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2nd MRI

Kimberly - posted on 02/15/2011 ( 5 moms have responded )

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Kylie had a sedated MRI Friday and I will be reviewing the results today at 1:30 with a new neuro. I am excited to get good news. I always try to go with a positive attitude and expect the best but keep an open mind. Just by seeing the changes in her physical ability I know there has to be great news. She started pulling up a couple of weeks ago and is now cruising a bit. Say a little prayer for us. :)

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Kimberly - posted on 02/18/2011

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I have come to learn that it is all a "wait and see" game. The brain, especially in children, is so amazing and unpredictable.
You'll never get the answers you are looking for because in matters of the brain, doctors go on theories. There is no concrete answer or solution. I just have to keep faith and hope- and get her all of the therapies I possibly can. I know that she is progressing and that makes me very happy. Thank so much for the prayers! And prayers back to you Mamas.

Lisa - posted on 02/17/2011

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Prayers for you! :) JJ had a CT scan about 2 weeks ago, now we know there is some calcification spots along with the cavernous hemangiomas...and yet....they still just say "its a clue not a cause". So on to the genetics clinic next for us!

MICHELLE - posted on 02/16/2011

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yes, he suggested it when Jake was 2...thats where the congenital muscular dystrophy w/merson negative diagnosis came in. It was good to finially hve something to go on....allot of work/prayers and much faith but he made it far in his short 5 1/2 yrs.

Kimberly - posted on 02/15/2011

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The fluid has decreased and the white matter damage has not increased so all in all good news. It's still a wait and see game. No muscle biopsy yet. Did your neuro suggest that? I guess since they know the cause was prematurity, they are just hoping that the brain rewires itself. As it seems to be doing.

MICHELLE - posted on 02/15/2011

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prayers are sent your way...Congrats to you both on her progress. Wonderful ! Has she had a muscle biopsy yet?

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