I love my Crainio baby

Craniosynostosis consists of premature fusion of 1 or more cranial sutures, often resulting in an abnormal head shape. We are a support group for the Anyone who has been effected by this disorder

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Sagittal Craniosynostosis

Hi there - I'm new to this, so hopefully my posting works okay!! We have an 8 week old daughter who's the light of our lives. She was diagnosed with sagittal craniosynostosis...

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who would have thought!!!!!

We got some exciting news Sydney has been chosen to model for a small shop in Houston her photo shoot should be around Nov 13th we are over the moon excited about this not that...

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Hi everyone

Hi everyone, Just wanted to introduce myself. Aussie mum here and my little girl has bicoronal craino, she is 5 months old now and was diagnosed at birth. We have been back and...

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Round 2 of cranio synastosis repair

Last February my daughter had the crainio synastosis repaired. She was 8 months old, 5 months corrected. It was a big ordeal cause we had to have a heart valve corrected...

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Almost home free!!!

At my daughters last yearly checkup with her nurosergon he let us know he will see her again 2 years and at that appointment if all is well she will be home free and done with...