Left sided weakness

Jeanette - posted on 01/17/2009 ( 28 moms have responded )

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Hi Everybody!

A bit about us...

My Son Ollie was diagnosed as having suffered a pre/postnatal stroke leaving him with a left sided weakness. (Hemiplegia/hemiparesis)

He's 15 months old now and I would love to hear from anyone who also has a child with this condition and other types of cerebral palsy who may have some interesting information/stories for us!

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Joann - posted on 11/30/2012

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Hello Everybody,



My son was diagnosed with Hemiparesis when he was 1yr old, which at first was very scary for my family and I, he was a very happy, smiley baby, only thing he was delayed in sitting up, crawling, or talking. At 1 yrs old he had just started sitting on his own by 2 he was crawling using his right side of his body to help while he dragged his left side. Once he started walking he walked and ran with a limp and his left hand always closed, doctors told me that as My son got older it may be a good idea for me not to let him play sports and to be very careful with any physical activites. My son was very active and only needed therpy for 2 1/2 yrs. He was very determain to try and do things on his own, he did it he made ways to help himself, No matter how much I wanted to help he would always say Mom, I got it, look I can do it.. Yes you can son, I gave him what he wanted independce to help himself, to prove to all the doctors that NO PARESIS was gonna stop him. My son is now 14 and is a basketball player on his high school team, he works and keeps up with all the other kids, coaches wanted to limit his workout but belive me he put up a fight and said dont treat me different I'm the same I can do it, I will keep up.. I just wanted to share with everybody that no matter what your kids are going thur stand by them, belive in them, and give them that chance, dont let them be marked as different. It was hard for me but to see My Son on that court doing what he loves, to see him study hard and attending tourting to help with his learning disability, I wanted to keep as close and protect him from all harm, but that was what was hurting him the most. I THANK GOD EVERYDAY HE BLESSED ME WITH A FIGHTER & FOR GIVING ME THE STRENGTH TO KEEP UP WITH MY SON AND HELP FOLLOW HIS DREAMS!!!

Mi Mi - posted on 05/24/2013

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My son who is now 4 suffered an stroke while i was pregnant. He suffers a left hemiparesis.

Steph - posted on 03/05/2013

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Hi I was diagnosed with hemi paresis when I was around 12 months old. It affect the left side of my body and although my father noticed the weakness professionals did not. I was provided with physio from the age of 18 months old until I was 18 on and off. I was very fortunate to have parents who supported me yet would not let me think that I could not achieve what I want to achieve. I had three older sisters and what ever they did I did. I have learnt to a adapt and not many people notice my disability now, I can do anything that anyone else can do it may just take me longer and make me tired quickly. I have a driving license and just need the assistance of steering ball. I went to university and achieved my goal of becoming a social worker. I just would like to say to you all support your children in adapting to manage day to day skills do not do everything for them if this is not necessary as I believe this can make their muscles weaker and more reliant. I hope this helps

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Lakeisha - posted on 08/08/2014

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Hello my son had a stroke in utero he's now 17 months he's hasn't been diagnosed with cp or hemaplegia yet but he's right side is weak.he only uses he's right hand for a helper he has pt n ot he doesn't walk by himself yet but he can stand n cruise along the furniture.im wondering will he's hand stay locked up in a fist forever cause that's how he has it most of the time. He has brace on his legs to align everything up.i just want the best for my boy,wondering if anyone had any suggestions as to wat to do.to help him use his right hand more I know eventually he will walk not rushing or worried bout that .please any suggestions is appreciated

Linda - posted on 05/08/2014

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Keep on with the weight bearing. This is so important. In the long run you will see results. Also, try a hand splint to help stretch and open his hand. Having him wear it while he is sleeping, so he gets a good long stretch I think would really help.

