Heart babies

For mommies of heart babies

52

New to this....Tetralogy of Fallot anyone?

My name is Geneva, I have a 5 1/2 tr old son who was born with Tetralogy of Fallot and two surgeries later...he is a happy healthy rambunctious boy! Scary to see your baby...

Started by Geneva on 01/29/2009 in Heart Babies

Last update on 04/06/2014 by Lily

19

Double Aortic Arch

Does anyone else here have a child with this. My 18 month old son was just diagnosed last month. He is scheduled for surgery March 7th.

Started by Renee on 02/04/2012 in Heart Babies

Last update on 03/19/2014 by Robyn

13

A child with WPW anyone??

My son has WPW. It was discovered in utero but not diagnosed until the day he was born. We've had a wild ride with episodes of SVT and trips to the ER to convert his heart to...

Started by Christy on 01/14/2009 in Heart Babies

Last update on 03/04/2014 by Angela

1

ASD and VSD surgery

Hi, I'm new to this so Hello My daughter is 8 months old and was diagnosed with a Ventricular Septal Defect and Pulmonary Stenosis when she was a week old. As the months have...

Started by Julia on 08/31/2013 in Heart Babies

Last update on 11/05/2013 by Jenny

2

Guilty and angry mom of tof baby

My daughter was born 4 weeks ago with undiagnosed tof. As irrational as my husband tells me i am being I can not help feeling like I did something wrong. Yes doctors have told...

Started by Nicole on 06/04/2013 in Heart Babies

Last update on 09/27/2013 by Nicole

0

low grade temp and nasal congestion

Our little one turned bluish and became listless when her nose was suctioned for mucus as well as when saline solution was placed in her nose. Any other ideas for not upsetting...

Started by Pam on 08/18/2013 in Heart Babies

Last update on 08/18/2013 by Pam

12

hypoplastic left heart syndrome

Hi my son dion is 8 yrs old and has hlhs, he is doing really well at min and had his fontan september 08,

Started by Melissa on 05/21/2009 in Heart Babies

Last update on 07/15/2013 by Wendy

3

Help!!! Mommies with heart kiddos with g-buttons

Ok, my daughter got her button in March. We haven't had any real problems with it, it kinda been smooth sailing. She took right to it. Here is my problem or my question(while...

Started by Starlae on 07/29/2009 in Heart Babies

Last update on 06/07/2013 by Lynn

1

Complete AV Canal diagnosis. DS?

I am currently 34 weeks and 4 days pregnant. At 31 weeks my unborn daughter was diagnosed with a Complete AV Canal. It is said that this particular heart defect is associated...

Started by Kaitlyn on 05/15/2013 in Heart Babies

Last update on 06/05/2013 by Allison

0

Free medically supported summer camp!

Roundup River Ranch, a member of the Paul Newman-founded SeriousFun Network of Camps, is a medically supported camp for children ages 7-17 that have been diagnosed with chronic...

Started by Eileen on 05/27/2013 in Heart Babies

Last update on 05/27/2013 by Eileen

5

10 month old with Coarctation of the aorta

Hello! My daughter is 10 months old, soon to be 11 months. And she has Coarctation of the aorta. I was wondering If anyones lil ones have the same thing?.. and if so, how are...

Started by Heather on 07/01/2010 in Heart Babies

Last update on 03/24/2013 by Heather

2

How to pick a pediatric hospital?

I just delivered our first son, and we found out he has TOF. We didn't know before we delivered. Luckily, he is doing great so far. We see cardiology again and have another...

Started by Kelly on 12/21/2012 in Heart Babies

Last update on 03/02/2013 by Renee

2

Mommies with HLHS babies ?

Are there any mommies out there that have babies with Hypoplastic Left Heart Syndrome? If so how old are your little ones? And how did they get through everything? Please fill...

Started by Danyell R on 08/29/2012 in Heart Babies

Last update on 02/18/2013 by Erica

0

DORV

Hi everyone I'm new to this so bare with me four days ago I went with my fiancé for our 22 week anomaly scan everything was going well until they moved on to my baby's heart....

Started by Alexandra on 02/18/2013 in Heart Babies

Last update on 02/18/2013 by Alexandra

3

TOF with absent pulmonary valve

Hi, I was wondering if there were others mums out there who have experienced TOF with absent pulmonary valve, my daughter is 7 weeks old I know she needs surgery at hopefully a...

Started by Dorne on 09/26/2012 in Heart Babies

Last update on 02/04/2013 by Dorne

19

ASD and VSD

My daughter had heart surgery at 4 months of age for a atrial and ventrical septal defect.

Started by Carol on 01/16/2009 in Heart Babies

Last update on 02/04/2013 by Nancy