need some adivce...

Elizabeth - posted on 08/06/2010 ( 5 moms have responded )

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my daughter has been walking since she was 10 months ( now 18 months old ) but about 3 months ago she got up one morning and just screamed when i put her on the ground and fell into a heap, not knowing something was wrong i let her cry for a while as she is often sooky in the mornings after 20 min or so she crawled off to play, i remember thinking why is she crawling ? but thought nothing of it at the time... a few days later when i noticed she was still crawling more than usual i talked to my bf about it and we decited to wait a few days and take her to the doctor, in that few days we noticed she would not jump , ride her trike , dance.... any or the things she would usualy do that involved her legs... and other things like she wont bend her knees when she get up or sits down.. she will bend forward and use her hands to sort of walk down to a laying on her tummy position and swivel to sitting up from there... and do the same but reverse to get up theres alot of other small thing as well. We took her to the doctor who couldnt tell us anything so he ordered an exray for the following day but told us to go to the hospital if we feel it cant wait till then... when we got home baby girl was still in pain and nurofen did nothing to help... we dicited to take her to the hospital to have the exrays done.
The exrays came back normal ( hips , legs , feet )
so they did some blood test that were also normal ( as far as i know it was only 2 tests for basic blood work like white blood cell count etc ) they discussed but ruled out arthritis ( i dont see how when they didnt test for it ) we were given a refferal to a specialist, we went and saw him and he had a few thought about it, he said that given her size ( shes a big girl, 14k at present ) and that shes been walking since 10 months ( unnasisted ) her body might not be able to handle it or something like that... he also said she may have to much calcium in her bones because she drinks so much formula 5-6 250ml bottles a day and suggested we dilutle the formula a bit so instead of 3 scoops she now has 1 and the bottle is only filled to 200ml..... He also said that it could be a mental thing as in shes doing it for attention but i dont think this is the case as she is in genuine pain and i dont see a 15 months old ( at the time it started ) being smart enough to know that " if i pretend this hurts mummy will pick me up " or " ok when they touch me here ill cry " i know my daughter well... and i can see when she is in pain as any mother can with there child, i feel that because i am a young mother the doctors are not taking me seriously with this.... the specialist charged us $280 for that information and saidif we take his advice it should subside in a month or so...... its been just over two months and nothing has changed... i will be taking her to the childrens hospital as soon as i can see the local dr to get a refferal but i would love to hear some other parents thought about what's going on... it realy starting to get to me seeing her like this every day, theres times she will bend her legs with no hint of pain but a moment later she will be stiff again...

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5 Comments

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Jennifer - posted on 09/09/2010

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Sounds so familiar to what happened to my friend's baby. He went to bed normal and woke up and couldn't use the lower half of his body at all. Turns out he is the youngest person ever diagnosed with transverse myelitis. It is so so so rare, that a lot of dr. don't know about it. Google it and see if it sounds familiar. Good luck!

Danika - posted on 09/09/2010

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is she getting her RDA of salt for her age? A lack of salts found naturally in most fresh foods can cause severe muscle cramps in the appendages we use the most. Obviously with your daughter walking at a very young age (impressed by that btw) she's been using her legs a lot more and for a longer period of time than other children her age. I'm nowhere near to being a doctor but the same thing happened to me when I was 15 years old! And that was my problem. No salt in my diet what-so-ever. I really hope this helps, I know the pain your daughter's going through. You're a good mum for not just going with what the Dr. says. x

Veronica - posted on 08/10/2010

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Something similar happened to my husband when he was a baby and they told me that warm baths helped quite a bit. Not sure what caused it was the same that one day he woke up and couldn't stand or walk but it had something to do with the muscle. Maybe this will help in the meantime until the dr's come up with something? I hope it gets better soon!

Amber - posted on 08/10/2010

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I agree with Kim you really have to be bold and in charge with dr.'s. I know it is so hard to do when you just want to beg them to make your baby better. I had a horrible experience with my son and dr.'s. I always said that next time if a dr brushes me off and tells me just to give it time and not to worry and that my son is fine when I know he is not I will go to another dr. or another hospital no matter the cost. Don't let them convince you nothing is wrong. Insist that they find out and treat what is wrong with your baby. Let them know you aren't going to leave until they do something for her. Be strong you are your child's only advocate push for an answer. Good luck

Kim - posted on 08/06/2010

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I am so sorry you are going through this! I don't have any experience with this, but I do have lots of experience with doctors and trying to find out what is wrong. My suggestion is talk to the doctors with confidence. prove to them that something isn't right--don't back down! Don't let them use their "doctor talk" to push things off even longer. INSIST on more tests being done to try and figure something out! Don't be afraid to be bold--you owe it to your daughter! Good luck and prayers and hugs to you and your family!