Linda - posted on 05/08/2014

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My daughter had a stroke in utero and has left hemiplegia. She has difficulty especially using her left hand. She is now 8. Here are some things that have helped us:
1) She goes to OT and PT every week.
2) She used to be a toe walker, not being able to get her heel all the way down on her left foot. She wore a brace on her left leg to help with this, but the thing that really really helped her is a "night boot" that she wears when she sleeps. It puts her foot in a flexed position and keeps her leg stretching all night. At first it was a bit uncomfortable for her, but she is now used to it and has no problem sleeping. Now when she walks she has no problem keeping her heel down.
3) We took her to Intensive Occupational Therapy: an ACQUIREc Therapy Model in Birmingham, AL (there's also Neuromotor Research Clinic at the Virginia Tech Carilion Research Institute which works with the same model) for an intensive 3 week time of constraint therapy. Weekly OT definitely helps her, but these two clinics have been like rocket fuel for her. She made strides here we thought we would never see, doing things that we thought were impossible. The regular OT said that my daughter would never type with two hands--with Intensive Occupational Therapy she is now typing using both hands. They put a cast on her unaffected arm and work her hemiplegic arm with fun games and activities for 6 hours a day, 5 days a week, for 23 days total. My daughter has been to other constraint camps, but none have been anywhere near as effective as this program. I 100% recommend it for helping kids with hemiplegia that especially effects their arm and hand.

Menuka - posted on 12/04/2013

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hi my name is menuka and i am from hongkong
my baby boy who is 13 month old has left side hemiperisis
till now doctor has not diognized how it has happen.
now my boy can sit if i make him to sit .
he cannot sit by himself .
n cannot crawl right now ,
but if we take his both hand to walk then he can take his steps .
but cannot walk on his walker .
his left fingers are always in fist
tried to make his fingers open by doing weight bearing excercises etc but still no progress
doing physiotherapy and occupational therapy regulary

Maureen - posted on 01/27/2013

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Hi carol
My girl is 6yrs now and has rt hemiplegia due to prenatal stroke.now she moves her arm but her palm is always held in a fist.do u have any suggestions that will help,am new to this forum.
Thanks maureen

Maureen - posted on 01/26/2013

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My girl has right sided hemiplegia.she is now 6yrs old.i will like to know the names of the supplemnts your child is taking.i checked the website and they had different ones.so please if you can share the specific one you use for your child.
Thanks,maureen

Rachael - posted on 12/17/2012

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If you think your child's condition and subsequent difficulties have anything to do with the time he was stuck in the birth canal and any negligence from staff involved in your delivery you should seek the opinion of a clinical negligence law firm - Irwin Mitchell Solicitors are excellent an deal with this type of case a lot - after 6 years from the date of the birth of your child you are unable to make a claim. I know a lot of people don't agree with our society making claims for everything but when there is possible negligence from a hospital or doctor that has caused long term damage to a person (your child) and you have had to incur expenses as a result of that damage it really is worth claiming. I was reading this thread because my baby daughter has hemiplegia as a result of a birthmark on her brain (Sturge Weber Syndrome) x

Kimberly - posted on 11/24/2012

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Hope, how is your son doing? I have a 5 month old just dx with inutero stroke with limited use of his rt hand. I have made myself sick with worry, what will his future be like. Any advice or encouragement is greatly appreciated.

Ashley - posted on 09/16/2012

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My 2 year old was diagnosed of having a stroke very early in my pregnancy which left him weak on the left side. We did not find out until he was 5 months. He was not reaching milestones that my two older children had by time they were his age which I than asked his doctor to order test. All of it was shocking and scary because their was no answers on why or how it may have happened, no family history of strokes or disabilities. We had him start seeing therapist and every specialist available. He was fitted for afos, splint for his left hand and for his weak trunk. He began to sit with support around 10 months and only crawled on his back. Than moved to scooting on his bottom while pushing off with his "good" arm at about a year. He still gets around this way but wants to walk so bad and just hasnt figured it out yet. He will pull himself up to furniture now and will cruise, we are trying to introduce him to a walker but most times he refuses. He will not do anything if he is forced, everything has to be on his terms. Not sure if it has to do with the disability or that he is two. He doesnt use his left hand except for a "helper" hand, we tried a eight week constraint therapy but no huge improvements. Might consider it again when he is older but it was very difficult for him and me. Now we are focusing on him to walk, I would love to see it happen by his third birthday so we just keep praying. Hope this was helpful and others may have tips for me on helping my little man to walk.

Danielle - posted on 08/16/2012

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Hi there, i am not a mom but i do have left sided weakness. I was born 10 weeks premature and somehow suffered a stroke. (The reason has been debated for most if my life) i am now 18 years old and it is still very hard for me. Feeling insecure and well, like a charity case. It seems to be more obvious with my leg. Some people say i limp, others say it just moves differently or dont notice. I could use a little advice in treatments. If it's not too late. I've been to pts numerous times had surgeries but still i hate this part of me. I want to do something to fix it. Not to change the way others perceive me, but the way i perceive myself.

