Kids living with Congenital Heart Disease

A support group for families who have children living with congenital heart disease. The stress and joy of having a child with a special heart.


My Story

I have been reading your posts about your babies being born with Tetralogy of Fallot. I am so sorry to hear that, however I know everything will be okay. I was born with...


New to the group

I am new to your group and would like to introduce myself. I am mom to a 25 yr old tetralogy of fallot survivor and president of Kids With Heart Natl Assn for Children's Heart...



My son Jack (who is six months old) has a pacemaker now as a result of needing open heart surgery when he was 4 days old to fix his asd, vsd, coarctation of the aorta and an...