Vomiting, Reflux, Diarrhea... Anyone else?

Lauren - posted on 09/08/2009 ( 6 moms have responded )

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I'm writing this wondering if there is ANYONE else who has had the same experience I have and what was done about it.



My daughter is 10 weeks old. She has NEVER had anything but water-like stools. They soak right into the diaper and its impossible to know that she even had a bowel movement except for the color of it, otherwise it just seems like she urinated. Sometimes when she does stool, it soaks through the diaper, clothing and the blanket she's in (and I use disposable diapers not cloth).



She was diagnosed with GERD (reflux) about a month ago. When she eats, she vomits constantly, sometimes projectile vomiting (it goes everywhere). And occasionally she chokes when she refluxes and stops breathing.



We have changed her formula EIGHT times and are currently on Elecare. With every formula change, she improves for 1-3 weeks and then hits rock bottom again and it all starts over. We have had to cut her back to 2 1/2 ozs every 3 hours to prevent the extensive refluxing. And because of that she is not gaining weight (only about an ounce a week with 24 cal feedings which is double what they normally receive).



After she eats, she is in intense pain. She stiffens every muscle in her body and arches her back. If it is bad enough, she can support herself and basically stand up while i sit up with her head on my chest. She lets out short piercing wails that come from no where.



Every few weeks, she will go a few weeks sleeping a maximum of 2-5 hours (total) each day.



For her reflux she takes Prevacid and Pepsid but they have also had her on Zantac and Reglan. I want my baby off of medication but without it, she's in excrutiating pain. I don't know what to do.



We have been to specialists, in the Pediatric Intensive Care Unit and to the doctor sometimes 3 times a week. We're at the end of our ropes. My family and I want to know if there is anyone else who has experienced these odd symptoms. The doctors have ran several tests on her and are wanted to get more invasive. She is 2 months only and still in Newborn clothes (we just got her out of preemie clothes 3 weeks ago). HELP PLEASE

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Jamie - posted on 10/30/2010

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Hi. I have been through a very similar, but not exact situation with my son (#4/5 kids), It sounds like she has severe GERD. My son was on all the meds, 3 at a time and it made no changes. I would recommend a swallow study (a real time xray) . My son has "silent" aspiration as well as GERD. I had no idea he was aspirating his feeds as well as his reflux. You could try thickening his feeds (our feeding/speech therapist recommended rice cereal since it also provides extra calories). You can also buy thickening agents. My son ended up on Neocate for his formula. Do not thicken or adjust the formula on your own though. Consult a dietician so it doesnt overburden her sysem. They can actually adjust the scoops per ounce to add cals to each feed for the poor growth. The stiffening, arching is incredibly frustrating. We also had that with him. We could hardly bend him to get him in his swing or cuddle him while he ate. I dont know how all states run, but in IL, we have Early intervention. Once we realized he was not "typical" we called for our evals. He received speech (which helped with feeding/oral aversion that can arise from severe reflux), PT for hypertonia( the stiffening you describe, plus he developed torticollis (a head tit) from all of the constant arching), and a dietician to adjust his calories in formula. Later on, we added OT, but he really had a little more going on than just feeding. We had a rough road with him for a while, but he is 2 now and doing very well. He is on track developmentally and being a typical terrible 2 :) He did, however, have an NG tube place, followed by a g-tube. We only use it for fluids now and he eats just fine.I bascially summed up a VERY long story as short as possible, but if you have any more questions, feel free to ask.

By the way, my youngest is 6 weeks and also has reflux and possible spiration. We are waiting on an appt for her swallow study and just started her Zantac.

Andrea - posted on 10/06/2010

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My 9 week old done them same thing. If u put pectin( what u put in jelly u get it at grocery store)in the milk it thickens the stool up, it worked for mine.Then for refluxing they did surgery to fix the flap that holds the food down, wraped her stomach to also help hold food down, and put a feeding tube in to give her what she wouldnt take by mouth to streach her stomach out.

Carrie - posted on 02/27/2010

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My son has had similar symptoms. Although when I nursed him(for 7 mon) he wasnt quite as bad. However after I put him on formula it became worse so they changed his formula. He has what I'll call episodes where he projectile vomits. Then he'll be better for a while then it'll all start over. He did gain weight fine on breastmilk. We recently had a few test ran. A blood panel, a cystic fibrosis test and a barium swallow, the radiolgist told me during the test he has pyloric spasms. The pyloric valve comes from the stomach into the duodunem and when it spasms it can cause projectile vomiting. He said he needed to be watched closely however my doctor told me the test was fine. I've made him an appt with a G.I. doctor but cant get him in til April. We were also told he has reflux I even have to prop him to sleep. Have they ran a barium swallow? It's not invasive but might give you an answer. I understand how you feel because our pediatrician didn't even tell me the same thing the radiologist showed me when he ran the test. We had an episode yesterday (vomiting everything he drank because it's very rare that he will eat any food only bottles) projectile vomiting so I took him to e.r. hoping to get some help and the doc there said he definitely needs to be seen by g.i. doc but by April I'll be crazy. Brody doesn't sleep well either and he's 15 months. He wakes screaming just like you described only he pushes his stomach out too. Good Luck

Melanie - posted on 02/11/2010

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Strangely enough Corinna i did have a lot of thrush whilst i was pregnant. Baby didn't but he had to have inj for Strep b when he was born as i was a carrier. xx

Corinna - posted on 01/27/2010

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this is a very person question but did you have trush wen you were pregnant and did baby have trush

Melanie - posted on 01/02/2010

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My son hs been suffering from GERD since he was born (he's now 2). For starters everything you give you daughter check the ingredients. A lot of everyday things have acid or citric acid in it which can be very painful for you daughter. Avoid anything with tomatoes, cucumbers even some over the counter medicines can contain acid. We found we had to put him on cow's milk earlier. Have you spoken to your paediatrician about adding something to her milk. We added gaviscon for quite a while to help ease acid coming back up. Our son also stops breathing because of it. Try raising her in her crib at night (maybe a book or something to raise on end). The more she spends upright or or on her side at night the better. some children grow out of it our son didn't and now needs to have his stomach shortened and a tube inserted. The symptoms are odd and you sometimes feel you're the only one but your not. I know how hard it is thinking why you or what's wrong. it's a long road and we are still trying to get the end. If you need a chat or a vent feel free to message me. I do know what your going through and i can only say take each day as it comes and know there are others who are feeling the same as you. I hope your daughter finds some comfort soon its heartbreaking seeing them in pain knowing you can't do anything. x

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