Hypospadias Surgery.... again?

Jennifer - posted on 12/05/2008 ( 21 moms have responded )

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My son had his corrective surgery at 9 months old. Now that he's healed, his meatus goes from the center down to about where it used to be on the underside of the the glans. He also has a couple "fingers" of skin at the tip. He has an appointment to be seen in a couple month to see if he needs surgery to correct this or now. It hasn't gotten better and now I've noticed there seems to be a small chunk of skin missing from the underside.



Has anyone had problems with the corrective surgery and had to have it corrected again?

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Jennifer - posted on 02/27/2009

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Quoting Tawnya:



Thanks so much for all of your posts.  I have a 11 mo old with mild case but we are debating the surgery.  Do any of you now regret having the surgery after now having to go back for a 2nd and even 3rd corrective procedure?






Tawnya,



My son's hypospadias was mild, say distal, meatus at one thirty instead of 12, and he did have a foreskin that was not continuous around the head of his penis.  No big deal, we could have had him circumcised and left it at that.  I know that Dr. Baker gave us a good 6 months to think about it and talk about it.  Here are the reasons and their reasoning's as to why we went ahead and had it done, and did the 2nd surgery as well. 



1. We were worried about issues with his self esteem once he realized that his penis was different.  Now being distal and mild, I would hope that it would not be quite as noticeable as a more severe hypospadias and repair, but knowing how mean kids can be, and how detrimental to a kids self esteem that can be, we opted for the surgery.



2. I got out on the Internet and started reading about men who did not have it corrected, many of them had severe hypospodiasis, many of them had issues with having relationships, having sex, and having children.  I was willing to do the surgery to help ensure that he was able to do all of the above if he chose.



3. We really had no choice in having the second surgery because he was urinating out of he penis in 2 places.  That definitely needed to be repaired. 



 I do not regret the initial surgery nor the 2nd surgery to repair the fistula, but I will tell you that I regret that we had issues during our post op period with each surgery.



With his first surgery, I wish the staff in the office, Dr. Baker, the staff at the hospital and the idiot I called who was on call, did a better job of educating the parents as to post op care. 



a. "the dressing", a tegaderm wrapped around the end of the catheter that has been sutured into the tip of his penis should not come off until Monday (my son's surgery was on a Thursday).  His dressing came off on Friday.  I am a ICU Manager and my husband is a CRNA and our son had us motionless and clueless as to what to do when he started to sweat, pant, grunt and go white as a sheet when the dressing came off and we tried to change it.  Yes, we knew the skin would heal very fast with an infant, it just was not that fast.  The idiot that was on call for Dr. Baker told me to put antibiotic ointment on it, cover it with gauze and put his diaper back on him.  PLEASE if you have this surgery done, do not do that.  Just reinforce the tegaderm with more tegaderm and wait it out until the Dr. appt to remove the catheter.  I think our son probably had 15 tegaderms on his penis by his appointment.  it was hysterical and I did not apologize for it. 



b. My son went into the 2nd surgery with a cough and a cold.  Anesthesia went ahead and ok'd him for the surgery.  I regret this decision and I wish that I had pushed to postpone the surgery. 



He had a hard time coming out of the anesthesia and maintaining his blood oxygenation levels, and 2 or 3 days later we were in the ER with bronchiolitis. He ended up staying overnight.  Of course visiting the ER we caught rotavirus on top of it.  My father, my 2 month old twins and myself went to my aunts for a week while my husband stayed home with my son.  It was horrible, and in the end, the twins caught roto too. 



With his 1st surgery, because he was just under 6 month old, they would not give him any kind of narcotic pain medication because it could decrease his drive to breathe.  My son was 21 months old with the 2nd surgery and they let him have Darvocet.  I would say push for a stool softener for your son. 



I hope this helps, I hope that I  do not sound like I am ranting.  I also do not want to sound to harsh.  I am a firm believer in being an educated patient, not traumatizing with knowledge, but educating.



To sum it up, no I do not regret having his surgeries. 



if you have any questions please do not hesitate to contact me.



