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My 10 month old just had his surgery 7 days ago.

Nicolle - posted on 03/28/2011 ( 3 moms have responded )

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Hi,I am new to this community. I am SO glad to find this. I hope I can make some friends on here.
My son, who will be 11 months on April 13th, just has his hypospadias repaired on March 21st, 2011. We are 7 days out, post op. We went for his follow up visit today, and the Dr. removed the catheter, but after 5 hours of no pee, they had to insert a new one. It was a nightmare. The surgery itself wasn't too bad. It lasted 2.5 hours. My son had 2nd degree Hypospadias, where the urethra was right below his penis head. When he was born we were devastated. I had never even heard of hypospadias. When I heard the nurse mention it, I had no idea what it even was, or how to pronounce it. My husband and I just thought his penis was swollen, and it would go away. We were SO upset he couldn't be circumsised. I am So glad I didn't realize what we were going to have to go through.
From what friends told me, I wasn't really expecting the after care to be so bad. Everyone said that their babies were playing and acting normal the next day. Not so with our child. He was bleeding a litlte more than we expected, and he seemed to hurt really badly everytime we would change him.

4 days post of we went to have his dressing removed. When the Dr. removed his dressing, he removed his scabs, and he started bleeding, a lot. The dr. assumed the IBprofen was making his blood too thin, so we had to stop giving that. We were prescribed IBprofen, Tylenol and codeine, and an anti-spasm medicine, with antibiotic as well. They had to re-wrap the penis, and put an anti-clotting medicine on it. I had to hold his penis for 1.5 hours because they pharmacy wouldn't prescribe the clotting powder, a NIGHTMARE! He did ok this past weekend, but when we brought him back today, and had the catheter removed, he didn't pee. :( I was so scared. I am respiratory therapist, so I know taht if you remove a cath, and the patient doesn't pee quickly, odds are they are going ot have to replace it. The dr. pushed his cath to the middle when he pulled it out, and irritated his urethra. It was a horrible day. Has anyone else had to deal with this? We are now going to have his cath removed on friday, and we are PRAYING that it goes well. I could really use some feedback, or just someone to talk to who has gone through it. My son had mild hypospadias, he didn't have to have testerosteron shots, nothing like that. I just didn't expect it to be so hard. :( Thank you!
Nicolle

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3 Comments

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Adrien - posted on 04/04/2011

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Thanks Amanda, I can be a run away train sometimes! Nicolle, how is your son doing now?

Amanda - posted on 03/30/2011

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Hi ladies. My post is for both of you. My son has epispadias but I won't get into all he's gone through because I don't want you to get the 2 conditions confused. There are similarities though. He had his first repair when he was 18 months and it went well, all of it. He had a bandage and catheter as well but never had a bit of trouble with it. He's 8 now. I've done a lot of research and talking to grown men and other moms about HS and ES. Nicolle, I think you should meet another Dr. and get a second opinion. To me, it sounds like the whole experience could have been better. I don't know where you live but I might be able to give you some names. And, Adrien, slow down honey. I know sex and children will always be in the back of your mind but it's a long way off. But, yes, men with HS or ES can have sex and, from what one wife said, they can have great sex. Children shouldn't be much of a problem either, depending on the severity of his HS/ES. I've been dealing with this stuff for 8 years and have learned a lot. My best advice is to deal with the here and now. Anyway, I'm a member of HEA (hypospadias and epispadias association). It's an online support group. It's great. I found it about 4-5 years ago and love it. Everyone is very open and so willing to share their experiences. Please check it out. I think some one there may be able to help you both out. Good luck on the upcoming surgery Adrien!

Adrien - posted on 03/30/2011

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Hi there, my son is scheduled for his surgery in June and will have to have 2 rounds of testerone shots. How is your little boy doing now, I am so sorry he has to go through this pain and I empathize with you. It is very heart breaking and I guess my biggest question is about his future, will he be able to have sex and children as an adult.

Thanks for sharing!

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