Seriously? He's not allergic to anything? Allergist reports came back...now what todo with "intolerances"??

Joy - posted on 03/19/2009

Check out a web site of Sue Dengate. just type the name into google and it will come up she is known internationally and has heaps of information on her site as well as books and recipes for you.

Robyn - posted on 03/03/2009

My son is intolerant to dairy and until November was intolerant to soy. Find a good dietician who will tell you what is acceptable to give your child. Our dietician is through the GI department at our local hospital. She has been invaluable with this type of information. Ian did obviously outgrow his soy intolerance finally and that has opened some doors. It has yet to be seen when or if he will outgrow the dairy. I couldn't have dairy until I was 5 years old and my dad is lactose intolerant so it's a genetic thing too. Quite honestly I was thankful to have my son be intolerant instead of allergic. This means that we can give them small amounts of dairy or in our case things like chicken nuggets at restaurants without risk of hives, anafalectic shock etc. It's much easier to outgrow an intolerance rather than an allergy.

Amber - posted on 02/26/2009

We discovered my daughter had a cows milk protein intolerance after 5 months of screaming and constipation. I was breastfeeding her and it got to the point where she knew that that was hurting her so she refused to nurse. She had already started cereal so for that day she at least wouldn't starve. The pediatric gastro doc told me to cut out all dairy and soy from my diet so i did. My theory is that the diet was causing me to loose weight so my body was metabolizing the fat cells which could have stored dairy proteins, just a theory though. Eventually I had to put her on neutramogen. It worked wonders, she was a completely different kid within a few days. 

Jennie - posted on 02/24/2009

I so feel your frustration! Since birth my 9month old has had eczema head to toe and none of his skin prick tests showed anything. Relief came for me when i took him to a naturopath to get saliva tests done. It took a while but it showed his intolerances and to what extent he was intolerant. Hopefully by removing all foods he disagrees with for 6 months slowly introducing them should help him handle them better. At first i thought it was so unfair that i couldn't give him just 'anything' but then my mum reminded me that fruit and veges are the best food for us and even though we might think its a boring diet baby doesn't know any better and as long as he/she is growing it will be ok.

Lynette - posted on 02/24/2009

My husband and son both have intolerances to milk. My son prefers the soy milk, but for my husband, I buy Land O Lakes Dairy Ease milk - it is lactose free, but "real" milk. Maybe that will help? You could also try rice milk as another alternative.

My son was the same way - it just takes some time to figure out what works and what doesn't. He is now 3 (he was diagnosed at age 1 ) and is a picky eater which makes things a little frustrating at times, but you just work through it and do the best you can and try a little sample of different foods now and again just like Krirsi mentioned earlier. Hang in there! :)

Dawn - posted on 02/22/2009

So much of what is wrong with our bodies is caused by a compromised immune system.  Allergies, asthma, eczema, intolerances, growth development, etc. As nutrition goes, even eating correctly is not going to give us enough of the nutrients we need for optimal nutrition.  The answer is high quality supplementation.   The body knows what to do with good nutrition when it gets it and is then able to combat and recover from all types of health concerns.  I know hundreds of moms whose children have benefited from this product and are healthy and happy today.   Would you like to hear from one of them?

These products are created for and safe for everyone young and old and are formulated to absorb within 20 -30 minutes.

This is a serious solution and will change your life.

Dawn - posted on 02/22/2009

So much of what is wrong with our bodies is caused by a compromised immune system.  Allergies, asthma, eczema, intolerances, growth development, etc. As nutrition goes, even eating correctly is not going to give us enough of the nutrients we need for optimal nutrition.  The answer is high quality supplementation.   The body knows what to do with good nutrition when it gets it and is then able to combat and recover from all types of health concerns.  I know hundreds of moms whose children have benefited from this product and are healthy and happy today.   Would you like to hear from one of them?

These products are created for and safe for everyone young and old and are formulated to absorb within 20 -30 minutes.

This is a serious solution and will change your life.

User - posted on 02/11/2009

I wish was to do with the fact that we are so clean - but that just don't work in our house! My first daughter had a small reaction to her skin prick test and the second time nothing. My youngest son was negative but his intolerance was soooo bad he would have been dead @ 8 wks old. He would suffer a whole 12hours or intense screaming then a day of headaches; sore bum;breaking excema! At the end of the day it is still the antibodies causing the reactions!

Prof Lewith  -Complimentary Alternative Mediciene, did give me information for a serise of injections to stop the anibodies from reacting but at the moment I'm sticking with a chiropractioner.

Celeste - posted on 02/10/2009

The theory that I heard & that makes some sense to me is that we're too clean so our kids' immune systems don't have as much to do as ours did when we were kids. Essentially, our kids' immune systems are bored so they find things to attack (like food, dust, etc).

