Vanessa - posted on 11/25/2008 ( 2 moms have responded )
Hello. My son was born with Hypoplastic Left Heart Syndrome. He had his 5th open heart surgery in July. He will be 4 in January. When he was born everything seemed fine . At about 7 weeks he was very blue and was life flighted to St. Louis Children's where they saved his life. Now he is the most active little boy I have ever been around. He goes to Pre-K and had gained 7 pounds since his surgery on July 23rd. It was nice to find this group and I am hoping I can find people that can tell me more about HPLHS and their experiences. We have also been told that my son has Double Inlet Left Ventricle and Ventricle Inversion. The doctors told us it is rare and after surgery can be called a couple of different things. Has anyone ever heard of this?