Penoscrotal Hypo w/chordee and bifid scrotum

Liz - posted on 01/16/2013

Hi, so good to read all your posts, my son has hypospadius and will be having surgery in the next 6 months, I am terrified and have been dreading it since the day after he was born when I found out, It's so good to see other mums having gone through the same and seeing positive outcomes, it helps me feel a bit better so thank-you.

Mary - posted on 07/31/2011

Hi all
I'm new here
We have surgery scheduled for aug 2 for our 8 month old "mild" hypospadias
I just reread our instructions and got confused-ugh
At first I thought I was supposed to do the testosterone cream upuntil the day of the procedure
Now I'm afraid it says to stop 5 days prio(I am now 3days out)
Anyone know anything about this?
It's Sunday so it's hard to get ahold of anyone
Like this isn't stressful enough

Liz - posted on 06/18/2011

If all goes well, and the testosterone cream does its job, the pediatric urologist told us that he and we have every reason to expect one surgery. I am glad we have this surgeon, he is very knowledgeable and we had a consult before the baby was even born (it was a terrible time, finding out and not being able to see more than an ultrasound so late in my pregnancy) but b/c my son's testicles had descended there was no question and I'm glad we didn't have to go through crazy testing unexpectedly after he was born -- we knew what to expect. Anyway, the dr. discussed the technique he uses and its success and how typically these corrective surgeries were done in two stages. I will be glad if we don't need more than one but whatever our son needs we will do it. I had assumed that he would need multiple surgeries due to the severity, but we'll see. Surgery is scheduled for August 15th, my son will be 7 months old.

Jennifer - posted on 06/18/2011

The underside of the penis isn't adhered to the scrotum but with the chordee it is pretty tight. When he does get an erection it almost straight down. We had no idea he had any of these conditions until birth but did have an amnio so we knew sex without the need for u/s. Is your little guy going to have mulitple surgeries or are they trying to get it done in one?

Liz - posted on 06/13/2011

Wow, am I glad to read this. We knew our little guy (born 1/22/11) would need corrective surgery before he was born (found out after much back and forth on sex of baby at 34 weeks). He will be 7 months in August, surgery is August 15th. They say the surgery will last 5 hours and we will probably have an overnight stay for observation. I have a Rx for testosterone cream which I have to begin applying four weeks before the surgery, and stop applying for the week before. Did not hear anything about injections. Glad to hear your little guys are doing well after surgery. My son has what sounds to be very similar to original poster: chordee, hypospadias, bifid scrotum, penoscrotal transp. Original poster: does your son also have the underside of his penis fused to the scrotum?

Adrien - posted on 06/06/2011

Soooo glad to hear you ladies had positive experiences...thanks for sharing!

Jane - posted on 06/04/2011

Mine had penoscrotal hypospadias and chordee and had 1 testosterone injection a month prior to surgery. No side effects and his penis did grow a bit. Surgery went well- he had it at 7 months. It lasted 3 hours, but we literally left the hospital an hour after he woke up. It was like he never had surgery and there were no complications. He also only ended up having one surgery to correct it all and just saw doctor for follow-up and said he is clear until he is 3 years old for a check up!! Good luck mama-- he will be fine.

Anthea - posted on 06/04/2011

Hi There, just wanted to send you positive thoughts. My son had his hypospadias repair at 10 months. It was very stressfull as a mother but he did so well. His penis looked very sore after surgery, swolen bruised etc. Nappy changes were difficult but we managed. After the first couple of days he was crawling around the house like normal. Once the cathater came out he seemed to find it painful to urinate for a while but we were suprised as to how quickly everything healed. H is now almost 2 years old and has a completely normal penis. Nobody would be able to tell he ever had surgery. Good luck, they really are tough little things and seem to cope really well!!!

Jennifer - posted on 05/31/2011

I'm glad your son didnt have any side effects from his first injection. I too, am far more worried about the surgery and any long term effects.
The pain after the procedure really makes me want to cry. How did all of your boys do after?

Adrien - posted on 05/31/2011

My son is set for surgery June 27th when he will be 7 months old and he also has to have 2 testerone injections at 6 and 3 weeks before his surgery. We had his first injection on the 18th and it was a piece of cake. The injection is put in thigh, in which my son winced from the pain and then when she took the needle out, he was fine. Didn't cry at all and really didn't seem affected from the shot at all. Now having said that, he has an erection almost every morning and some times during the day. He penis has also gotten much longer which will help with the extra skin that is needed.
So just to put you at ease, there is not to worry about (at least at this part). I am not looking forward to the surgery though, but it will be a relief to get it over with. He also has the chordee but the doctor is not sure if he will need 1 or 2 surgeries and he will decide during the surgery. His urethra is located at the base of his penis so he had a severe case. I am hopeful, so we will see.