Hypospadias Surgery in 8 days

Madeleine - posted on 12/08/2008 ( 22 moms have responded )

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My 7mo old son Andrew, was diagnosed with Hypospadias w/ mild chloree, when he was born. He was a month premature and wasn't feeding well. He was born by C-section and wasn't breathing when he was born for 1 min. His temp was low and he just had a rough start all over. He spent 20 days in NICU for feeding issues. He is due to have surgery on Dec 16th and I am an emotional roll a coaster of emotions. My son also has Hypotonia (low muscle tone) and even though he will grow out of it he still have issues with it now. Andrew has Occupational Therapy to help him with it but I am just scared out of my mind that something is going to happen when he goes under the knife. He's so little and I know it's better for him to get it done now so that there are no complications later. His opening is just under the head of the penis and you can't tell unless you are looking for it, but I just want to know if anyone here has had any regrets for getting this done at a young age or any issues after the surgery that I need to prepare myself for. How much pain do baby's this young feel??

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Stacey - posted on 12/23/2008

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hi , i understand all your worries, my son is now 3 he had his hypospadias repair in dec 2006 ages near 1 , this is the best time to have the surgery at this age as the skin has alot of time to grow and the strech is still there, you will ahve everything explained to you i am sure, and the surgery is not very risky at all, and as you say this is a mild case, your son will have a large bandage with a catheterafter the operation this is because the urine can affect the wound so havin the catheter is the best option, the caether will be removed after around 4-5 days, maybe earlier, he will also have plenty of pain relief and therefore shoudlnt be in any real discomfort, and medication to stop bladder spasms , my son was right as rain after his op but i know all children ae different, its hard but all you can do is comfort him,its always worrying, my son was also born with imperforate anus whhich meant he had no anal opening, and his bowels hadnt developed properly, he had a colostomy bag fitted at 1 day old and i really do understand , he has many other problems, and has had many operations and it doesnt get easier but you get through it cause you have to, good luck i hoep all goes well and contact me if you need any more advice or u want to chat regards staceyx

Amy - posted on 12/10/2008

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My son had surgery when he was 5 1/2 months old for hyspadias. He did amazingly well. He was more upset that he couldn't nurse than the surgery itself. The surgery recovery wasn't much more than the discomfort of the half done circumcision that started the process. (They didn't discover his hypospadias until after they started his circumcision, he was my third son and we were suprised when they came back saying there was a problem.) This is just our experience others may be different. My older son has gone in for surgeries at 4 (tonsels/adenoids) and 6 (lazy eye) and the surgeries and recoveries were more difficult than with my other son's as a baby. I hope this helps.

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Candace - posted on 11/23/2010

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My son had Hypospadias surgury when he was about 7 months. I had alot of the same problems as far as his low temp and not eating when he was born. I was told that 1 out of every 4 boys are born with hypospadia so it must be rather common. This was 7 years ago and he did very well after the surgery and I am glad that we had it done when he was very young and doesn't remember and now I don't worry about him having any embarrassing issues when he gets older. He will not remember it since he is so young. I would say for us it was a good decision. Good luck to you and your son.

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my son just had surgury and he had to have a cathada in for a week that was hard for me changing his bum his dad had to have a week off work but my son handeled it better than us he was 11 months and it is healing well he has a condition called opitzs

Jaclyn - posted on 03/22/2009

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My little guy had his surgery on Friday and he is doing great! It took about one hour. They discovered he had two urethra openings which they didn't realize before starting the surgery. But they were very close together so the just snipped the skin in between.

He hasn't had much pain...only needed tylenol for the first 24 hours. Right now I'm trying to get the bandage off. Was told to take it off yesterday and got most of it off but the underneath layer was stuck. So I'm doing it slowly so I don't hurt him. Gonna throw him in the tub again later today to try and loosen it up.

From what I can see, it's red and a bit swollen. And his left "ball" is bruised.

Jennifer - posted on 03/19/2009

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Quoting Anita:

My son is 7 1/2 months and he just had hypospadias surgery on Fri in Savannah, Ga by Dr Mazo. I was expecting the worst, thinking he was going to be in a lot of pain. But he did very well. I am able to keep his discomfort to a minimum with the pain medication and I am giving him prune juice to prevent him from getting constipated from the narcotics. He doesn't seem to need as much medication today. He gets his catheter out on Thurs afternoon, so I am nervous about that. The dressing hasn't fallen off yet, but it looks like it is getting loose. So I haven't seen under the dressing yet. The Dr warned us that it wasn't going to look pretty for awhile. Good luck with your son's surgery!



You all are doing a great job!  Controlling his pain and his constipation is such a priority!  Catheter coming out is not a big deal,  they snip the stitch and pull out the catheter.  In regards to the dressing getting loose, i would say get a couple of tegaderms and reinforce it until you get to the doctor. 

Kim - posted on 02/04/2009

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My grandson had this surgery when he was about 9 months old too. He did very well afterward. His was mild too. He didn't even have to come home with a catheter. He was back to his old self about two days later. Good luck with everything.

Stacey - posted on 01/26/2009

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hi all i have started my own group on her, icase any of you knows anyone that needs support or any information , support for parents and carers of children with imperforate anus or hypospadias, thanks, x

Anita - posted on 01/26/2009

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My son is 7 1/2 months and he just had hypospadias surgery on Fri in Savannah, Ga by Dr Mazo. I was expecting the whorse, thinking he was going to be in alot of pain. But he did very well. I am able to keep his discomfort to a minimum with the pain medication and I am giving him prune juice to prevent him from getting constipated from the narcotics. He doesn't seem to need as much medication today. He gets his catheter out on Thurs afternoon, so I am nervous about that. The dressing hasn't fallen off yet, but it looks like it is getting loose. So I haven't seen under the dressing yet. The Dr warned us that it wasn't going tp look pretty for awhile. Good luck with your son's surgery!