 

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21 Comments

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Yahima - posted on 03/12/2014

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Thank Liz my 3 mos old son had his surgery ladt Monday, yesterday at 4 am while changing his diaper I notice urine coming out of two holes un beneath the new meatus. I was so disappointed and started feeling really guilty and wondering if I should had put him through this in first place. At the beginning there was no doubt but now think that he has to endure a second surgeryis heartbreaking.

Liz - posted on 01/31/2014

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Hi Alecia your story sounds very similar to mine, my son was 2 last month he had his first surgery last march and the surgeon said he needed just one, everything was good then when the catheter came out the stitches came undone and we were back to square one (gutted). Then my son had surgery middle of November I was more worried afterwards this time every nappy change I felt sick with worry that it would open again. I did think it had opened again as the stitches seem to dissolve so quick with my son (one day after catheter out) but he has no holes underneath, I've left his nappy off but I haven't seen yet if he's weeping from the tip think he must be though his glans is totally covered in his foreskin now only a tiny gal can be seen, I'm not sure if that is normal? And we don't see the surgeon till 6 months after op so I've got a while to wait and worry! Having sons with this is so stressful I worry lots about what it looks like and is he weeing ok/straining to go , sending all the mums hugs anyway.

Alecia - posted on 01/30/2014

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My son is 2 years old and he is 11 days post op. I would love to tell you great things but unfortunately I have nothing good to say. My son had his first surgery at the age of 1 and the surgeon was confident that he would only need the one. When we went for the checkup the surgeon told us his stitches came apart and that he would need another surgery, maybe 2. It started out as a very easy fix/mild case but after the first surgery we had to travel 8 hours for an appropriate surgeon due to the severity. Now 11 days post op and he needs to go for yet another surgery as the stitches came apart again! At first I was upset with myself, worried that maybe I wasn't carrying for him properly but then the surgeon assured me that its not my fault and that he has weak skin tissue which is what could have developed the Hypospadias in the first place. Each time he had surgery I feel like it looks worse and worse. Please consider all options.

Charlotte - posted on 10/12/2013

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My son had mild hypospadias surgery at 13 month in uclh in London. I was extremely worried and everything went amazingly well. 2 hours after waking from the operation he was himself and playing like before. He was under medications and suffered the first few times when peeing (spasm I thought) then everything was fine. His dressing was removed 5 days after surgery. No fistula opened and the penis looks absolutely normal (we have opted for the reconstruction of the foreskin as there was enough skin available)
We have decided to operate him for the estetic reasons and self esteem ... And we do not regret it at all.
I was a worried mum hesitating seeing all these failed operation stories but I would like to say that in 80% of cases everything is perfect.
Good luck to all of you as it is a difficult moment to go through.

Theresa - posted on 10/06/2013

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My son is 7 months old and is a fraternal twin. We decided for surgery with his mild case, much like others, as we didn't want him to feel "different". Especially since he has a twin brother without hypospadias.
Our surgeon was overly confident that we would only have one procedure. The surgery went well but we were completely unprepared for the post op meaning it is very disturbing to see your little guy's penis in the state it will be in. Removing the bandage and giving him all the drugs we had to give him was awful. I had regret a few times during the healing. After about 2.5 weeks, he was much better.
However, the surgical site seems to not have been properly stitched or we have a case of tissue separation. The original hole opened back up and we are furious! Our surgeon is the head of his department at a leading hospital in San Francisco and well-known in the field as well as considered an expert at this procedure. We did everything "right" and now we have to go back for god know what else. We are so frustrated.
Please think this through and imagine the complications as a reality as there are MANY that are possible. Additionally, don't make the mistake we made in assuming the success rate takes into account long-term results. I read after the fact that many complications often develop years and years later.
Best wishes on making this difficult decision.

Tawnya - posted on 06/26/2009

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Quoting Jennifer:



Tawnya, how did the surgery go? 






