Lauren - posted on 09/08/2009 ( 6 moms have responded )
I'm writing this wondering if there is ANYONE else who has had the same experience I have and what was done about it.
My daughter is 10 weeks old. She has NEVER had anything but water-like stools. They soak right into the diaper and its impossible to know that she even had a bowel movement except for the color of it, otherwise it just seems like she urinated. Sometimes when she does stool, it soaks through the diaper, clothing and the blanket she's in (and I use disposable diapers not cloth).
She was diagnosed with GERD (reflux) about a month ago. When she eats, she vomits constantly, sometimes projectile vomiting (it goes everywhere). And occasionally she chokes when she refluxes and stops breathing.
We have changed her formula EIGHT times and are currently on Elecare. With every formula change, she improves for 1-3 weeks and then hits rock bottom again and it all starts over. We have had to cut her back to 2 1/2 ozs every 3 hours to prevent the extensive refluxing. And because of that she is not gaining weight (only about an ounce a week with 24 cal feedings which is double what they normally receive).
After she eats, she is in intense pain. She stiffens every muscle in her body and arches her back. If it is bad enough, she can support herself and basically stand up while i sit up with her head on my chest. She lets out short piercing wails that come from no where.
Every few weeks, she will go a few weeks sleeping a maximum of 2-5 hours (total) each day.
For her reflux she takes Prevacid and Pepsid but they have also had her on Zantac and Reglan. I want my baby off of medication but without it, she's in excrutiating pain. I don't know what to do.
We have been to specialists, in the Pediatric Intensive Care Unit and to the doctor sometimes 3 times a week. We're at the end of our ropes. My family and I want to know if there is anyone else who has experienced these odd symptoms. The doctors have ran several tests on her and are wanted to get more invasive. She is 2 months only and still in Newborn clothes (we just got her out of preemie clothes 3 weeks ago). HELP PLEASE