Stacey - posted on 08/04/2012

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My son was recently diagnosed with the same condition. Any advice is greatly appreciated. I have a great physical therapist, an occupational therapist, and a developmental therapist starting soon. My son is 17 months old now. I am interested in hearing about any type of aquatic therapy that is in Indiana or suggestions on how I can work with him in the water.

Caroline - posted on 07/02/2012

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My daughter was born 9 weeks premmie, weighed 3 pounds & 11 ounces, she had many challenges. She was not able to walk un-assisted, she needed support to sit up, druelled constantly, developmentally delayed, frquent body tremors, seizure like episodes, kind of in a daze all the time, clenched left hand, choking on her food, speach problems, left side weakness etc tec. She was elevated on her toes when holding her towalk, she was splinted for a leg brace & they wanted to give her botox, but after researching botox and discovering how its made and there were no long term studies I decided against it. Her life was restricted & so was mine ...and it looked this way for the rest of her life ... & mine. I felt hopeless.

We were attending all sorts of treatments and therapies which cost a lot. A friend told me about some special wellness supplements from a particular company, she started taking them in her yogurt, after one week she was up walking un-assisted, it made an immense difference to her brain function, memory, balance, mood & cognition in a short space of time. I was elated!
I am so grateful to the person that told me about this incredible technology. She now has a life now ….. and so do I.
http://www.navig8.biz/LifeStyle2

Carol - posted on 07/01/2012

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Not to be a "party pooper" or anything, but distance may become an issue later on for him, our daughter is 27 now, and she had a stroke pre natallly. Left sided as well. We don't walk wal-marts, the mall, etc. She falls in the category of spastic CP. So Having a good wheelchair will help their muscles tire out as they get older, the CP doesn't get "worse" (unless they stroke again) but the muscles and tendons do take a toll from the cp..also some kind of pool, water is something that is so beneficial for CP individuals not enough can be said for it! We have been the gambet of everything from education and knowing that if your child is on the medical insurance through the state you can only get 1 major piece of equipment every 5 years. I hope I have been helpful....please contact me...

Hope - posted on 07/01/2012

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My son also was diagnosed with suffering from pre/postnatal stroke - left side of brain affecting his right side of body. We just celebrated his 2nd birthday!! :) He is currently is seeing a speech and occupational specialist. He was just recently approved for Social Security Disability Benefits. I have a lump sum of money in a dedicated account and need some ideas on what to spend it on from any parents who have children with the same disability. As you know SS is very restricted on what i can and can't spend these funds for. My son now walks and does not require wheel chair and other special equipment is paid for by medicad and the IOWA brain injury waiver.

Caroline - posted on 06/08/2012

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My daughter was born 9 weeks premature weighing 3 lbs & 11 oz with many challenges.



At age 2 she could not walk un-assisted, she needed support to sit up, she constantly druelled, she choked often on her food, her speach was not easy to understand, she was developmentally delayed, left side weakness, muscle spasms etc. She had physiotherapy, speach therapy & occupational therapy as well as many specialists appoinments.

She began taking a special supplement at age 2 and it really helped her cognitive brain function, mood, energy, concentration, balance, alertness, improved muscle tone, strength, speaking, mobility & general health. it made a tremendous difference to her. I am forever grateful to the person that told me about it. If you wish to know more go to: http://www.navig8.biz/LifeStyle2

Samantha - posted on 06/08/2012

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hi new to all this my son is nearly 2 an has left sided weakness we have been under the healthcare team about 4 months now only just got the first appointment for the peadeatrision i have been telling the doctors an health visitor there is somethink wrong with charlie since he was born they think he MAY have cerebral palsy i am now scared as dont know what to expect or what they are going to put him through

Ange - posted on 02/06/2010

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Hi Jeanette
My son Tarik (nearly 3) also has a left sided weakness but we are unsure of what the cause was.. would love hear how Ollie is getting on and please dont hesitate to ask any questions, i feel the more information and stories shared the more support we can give each other. Looking forward to hearing from you
Take care ange

Carol - posted on 07/16/2009

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Ellen; I can offer what I learned when my daughter entered school, we knew nothing, and our school system was delighted to keep parents in the dark with student rights. I learned very quickly! Before the start of school make sure you have Tabitha tested witha Multifactor Evaluation, that will produce a IEP. An IEP is educational goals long term and short term that Tabithat will achieve for the school year, no one can change any of these without all parties present, everyone must sign this. Make sure all of her needs are addressed not just the ones the school wants to. If you have any specific questions, please don't hesitate to contact me. Blessings-Carol

