impact. Since his 2nd birthday he has gained 2 pounds, and grown 1 inch. That is in 2 years.
He refuses to eat most foods, and gets most nutrition from Pediasure. He has been sent to Dr after Dr and had test after test run, to no avail, no one can figure out why he doesn't grow... or why he chooses not to eat. Right now we are trying to make the decision on whether to have a feeding tube placed, so as to increase his caloric intake. We are also going through some genetic testing to see if that gets us anywhere.
It is so hard some days when the general public just can not understand my very small child. When they look at me as if I am the evil witch who starves him. When they give their lovely comments "oh kids won't starve themselves"... (yeah right)...
I KNOW there are other moms out there who have kids with growing issues, whether you have a diagnosis or not. I know there are moms out there who have kids with eating issues.... I created this place for you.. To have a place to voice your frustrations and concerns where others can understand, becasue they too have been there, or are there.