Hypotonia Help

This community is for Moms of children with Hypotonia.


Hypotonic baby with slow progress - Why?

I'm new to this sight and looking for answers, help & direction & similar experiences. My daughter is 18 months old now and diagnosed with hypotonia & nystagmus....

Started by Kristi on 01/24/2013 in Hypotonia Help

Last update on 01/08/2015 by Hollie


Anyone still here?

Hi - I've just joined circle of moms because I'm looking to talk about our little girl and get some tips or just share experiences. Our daughter is 9 months and is hypotonic....

Started by Heather on 01/21/2013 in Hypotonia Help

Last update on 09/11/2013 by Kimberly



My name is Susan. My daughter was recently diagnosed with hypotonia. She is 5 years old and things have always seemed a little off. She has started to meet with a wonderful OT....

Started by Susan on 04/28/2013 in Hypotonia Help

Last update on 04/28/2013 by Susan


Feeling like it is my fault. Hypotonia

Hi there, This is the first community I have joined but I wanted to find other mums who might be experiencing the same hurdles with their child, as feeling quite down about it....

Started by Mrs Julie on 01/04/2013 in Hypotonia Help

Last update on 02/02/2013 by Amber


Tell Us Your Story

My daughter, Kylie, is 18 months old, born 2 months premature. An MRI done 5 months ago showed some fluid and white matter damage. Evidence of PVL. She has been getting ECI...

Started by Kimberly on 09/23/2010 in Hypotonia Help

Last update on 08/21/2012 by Kimberly


new to this!

hi, I have just registered on this, looking for advice from mums who have been doing this for longer! :) My son Daniel, is 10.5 months old. We found out at a week old that he...

Started by Ali on 10/02/2011 in Hypotonia Help

Last update on 10/13/2011 by Kimberly


Check out this Yahoo Group- Hypotonia HOPE

Description: Hypotonia HOPE (Helping Our Paths Emerge) is for parents who need direction, encouragement, support, and a good chuckle to help them get through the hardships of...

Started by Kimberly on 01/10/2011 in Hypotonia Help

Last update on 09/07/2011 by Kimberly



Hi there everyone! I'm just joining the group and wanting to introduce myself. I have a 2 year old daughter named Madilyn (we call her Madi) with benign congenital hypotonia....

Started by Kalle on 08/08/2011 in Hypotonia Help

Last update on 08/28/2011 by Kalle


I would like to join. :)

I have surviving quadruplets. We lost my daughter Martha the day after she was born. My other children survived being born 13 weeks early but not without problems. Joseph is...

Started by Michelle on 02/22/2011 in Hypotonia Help

Last update on 07/12/2011 by Kimberly


Isabel Update

Well our little sweetie turned one last month!! She is getting so strong she can sit unsupported for 3-4 minutes and is now attempting to sit herself up. It is so exciting to...

Started by Miranda on 06/08/2011 in Hypotonia Help

Last update on 06/09/2011 by Kimberly


Colin diagnosis

diagnosis in so far it seems baby Colin has :: S.M.A.= Spinal Muscular Atrophy I'll find out more in june.; I'll be doing SOME reading. I welcome any insight, if anyone wants...

Started by Tania on 05/16/2011 in Hypotonia Help

Last update on 05/24/2011 by Kimberly


orthodics and hip helpers

Hello. My son Blake, who is 14.5 months, has hypotonia and is in OT and feeding therapy. He recently started pulling up to stand, but won't bend his knees and keeps a wide...

Started by Bethany on 04/06/2011 in Hypotonia Help

Last update on 05/07/2011 by Heather


Global Delays

What is your experience with children with global delays catching up? My daughter is 23 months (21 adjusted) but is measured at a 10.5 month age range. Her developmental pedi...

Started by Kimberly on 02/16/2011 in Hypotonia Help

Last update on 02/26/2011 by Kimberly



Hi, I am new to the group and to circle of moms. Kim had run across my blog that I have for my little girl Natalie Hope and she emailed me.. I am so happy to be here. I am a...

Started by Sandy on 02/26/2011 in Hypotonia Help

Last update on 02/26/2011 by Sandy