Sarah - posted on 01/21/2009

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Quoting Lo-Andri:



I have just recieved a letter tha my little boy has his operation on the 21st of this month. i am feeling very anxious .






Just wanted to say hope it has all gone well - my sone is in today too having his 2nd op - he is 7 years old now - good luck with it xxxx

Jennifer - posted on 01/20/2009

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I would say make sure that your son gets his pain meds.  After my sons surgery on a Friday, the doc said his dressing wouldn't come off until Monday and by then he would be healed enough for the dressing to come off with no problems.  It came off on Friday in the evening.  When my husband and I(both critical care nurses) tried to get the dressing back on my son he was as white as this page, screaming and panting.  So we called the idiot doctor on call, he said put some vasoline on it and put a diaper back on him . I would tell you not to heed that advice.  When we tried to do that, he was panting, sweating and screaming his head off.  We eventually got the tegaderm back on him and when we got him back to the doctor a week later, you could not see his penis because we just ended up reinforcing the dressing instead of taking it off.  



  He will also need a stool softener of some sort.  I ended up having to "help" my son after his second surgery because he was on Darvocet. 

Lo-Andri - posted on 01/18/2009

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Thank yo so much for that.the doctor said that he cant exactly tell whats the real problem though until he is in surgery. The urthtra might be too short and if thats the case he will have to go back in a few months time to have that fixed aswell.

Lo-Andri - posted on 01/18/2009

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Thank yo so much for that.the doctor said that he cant exactly tell whats the real problem though until he is in surgery. The urthtra might be too short and if thats the case he will have to go back in a few months time to have that fixed aswell.

Celia - posted on 01/10/2009

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Quoting Lo-Andri:



I have just recieved a letter tha my little boy has his operation on the 21st of this month. i am feeling very anxious .






My son had his hypospadius repair when he was 13 months old. I was worried sick, and thankfully, it was all for nothing. He didn't have any issues at all until about 6 months ago when he said he started having more than one stream when he peed. The urologist said that he had a bit more scarring than what'sconsidered normal, and about a month ago they did a minor procedure to enlarge it. During the healing process he's supposed to use vaseline a few times a day or he'll have to have the surgery to enlarge the opening again. I'm hoping he keeps the burning sensation after the first post-surgical pee from the second surgery close in mind, so he'll follow the doctor's orders! Good luck with your son's surgery!

Lo-Andri - posted on 01/10/2009

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I have just recieved a letter tha my little boy has his operation on the 21st of this month. i am feeling very anxious .

Amanda - posted on 01/08/2009

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Hi I have a son who was born with hypospadias as well he is now 19 months and had his surgery 2 months ago. I was sooo scared to, it brings back soo many memeroies of how i felt and what we went through during his procedure. Anyways i am happy to say that his prcedure went well, he swelled and his penis did turn purple and blue, and blister alittle, it os comletly healed now and looks way better. I have a question for you though...his penis looks kinda small, i dont have another son to compare to but, it just looks really tiny. i know there isnt anything anyone can do about that, just wondering if its just bound to happen or if its anything to do with hypospadias.

Jennifer - posted on 01/08/2009

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Madeleine.



I hope your little guy is feeling better and gets to come home soon. As for pain that they feel, after the hypospadias correction surgery, you will get sent home with pain meds. Our doc told us to switch over to regular Tylenol or Motrin after 1-2 days. Blake was definitely feeling better after a day or so. Unfortunately, he got sick right after surgery - something going around at his daycare - so he could have been feeling better from the surgery sooner. He was totally back to himself after about 2 weeks. Btw, he was 9 months old when he had his surgery. He healed really fast too - as babies do.

Celia - posted on 01/07/2009

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Madeleine,



My thoughts and prayers are with you. I hope Andrew is healthy and home very soon.



 



-Celia

Madeleine - posted on 12/19/2008

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Andrew's surgery was delayed. He has developed the flu and has had breathing complications with it. He is in ICU in on the Ped's floor. He's been there since last Sunday so I am just taking one day at a time. He's doing better but we are just praying he'll be home soon!!

Angela - posted on 12/14/2008

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I guess it won't post the link to the video but if you go to youtube, do a search for daveandangela, or hypospadias repair and we'll come up. Also, as far as diapering with a cath, I just double diapered for extra padding.

Angela - posted on 12/14/2008

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Hi Madeleine, my youngest boy, David, was diagnosed with first degree hypospadias at birth and I, like you was a nervous wreck up until the day of the surgery. David was 7 months as well when he has his repaird as well. I was AMAZED at how quickly it healed. The worst part, was of course the first few days, but if they give you ditopan (for bladder spasms, use it!) It really helps. David had a cath tube or stent put in, it was in for 4 days, to drain the urine into the diaper. So those 4 days were rough, but he still slept through the night. But, as soon as that tube comes out, it heals rather quickly. I know I can't tell you not to worry, but a week or so afterwards, you'll say to yourself, that wasn't so bad. If you have any other questions, feel free to contact me. I also have a video on youtube of the day after his surgery.





Hope this helps!

Angela

Madeleine - posted on 12/11/2008

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Thanks!! I haven't sleeped well because of the fear of the unknown I guess.....I am curious, how things are going to be after the surgery. (Diapering with a catheter, hold him, Physical Therapy, Eating, etc.....)

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