Amanda - posted on 02/12/2011 ( 3 moms have responded )
I'm putting together a parent directory for hospitals, clinics and doctors offices to hand out to patients/families dealing with hypospadias, epispadias and bladder exstrophy. If you're interested in helping other families cope with the frustration and loneliness that comes with these disorders, please send me a message with your name, contact information, the defect you're dealing with and the age of your child. As soon as its finished, everyone on the list will receive a copy. This information will not be made public, but will be given to patients and families with hypospadias, epispadias and/or bladder exstrophy in their lives. Thanks!