I love my Crainio baby

Craniosynostosis consists of premature fusion of 1 or more cranial sutures, often resulting in an abnormal head shape. We are a support group for the Anyone who has been effected by this disorder


Sagittal Craniosynostosis

Hi there - I'm new to this, so hopefully my posting works okay!! We have an 8 week old daughter who's the light of our lives. She was diagnosed with sagittal craniosynostosis...


who would have thought!!!!!

We got some exciting news Sydney has been chosen to model for a small shop in Houston her photo shoot should be around Nov 13th we are over the moon excited about this not that...


Hi everyone

Hi everyone, Just wanted to introduce myself. Aussie mum here and my little girl has bicoronal craino, she is 5 months old now and was diagnosed at birth. We have been back and...


Round 2 of cranio synastosis repair

Last February my daughter had the crainio synastosis repaired. She was 8 months old, 5 months corrected. It was a big ordeal cause we had to have a heart valve corrected...


Almost home free!!!

At my daughters last yearly checkup with her nurosergon he let us know he will see her again 2 years and at that appointment if all is well she will be home free and done with...