bladder exstrophy?

Ashley - posted on 05/10/2012 ( 1 mom has responded )




I am currently 13 weeks pregnant and learned from last u/s that the baby has bladder exstrophy,possible developemental delay to left leg,and the heart is lower in chest due to bladder not being there to "hold everything else up" the dr said that the spine looks good, and no sign of spinabifida, so far but it's hard to tell since it's still so early, i go back in three weeks for another u/s and a possible amnio,just depending on how everything looks... i am desperate to find other mom's going through/or that have went through similar situations like ours and any words of encouragement/advice would greatly be appreciated! Thank you in advance :)


Adrien - posted on 06/12/2012




Hi Ashley, I haven't been in your situation but just wanted to say hello and see how things are progressing with you.

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