Hypoplastic Left Heart Syndrome

Mom with a child with Hypoplastic Left Heart Syndrome. Anyone can join. Has your child gone through surgeries, heart transplant, or earned their wing. This is a place where we can all be there for each other.

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Welcome

Welcome..lets get to know each other and be there has support for each other.-Deborah

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Struggling to Cope

Im reaching out to other parents out there.........My boyfriend of whom I have been with for almost 5 years has a son who is now 6 with Hypo Plastic Left Heart. We all love him...

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Feeding difficulties?

Hi, My son is s7 months and is 3 and a half months post Glenn. He has an NG tube placed for feeding. He takes very small amounts of milk at one time. We have been feeding him...

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Any advice for the first years?

I'm currently 21 weeks pregnant and recently found out my little girl has HLHS. We've decided to do the surgeries when she is born. I know the first few years, particularly the...