off the growth chat also

Rebecca - posted on 03/20/2009 ( 2 moms have responded )

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My child (12) has been tested for autism (2 times) has adhd, and is practically off the growth chart. He was recently diagnosed with Soto's Syndrome. This is a growth disorder that causes a child to look 2-4 years older. It also causes physical problems, learning disorders, and adhd. When I got the diagnosis finally it all made sense.

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Roz - posted on 08/25/2016

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Hi! We are in the process of testing for Sotos Syndrome. Scheduled an MRI. My daughter is 6. Off the chart on growth and large head size. Developmental delays and intellectual disability is all the school phycologist kept telling us. Also treated for ADHD. Very similar characteristics to autism. Repetitive speech and delay. Would love to hear your experience in alone here don't know another family in the US with this Syndrome?

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