Penoscrotal Hypo w/chordee and bifid scrotum

Jennifer - posted on 05/31/2011 ( 14 moms have responded )

4

0

0

Hi!
Our little guy is due to have the first of his two surgeries in Augus for the repair of the chordee and the bifid scrotum. They will also graft the foreskin to the underside of his penis in preparation of the second surgery. Did any of your boys require testosterone injections prior to surgery? If so, what were the side effects? Did the side effects subside when the testosterone injections were completed? We were told to have two injections a month apart to prepare the site for surgery and I am reading some rather scary side effects online!

MOST HELPFUL POSTS

Jane - posted on 06/04/2011

8

0

1

Mine had penoscrotal hypospadias and chordee and had 1 testosterone injection a month prior to surgery. No side effects and his penis did grow a bit. Surgery went well- he had it at 7 months. It lasted 3 hours, but we literally left the hospital an hour after he woke up. It was like he never had surgery and there were no complications. He also only ended up having one surgery to correct it all and just saw doctor for follow-up and said he is clear until he is 3 years old for a check up!! Good luck mama-- he will be fine.

Anthea - posted on 06/04/2011

12

21

2

Hi There, just wanted to send you positive thoughts. My son had his hypospadias repair at 10 months. It was very stressfull as a mother but he did so well. His penis looked very sore after surgery, swolen bruised etc. Nappy changes were difficult but we managed. After the first couple of days he was crawling around the house like normal. Once the cathater came out he seemed to find it painful to urinate for a while but we were suprised as to how quickly everything healed. H is now almost 2 years old and has a completely normal penis. Nobody would be able to tell he ever had surgery. Good luck, they really are tough little things and seem to cope really well!!!

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

14 Comments

View replies by

BB13 - posted on 01/23/2014

1

0

0

Panagiota, do you mind me asking what the prescribed medication you took was? Thank you

Melanie - posted on 11/11/2013

2

0

0

Hi fellow moms,
I'm so happy to have found this group. My story is very similar to Panagiato's. I was told twice during prenatal ultrasounds that we were having a girl. When my son was born, the on-call pediatrician told us he had hypospadias and said she was "97% sure" he was a boy but suggested we hold off on naming him until genetic test results came through because an intersex condition was a possibility. I had been induced so everyone knew our baby was born and was trying to reach us. How do you tell your friends & family that you don't know the sex of your baby?? I felt so alone. It took several long days for the results to come through, confirming he's a boy.
Firstmum2013, just as you said, the day my son was born should have been the happiest day of my life. I feel robbed off that. I was still happy to meet my baby, but the happiness was dampered by concern for his well-being and his future.
I too wish this had been caught on ultrasound before my son was born. At least we would have been prepared. Failing that, I wish we'd just never asked the sex of our baby. But nothing can be done about that now.
I'm terrified about my son's upcoming surgery, but I'm so happy to be his mom and I love love love my beautiful baby boy. I try to count my blessings each day instead of dwelling on what can't be changed, but it's hard not to stress. And the guilt! I thought I was being so cautious during pregnancy--following all the rules, eating healthfully, etc. I just don't understand how this happened.
Anyway, that's all for now. I'd love to hear more from moms/dads in similar situations and keep in touch so we can share updates and info about our sons.

Firstmum2013 - posted on 11/05/2013

1

0

0

Hi Panagiota,

Thanks for sharing your story & it sounds like what I went through & this is my first pregnancy too. The difference is I had high risk for downs & had amnio at 17 weeks & that is when we knew we were having a boy(46xy) & my 20 weeks scan was done by a doctor for a review & I think they didn't pick anything wrong... If only they had done a proper scan & looked at genitalia they would have definitely seen that it doesn't look right for a boy... That is why it frustrates me & I get angry with myself for not asking them to specifically recon firm the gender through the scan... I still haven't completely accepted what has happened & blame myself for not asking them to confirm everything looked fine in the 20 weeks scan... We just took it for granted that the amnio is a confirmed test as I had never heard of hypospadias... Even after this they repeated the test after birth. My son also had palpable testes but because of the bifid scrotum they suspected CAH etc,.... It's been traumatic & still feel I am responsible for letting it happen to us... The day he was born should have been the happiest for us as it's our first baby instead it's become the most traumatic tragic experience for me.... My husband seems to have gotten over it since they confirmed it's just hypospadias hut I worry about what future holds for my son -surgery, overall development, confidence etc... That is why I keep trying to find other mums who have been through this & come out fine. My son is now due for a 2 stage op with the first one planned to be done when he is 9 months.. Just hoping the surgery goes well & he gets discharged before he is 3 or 4....

