Flu shot/Flu mist

Deaun - posted on 10/12/2009 ( 3 moms have responded )

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Are any of you getting your child vaccinated for the flu?



Have any of your children had the flu? If so, do you know how it affected their platelets?

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Sabrina - posted on 01/09/2010

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The hematologist tries to treat her when she drops below 10k - that seems to be the "magic number." She's spent too much time hospitalized, so I often just forego treatment for bed rest (just to keep her still and make sure she doesn't hurt herself. I'd rather her spend 3 days in her own bed, than a hospital bed.).

She's had 4 rounds of IVIg, which lasts about 3 weeks. She'll shoot up into the mid-100s, then be back around 20k within way too short of a time period. We've refused steroids because of the side effects and the fact that Isabel is already chunky. She's got Transexamic Acid tablets for "as needed" use because she often gets hour-long nose bleeds. They've been talking about Rituxan next.

They've done a bone marrow biopsy, so we know it's ITP and not some other underlying issue causing the low platelets. So, armed with that knowledge, I am always so hesitant to treat her. I know there is no cure and I have been through the whole hoping-this-time-her-system-will-"reset" thing so many times. We have finally submitted to that fact that this will be a life-long condition. SO, treating her with drugs that have serious side effects sometimes seems like a waste of time, just the same as a transfusion would be. But other times, we feel like at least we're doing SOMETHING.

That's the worst part of it all: knowing what is wrong and being so helpless to fix it. I mean, I'm Mom, can't I just make everything bad go away?

Deaun - posted on 01/09/2010

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I know what you mean with the roller coaster. My son - Caleb - had the flu back in October. He was put on Tamiflu and at his next count, he had shot up to 212k. I was hoping that somehow between the flu and the Tamiflu, that his body had reset itself as he had not had a count like that since his IVIg. Not so though, he is back down in the low 100's, which is where he "normally" hangs out. Do y'all treat when she is that low?

Sabrina - posted on 01/09/2010

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I realize this is an old post, but I am a new member =)



I got my daughter vaccinated this winter against the flu and the H1N1 virus as well. It didn't seem to affect her levels all that much. Although, whenever she gets the slightest illness and her immune system is in full force, her platelet count plummets to around 5. It is such a roller coaster!

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