Heart babies

For mommies of heart babies


TOF with absent pulmonary valve

Hi, I was wondering if there were others mums out there who have experienced TOF with absent pulmonary valve, my daughter is 7 weeks old I know she needs surgery at hopefully a...

Started by Dorne on 09/26/2012 in Heart Babies

Last update on 02/04/2013 by Dorne



My daughter had heart surgery at 4 months of age for a atrial and ventrical septal defect.

Started by Carol on 01/16/2009 in Heart Babies

Last update on 02/04/2013 by Nancy


fetal svt. supervetricular tachycardia

when i was 25ish weeks pregnant my sons heart beat was a bit irregular. the dr wanted to check it again in a couple days. when we went back to check it, his hb was appx 240bpm-...

Started by Amanda on 06/19/2011 in Heart Babies

Last update on 12/19/2012 by Stephanie


Pregnant with HLHS little boy

Hello, My name is Mariah. My husband and I are expecting our first child in late December. We found out we were having a baby boy at 20 weeks and were very excited. After the...

Started by Mariah on 10/13/2012 in Heart Babies

Last update on 11/24/2012 by Rachel



Does anyone else have Marfan syndrome in their family? if so it would be nice to hear from you....thanx

Started by Rachael on 01/21/2009 in Heart Babies

Last update on 11/11/2012 by Jenni


Why does my still cry alot

So my son got out of the hospital a month ago he had TGA and two VSD has one left and a pulmonary band around his artery and still cry alot is this normal he will be three...

Started by Eva on 10/09/2012 in Heart Babies

Last update on 10/30/2012 by Angela


What to expect during and after OHS???

Hi. My son was diagnosed with VSD about a month after he was born. We were always told that it would probably close on it's own, but every time we saw the cardiologist; the...

Started by Jlttmr85 on 10/19/2012 in Heart Babies

Last update on 10/19/2012 by Jlttmr85


Kaden, my Grandson

Kaden was born with a large hole in his heart. At 30 days old he had open heart surgery. He is 2years old now, and will soon need another surgery to remove a pulmonary artery...

Started by Joyce on 10/12/2012 in Heart Babies

Last update on 10/12/2012 by Joyce


hard times!!!!! HELP, HELP, HELP!!! anyone!

My baby is 5 months old. He has down syndrome. Today he is getting a permanent pacemaker in. He has had 2 open heart surgeries. He has a G tube because he is not able to eat...

Started by Dani on 09/17/2012 in Heart Babies

Last update on 09/27/2012 by Chelsea


Any others with Tof with absent pulmonary valve.

Hi I am new to this I have a 7 week old baby girl diagnosed with digeorge syndrome part of her condition is TOF with absent pulmonary valve. Wanting to know of any other...

Started by Dorne on 09/26/2012 in Heart Babies

Last update on 09/26/2012 by Dorne


Doing my first heart walk!

I just signed my family and I up to do our first heart walk :) My son has had 5 surgeries and hopefully we get to leave it at that! I'm so excited to walk to spread CHD...

Started by Whitney on 09/02/2012 in Heart Babies

Last update on 09/14/2012 by Danyell R


Can anyone please help me get through this?

Im 28 weeks & just found out the other day that my daughter will have to have heart surgery when shes born. I havent been so lost, confused, hurt, ect.. EVER! I know she'll be...

Started by Danyell R on 07/27/2012 in Heart Babies

Last update on 09/14/2012 by Danyell R


DORV, VSD, and PS-- any advice for this mom?

We just found out at 36 weeks that our baby will most likely be born with DORV, VSD, and PS. Any advice out there on how to get through delivery knowing what lies ahead for our...

Started by Stacia Santa on 08/14/2012 in Heart Babies

Last update on 08/14/2012 by Stacia Santa


what happen to best interest of the child?

I am a single mom to a wonderful lil girl whom has a heart condition, when my daughter was 16 months old they discover that she was born with ASD mummers. we went for her check...

Started by Michelle on 03/19/2012 in Heart Babies

Last update on 03/19/2012 by Michelle



my niece has chickenpox and i would like my children to catch it too while they are still young, my daughter 5 and my son nearly 3. my son has tetralogy of fallot and just...

Started by Clare on 01/30/2012 in Heart Babies

Last update on 02/07/2012 by Janice


Bicuspid Aortic Valve

I'm wondering if anyone on here has a child who's been through the valve replacement surgery already? My son was diagnosed with bicuspid aortic valve at 3 months old. At the...

Started by Alisa on 08/21/2010 in Heart Babies

Last update on 12/22/2011 by Lesley