Hugs
Xx

Shilpashri - posted on 09/02/2013

1

0

0

Hi Liz & Jennifer,

I am a new mum and had the shock of my life when I delivered my baby boy last month who has been diagnosed with severe hypo with bifid scrotum. Was wondering how your boys are doing post op? How did you deal with your emotions immediately after the birth? I have just been crying & wishing they had diagnosed this in one of the ultrasound scans & given us a chance to either continue or terminate! I had amnio at 17 weeks & everything came back normal & then had a scan every 4 weeks but none of the scans picked this up & we didn't ask for gender as the amnio had confirmed its a boy! So I keep beating myself about not asking them to check the gender which would have helped pick this up prenatally... Did you guys ever feel this way? How did you deal with the anger & frustration?

Liz - posted on 01/16/2013

1

0

0

Hi, so good to read all your posts, my son has hypospadius and will be having surgery in the next 6 months, I am terrified and have been dreading it since the day after he was born when I found out, It's so good to see other mums having gone through the same and seeing positive outcomes, it helps me feel a bit better so thank-you.

Mary - posted on 07/31/2011

1

0

0

Hi all
I'm new here
We have surgery scheduled for aug 2 for our 8 month old "mild" hypospadias
I just reread our instructions and got confused-ugh
At first I thought I was supposed to do the testosterone cream upuntil the day of the procedure
Now I'm afraid it says to stop 5 days prio(I am now 3days out)
Anyone know anything about this?
It's Sunday so it's hard to get ahold of anyone
Like this isn't stressful enough

Liz - posted on 06/18/2011

2

0

0

If all goes well, and the testosterone cream does its job, the pediatric urologist told us that he and we have every reason to expect one surgery. I am glad we have this surgeon, he is very knowledgeable and we had a consult before the baby was even born (it was a terrible time, finding out and not being able to see more than an ultrasound so late in my pregnancy) but b/c my son's testicles had descended there was no question and I'm glad we didn't have to go through crazy testing unexpectedly after he was born -- we knew what to expect. Anyway, the dr. discussed the technique he uses and its success and how typically these corrective surgeries were done in two stages. I will be glad if we don't need more than one but whatever our son needs we will do it. I had assumed that he would need multiple surgeries due to the severity, but we'll see. Surgery is scheduled for August 15th, my son will be 7 months old.

Jennifer - posted on 06/18/2011

4

0

0

The underside of the penis isn't adhered to the scrotum but with the chordee it is pretty tight. When he does get an erection it almost straight down. We had no idea he had any of these conditions until birth but did have an amnio so we knew sex without the need for u/s. Is your little guy going to have mulitple surgeries or are they trying to get it done in one?

Liz - posted on 06/13/2011

2

0

0

Wow, am I glad to read this. We knew our little guy (born 1/22/11) would need corrective surgery before he was born (found out after much back and forth on sex of baby at 34 weeks). He will be 7 months in August, surgery is August 15th. They say the surgery will last 5 hours and we will probably have an overnight stay for observation. I have a Rx for testosterone cream which I have to begin applying four weeks before the surgery, and stop applying for the week before. Did not hear anything about injections. Glad to hear your little guys are doing well after surgery. My son has what sounds to be very similar to original poster: chordee, hypospadias, bifid scrotum, penoscrotal transp. Original poster: does your son also have the underside of his penis fused to the scrotum?

Adrien - posted on 06/06/2011

37

1

16

Soooo glad to hear you ladies had positive experiences...thanks for sharing!

Jennifer - posted on 05/31/2011

4

0

0

I'm glad your son didnt have any side effects from his first injection. I too, am far more worried about the surgery and any long term effects.
The pain after the procedure really makes me want to cry. How did all of your boys do after?

Adrien - posted on 05/31/2011

37

1

16

My son is set for surgery June 27th when he will be 7 months old and he also has to have 2 testerone injections at 6 and 3 weeks before his surgery. We had his first injection on the 18th and it was a piece of cake. The injection is put in thigh, in which my son winced from the pain and then when she took the needle out, he was fine. Didn't cry at all and really didn't seem affected from the shot at all. Now having said that, he has an erection almost every morning and some times during the day. He penis has also gotten much longer which will help with the extra skin that is needed.
So just to put you at ease, there is not to worry about (at least at this part). I am not looking forward to the surgery though, but it will be a relief to get it over with. He also has the chordee but the doctor is not sure if he will need 1 or 2 surgeries and he will decide during the surgery. His urethra is located at the base of his penis so he had a severe case. I am hopeful, so we will see.

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms