Kids living with Congenital Heart Disease

A support group for families who have children living with congenital heart disease. The stress and joy of having a child with a special heart.


New to the group

I am new to your group and would like to introduce myself. I am mom to a 25 yr old tetralogy of fallot survivor and president of Kids With Heart Natl Assn for Children's Heart...



My son Jack (who is six months old) has a pacemaker now as a result of needing open heart surgery when he was 4 days old to fix his asd, vsd, coarctation of the aorta and an...


Double Aortic Arch

My 18 month old son, Apollo, was just diagnosed with this. He is having surgery to correct it March 7th. Anyone else have a child with this? I'm looking for any input,...