Heart babies

For mommies of heart babies


hi good news

My baby only had a 10 precent of makeing surgery gusse what she made through with no complication she did something that couldnt be done and she made medical history so im...

Started by Linda on 01/13/2011 in Heart Babies

Last update on 04/15/2011 by Alyce


1st Birthday ideas

What have people done for their kids 1st Birthday. I want to do something to highlight all my son has overcome to get this far. I think we will do a slideshow of pics from...

Started by Leslie on 01/28/2011 in Heart Babies

Last update on 02/24/2011 by Amanda


I have 2 heart kids does anyone else

hi, Im currently 28weeks pregnant with my 4th child who is a boy and has hlhs (but no left side) i had genetic testing and amnio to check and it wasnt detected til 20 weeks...

Started by Johanna on 09/28/2010 in Heart Babies

Last update on 09/28/2010 by Johanna


how to cope with the passing of a child

my son Robert Manuel 8 months old passed away thursday the 22nd. he had it rough from the start born with an omphalocele and a heart condition spent most of his life in and out...

Started by Rachael on 07/25/2010 in Heart Babies

Last update on 08/19/2010 by Clare


hypertrophic cardiomyopathy

my son has hypertrophic cardiomyopathy since birth. He is now 11. He currently takes medication for tachacardia. His cardiologists stated he is stable but puberty may bring some...

Started by Jennine on 08/16/2010 in Heart Babies

Last update on 08/16/2010 by Jennine


Weight Gain?!?

My 9 month old daughter has HLHS and has been having issues gaining weight she made it to 12 pounds to get her Glenn Heart surgery, but since then hasn't hit that 12 lb mark....

Started by Naomi on 12/27/2009 in Heart Babies

Last update on 08/11/2010 by Gwen


Activity restrictions?

I know when my little one was diagnosed her cardiologist told us that she might have some restrictions on activity - that it depends on the kid, some of them can do more than...

Started by Julia on 07/10/2009 in Heart Babies

Last update on 07/25/2010 by Linda


coarctation of the aorta anyone

my son died at 7 days old and he had coarctation of the aorta. i just want to meet people that have the same thing

Started by REBECCA on 09/28/2009 in Heart Babies

Last update on 04/29/2010 by Tabetha


Advice Please!

My 5 year old son was recently evaluated because of a murmur and the doctor said it appeared that one of his valves has two openings instead of three, she did not really...

Started by Danyelle on 03/15/2010 in Heart Babies

Last update on 04/28/2010 by Gwen


Post-surgery scar...

Hi all! My son had his open heart surgery to correct a large VSD and pulmonic stenosis (which may need further intervention) when he was 3 month old. His scar was nice and...

Started by Mélanie on 12/20/2009 in Heart Babies

Last update on 04/28/2010 by Gwen


Pediatric Cardiologist In IL

Hi all, new to this board. I have a 7 month old daughter with D-TGA with CoArc of aorta (both repaired @ 2 days old) We are from Illinois but have been living in NJ for the past...

Started by Tabetha on 04/28/2010 in Heart Babies

Last update on 04/28/2010 by Tabetha


hi ♥

Just wanted to say hello. I am new to group, my daughter, Cadence, is 10 months old and had D-TGA and a VSD. She is doing great and growing like a weed.

Started by Joni on 02/19/2010 in Heart Babies

Last update on 02/19/2010 by Joni


tricuspid atresia

Hello, my name is Lisa and my son Matthew was born with tricuspid atresia. He had immediate surgery for pulmonary banding and that surgery was followed by the bidirectional...

Started by Lisa on 04/07/2009 in Heart Babies

Last update on 02/12/2010 by Clare