Ellen - posted on 07/16/2009

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My daughter, Tabitha was diagnosed at 10 months with left-sided hemi-plegia. This was picked up as she couldn't commando crawl. She has physio, hydro and OT and most people now can't tell she has CP. She shows such determination to do everything. We do wander how she will cope at school, but guess that we will face that when it comes. If anyone has any primary school stories to share we would appreciate it. Ellie

Carol - posted on 07/12/2009

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Ladies, my daughter is much older than your boys, but I would love to lend what I can, if don't mind. Crystal was deprived O2 a week prior to birth so her stroke was in-utero. She is a right hemi- her left brain is effected. She has had her many, many rounds of pt, ot & speech, and drs., name it. Our struggle was the school system. If I can be of help, please don't hesitate to ask, I will share any of the stuff we went through, things are much different now then they were. She is still facing things as a young adult, different issues than she did as a child. Family and friends understanding was a difficult thing, they tried with great intentions. Feel free to contact me on Facebook I'd enjoy hearing from any of you. Blessigns-Carol

Liezl - posted on 05/22/2009

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Hi Dawn, thank you so much for your message. It is really encouraging to hear how well things can turn out and that all these therapies do help. Liezl

Dawn - posted on 05/21/2009

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Hi, I'm new here. My son is 8 years old and was diagnosed with hemiplegic CP at 2 months old. He had left sided weakness(worse in arm than leg) and low tone in his lower lip and left side of tongue. We started therapies immediately. He did not roll, crawl, sit or scoot until he was 8 months. Then all of his milestones started one right after the other. He walked at 13 months, much to the surprise of everyone around him. He was released from the neuro at 3 1/2 yrs old. PT continued until he was 5 with occassional sessions needed for spasms(1-2 times/year). Speech continued until the end of last school year. His therapists always said he was a mild case but none the less, needed therapies. Today he is a healthy, happy child. We still have the occassional overuse issues, but we can take care of them at home.

Keep looking forward.

Dawn

Liezl - posted on 02/22/2009

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Hi Jeanette,



My little one, Ryan (11 months) was also diagnosed with hemiplegia as he suffered a stroke 48hrs after birth. Doctors say that it is the luck of the draw and that it happens with 1 out of 4000 babies, although I had a horrendous birth with shoulder dystosia and still believe that it was due to the amount of time he was stuck in birth canal. ;-(



Ryan’s left side is also affected. He has made remarkable progress during the past 11 months considering that he could not even turn his head at 2 months but he recently mastered sitting! He goes for physio regularly and we constantly encourage him to move his left side. He had a spell of seizures but that also stopped and he has no need for medication. He is very vocal and can say mama, dada and baba.



I cared for him at home although had to go back to work and he has been at nursery for the past month. Best recommendation his therapist has made as he's picked up so many things as nursery and I definitely believe that he the exposure to other children his age is so much better for him to learn than being with me at home. I miss him loads though but it gives me a break too.



He has a splint for his arm and which helps strengthen his arm and keeps it straight when he puts pressure on it, especially when on his tummy and pushing up on his right side. The splint also helps in keeping the left arm and hand in place. His hand is mostly in a fist but we open and stoke it often and he now opens it himself although are not able to hold anything even when placed and he will also not take a toy with it. At times it is fascinating to see how he maneuvers to get something if it is out of reach with his right hand. Sometimes even uses his mouth.



He does not crawl (rolls everywhere he wants to be) and although we now practice to put him into the crawling position he just does not have the strength on the left and his arm and leg gives way under him.

I so badly want to put him in a walker but therapist advised against it as children generally goes on their toes first and she does not want the pattern to his brain to form which will make walking more challenging when we get to that stage.



Needless to say, he is a loving baby, always friendly and full of smiles and the light of my life!



I was so pleased to come across you posting as I often feel I’m all alone in dealing with the obstacles this condition brings.



I would love to hear from you and what progress Oliver has made!



Take care

Liezl

Collette - posted on 01/19/2009

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Hi my son has a right sided hemiplegia and has a weekness on the right hand side of his body my boy is 2yrs 9mths now. My son was born with the majority of the left side of his brain missing.

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