Kids living with Congenital Heart Disease

A support group for families who have children living with congenital heart disease. The stress and joy of having a child with a special heart.

1

Glenn surgery

My son is due back for glenn surgery next Monday, please share your experiences of this surgery with me. Feel sick, the thoughts of him going through major surggery again, but I...

0

Im new....

I am new to this website and already am finding it is going to be helpful. my daughter was born with hypoplastic right heart along with other complications that go along with...

4

heart

Hi, my son had a hole in this heart when born. He had open heart surgery. I am new to circle of mom, i would like to make friends with moms like me. My son Alan is now 8

2

Aortic Stenosis

Hello Everyone, From the prior posts I have read my story is a lil bit different. My 4 yr old son was just diagnosed with aortic stenosis this past Friday 25th. The doctors said...

0

Shaun White

Hi My name is Anne Watkins. I have posted before about my being born with Tetralogy of Fallot. I am 54 and I had surgery in 1963 to correct my heart. The real reason for...

1

Complete Fontan

Hello! My name is Tasha and my son, Austin was born with a single ventricle, an atrial septal defect, transposition of the great arteries, and tricuspid atresia. He has had a...

2

Crawling/Walking

Did anyones kidos who have had surgery notice that it took longer for your kiddo to crawl or walk. Brayden is 13 months old and has spent porably a total of 6 months off and on...