Kids living with Congenital Heart Disease

A support group for families who have children living with congenital heart disease. The stress and joy of having a child with a special heart.

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New to the group

I am new to your group and would like to introduce myself. I am mom to a 25 yr old tetralogy of fallot survivor and president of Kids With Heart Natl Assn for Children's Heart...

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Pacemakers

My son Jack (who is six months old) has a pacemaker now as a result of needing open heart surgery when he was 4 days old to fix his asd, vsd, coarctation of the aorta and an...

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Double Aortic Arch

My 18 month old son, Apollo, was just diagnosed with this. He is having surgery to correct it March 7th. Anyone else have a child with this? I'm looking for any input,...