Well we are 3 months post op.  I thought the healing process took forever.  But as of today he has a straight line and likes to even touch it!  He wouldn't go near the bath tub or even want his diaper off for over a month.  It still looks a bit swollen around the head and seems to kind of lean to one side but he is happy and healthy! 



I just hope he doesn't have to have corrective in a couple years like I keep reading about.  Thanks for your support and this group!  I couldn't have survived even getting the surgery with out it.



 

S - posted on 05/17/2009

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Hi!

I have a question for all of you who's children had surgery, please see my question it's the Epidural question.

Thanks!

Jennifer - posted on 03/09/2009

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Tawnya!  Good luck!  I hope all goes well!  Let me know if you have any questions! 

Tawnya - posted on 03/08/2009

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Thanks so much for your response. We have decided to go ahead with the surgery and we are scheduled for Thursday. I will be looking for post op help for sure as that is what I am most worried about. Thanks again!

Tawnya - posted on 02/27/2009

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Thanks so much for all of your posts.  I have a 11 mo old with mild case but we are debating the surgery.  Do any of you now regret having the surgery after now having to go back for a 2nd and even 3rd corretive procedure?

Emma - posted on 02/08/2009

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my son had been circumcised in the first opp so they could use the skin for a graft. my sons "hole" was actually under his penis on his body but must ov that got fixed in the first 2 opp's he is now weeing from the top ov the circumcising so they are going to move it to the tip of his penis.

Emma - posted on 02/05/2009

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hi there my son has had two operations in the last year and it still aint rite he had the third degree hypospadias surgery. the first and second operation went find it was when he was healing one ov two things could ov happened either the stitching or a hole has formed and there where he is weeing from. my little boy has to go for a third operation in june/july time

Sarah - posted on 01/21/2009

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My son is 7 (8 on Monday) and had moderate hypospadias - he had the op to correct that and chordee at 9 months old. He is currently in hospital having it done again as over the last couple of months he has been peeing out of 3 holes at the same time. We have been warned that there is a chance this could happen again in years or even months time. At the time of the original surgery I never thought we would be here again 7 years later :(

Jennifer - posted on 01/20/2009

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My son ended up having to have a post hypospadias fistula repair done about seven months after his initial surgery.  He developed a respiratory infection after the surgery and was placed on steroids. We believed that this made the skin on the distal area on his penis thin enough for a fistula.  It was really disappointing to say the least. 

Jennifer - posted on 01/08/2009

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Thanks, Everyone, for the good luck wishes.



Blake had his appointment yesterday and everything went well. His meatus is kind of large and the glans is a little deformed, but the doc didn't think it was enough to warrant another surgery. I just hope he doesn't have trouble peeing straight when he gets older (when it's time to potty train). He pees to the front of his diaper - instead of all over it like before the surgery - so hopefully it won't be a problem.

Celia - posted on 01/07/2009

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My son is 9 years old. He had the hypospaidus repair when he was 13 months. Just last month, he had to go in to have the hole opened a bit wider--the scarring made the hole very small and he was complaining of having more than one stream when he peed. The hypospadius repair was successful, but I have to admit, I was quite upset when we were told he'd have to have surgery again. We just went back for his surgery follow-up and were told if he doesn't keep using vaseline on it 2-3 times a day for another couple of weeks, he'll be facing the same procedure. I hope I am not going to live to regret the decision we made to have his urethra corrected. Good luck, Jennifer...I would get a couple of opinions before another procedure.



 

Jennifer - posted on 01/05/2009

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Thanks, Jamie. Blake has his appointment tomorrow to be re-evaluated with the same doctor that did the surgery. I hope he at least considers fixing it. I'll post what comes of tomorrow's appointment. ....also hope my husband, who is taking him in, points out the problems I see. (He can be kind of shy when it comes to penises.)

Jamie - posted on 01/04/2009

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My son had to have two surgeries for his. He developed 2 leaks along the stiches. Dr Joseph at childrens hospital in Birmingham, Al. did his surgery. This was 5 years ago he has healed nicely almost no scar tissue. Dr. Joseph did a wonderful job. Perhaps a second opinion will help you confidence with this doctor!

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