how to make people understand its a milk portine intolerance and not lactose

Rebecca - posted on 04/03/2009 ( 7 moms have responded )

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i have a quetion how do you make some one understand that both my son who is 2 years old and my self have a portine in tolerance to dariy
people all ways thing it is lactose and that my son will out grow it .. im 21 and i have yet to out grow this
lactose from my understanding is you can not handle the sugars in milk the intolerance my son and i have we can not digest milk portines ....

his father doesnt get this and most other people dont as well ... it can get as bad as horrible vomiting and runs for atlest 2-3 days and it can lead to being hospitalized ...

so how do i make every one aware that my son and i can not have ANY DAIRY period they seem to be taking this matter as a huge joke
any suggestions would be helpfull

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Desiree - posted on 06/10/2009

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im allergic to the cold and everyone just laughs at me... it doesnt really bother me when people dont believe me until i get into a medical situation then i stress it

Karen - posted on 05/29/2009

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My son, Izik, has a severe milk allergy. Until a year ago they called it and intolerance because he didn't react to skin allergy testing. Blood tests showed the allergy and he now has an epi-pen for this allergy. He cannot have anything found in dairy or goats milk because the protiens are so similar!!! We have a page long list of things to watch for on labels!!!

I totally understand the whole people not taking it seriously thing!! His teacher at school still gives him things to eat when she has been specifically told he can't eat anything that doesnt come form home!!! The next time someone questions you on this allergy showe them the list of things to watch out for. I carry one in my purse for just these occassions!!

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Your situation is tough and I feel for you! My Father-in-law is lactose intolerant, so when my MIL and I were talking about a dinner she could cook for us she was having problems understanding why I was saying I couldn't eat food with milk cooked in it (I was still breast feeding back then). Finally it came down to her understanding that it is a protein in the milk you can not cook out, and I learned from her lactose you can. Or at least that is what she said. All of this is so confusing since nutrition isn't something most learn a ton about growing up. Try and stay as calm as you can and diligent as ever where food is concerned, we do the best we can do as Mommy. HUGS.

Delray - posted on 04/21/2009

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Bot my boys and I are allergic to the protein found in dairy. Howver you get two kinds of this allergy. An IGE allergy, which means your child will get chesty and constipated or a TCell mediated allergy which causes gastro (runny tummy). 50% of children with this allergy are also allergic to soya. The protein found in dairy is similair to goats milk, so that needs to be steered clear of.

It is hard for people to undertstand that it is not a lactose intolerance and that this truly is an allergy. I struggled to explain to my family aswell, until they gave my youngest one easter eggs and he his stomach just went, all over the place. After lots of apologies they now get it.

But the best way tp prevent the stress is to take your own food with. I have found that by putting them onto Natura Rice milk they are doing wonderfully. Some rice milks make him crampy, I have found that the Natura brand is the best so far.

Amber - posted on 04/13/2009

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I totally feel your pain in this subject. My daughter has a cows milk protein intolerance as well. She doesn't get the vomiting and diarrhea she gets constipated and gets horrible belly cramps. Yesterday at easter dinner I was told that the sweet potato's where safe for her to eat. So I fed them to her she ate a bunch of them. Last night she was up screaming with such horrible cramps in her belly. She is only 14 months old but I could tell by the way she pulling her legs up into her chest that she was cramping. For the most part my family embraces and tries to cope with the fact that she has special dietary needs bur for the most part they just think I am being over protective and why if she was there kid they would have just given her a glass of milk by now. They just don't get it. The only way I get through it with the family is to provide them with stuff that she can eat and tell them not to give her anything else. 

Rebecca - posted on 04/13/2009

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we are drinking goats milke and goats chesse  etc he wont touch soya and  neather will  i sincei have the exact same allergy  my issue is my ex he doesntbelive there is any type of  milk or food allergys and it could hurt my baby  :(

Toni - posted on 04/13/2009

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My son has the milk protein allergy and will get terrible chest congestion. We give him soy yogart and milk. Soy Baby is the only 4 oz size. Due the to amount of milk he started consuming when he turned one we needed an alternative because of the constant chest congestion. I also had a friend whose child was violently ill until 7 years old and doctors realized it was a milk protein allergy. If you can find kosher foods that have meat, this is your guarantee there is no diary on there. Luckily for us, our son can eat regular cheese. I had gone through stages with hives due to diary and some cereals have milk sprayed on them, so even if you eat them dry your in trouble!

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