Jennifer - posted on 02/10/2009

I hate that our children (& we) have to deal with all this garbage, but it is kind of comforting that my family isn't the only one going through this

Ya, what is this? What is in the water??? Why are so many kids allergic. I get the theory that our world is too clean, and so things like antibiotics aren't as helpful because we have created super-germs; but I don't get the food allergy thing?? Could it be plastics, aluminum, what? There are probably lots of theory's out there, but is sure would be nice to find some aswers. I tried to grow a garden last year to give my children non-canned produce, but only basil and a few tomatoes came up! I tried. Good luck everybody

Michelle - posted on 02/10/2009

I have a friend who has a daughter that cannot take cows milk. She has goats and her daughter can drink the goat milk just fine. Go figure.

Celeste - posted on 02/10/2009

I know in my heart that it's an allergy. I've never heard of an intolerance causing such severe congestion. If she gets her hands on her brother's sippy cup (soy milk) she gets blistering diarrhea for the next week & gets so congested that I have to sit up with her for at least two nights because if I lay her down flat she gags & chokes all night long. Then for at least another three or four days she has that horrible rattle-y sounding breathing.



Bobby (my son) didn't test positive until he was four. That was when he stopped having the gastro reaction. So we thought "oh, great! he grew out of his intolerance." So we started giving him cow-milk dairy. If he wanted yogurt for breakfast, fine. If he wanted grilled cheese for lunch or dinner, ok. Then he started having a runny nose & congestion. So I took him to the allergist thinking he was developing enviromental allergies (I have them). Like I said before, milk was the only thing he tested positive to. It's so frustrating!



I hate that our children (& we) have to deal with all this garbage, but it is kind of comforting that my family isn't the only one going through this.

Dana - posted on 02/10/2009

My Dr. won't re-test my son until he is three, they say the tests are not truly accurate until after three. I know the peanut allergy test is not accurate until after age 3? These Dr's.??!! Trust you own motherly instincts.

Dana - posted on 02/10/2009

I feel your pain. My son is 2 and has tested negative for all dairy allergies, milk proteins, lactose.......but if he eats any dairy he vomits it up with in a few minutes and the has diarrhea for a week after..... but the dr. tells me he is not allergic to it!!! My son can do Soy products but I usually give him rice milk it is supposed to be easier to digest and he has never shown any reaction to it. To give you some hope, my son will be 3 in June and he is a little better than he was when he was younger. He also has the peanut allergy which complicates things more! My advice is to just keep trying different things, I would go to the health food store and buy one of everything to find things my son liked and could tolerate! Its a long road but will hopefully get easier for you.
Dana

Celeste - posted on 02/07/2009

My son tested negative for milk allergy when he was about 16-months old. We tested him again at 4-years & it's the ONLY thing he tested positive for. Now the allergist is telling me that my 19-month-old daughter isn't allergic to anything when she's having the same reactions that her brother did plus is having a respiratory reaction

Jennifer - posted on 02/05/2009

WEl. talked to a pre-emminent DR today, and he disgree's that my son is not allergic--he  tells us that with his reaction is is very much allergic to milk and soy, and that the blood work on a 1 year old is just not a realiable test. PHEW! WHy am I relieved? Because now we can treat it rather than bandage it. Ya know? Now schools have to head the warning, not just thumb their noses at it. It is serious.

The blood tests, as many of you know, aren't really acurate until after the child turns two. He explained the science to us, which gets lost on me, but what I do know is my son gets violently ill with any milks or soy products of any kind of derivitive whatsoever.

ya feel me? :) Yes, I know you do :) thanks

Jenny - posted on 02/05/2009

My son has food intolerants too, but he is highly allergic to fish. At least he is 4 1/2 and knows he can not eat any thing made with fish. He did have an intolerances to peaches when he was younger and he has out grown it. The same with milk. What we have to worry about is the outside allergies. We live in Michigan and he is allergic to all trees, but hickory and all types of grass. We still let him play outside all the time. We just treat his reactions.

Robyn - posted on 02/03/2009

OMG this sounds very similar to my story.  I have two children that have a few "allergies" but a lot of intolerances.  Actuall even their "allergies are more like intolerances as a little bit doesn't kill them and if you ask my extended fam especially inlaws they say a little doesn't hurt.  But I believe it does and in time like after having something every day for a week..bad news.

I don't know however if you should "count your lucky stars" if you think they will grow out of it.  Yes they will some of them but some intolerances never are grown out of or you notice that they finally can have something to realize that it is now something new.  Count you lucky stars that intolerances are not life threatening. Thank God we have none of that ... so far anyway.

Yes it is a mistery!  Both of my kids have a variety of food intolerances I feel for you and am right there with you thank you for this post I am glad that there is someone else out there acknowledging intolerances since in a lot of allergy communities you get snubbed because other allergy moms write you off the way the allergists do.  I have found a great MD here in my area who does  a lot of alternative medicine as a ND would but is covered because he is an MD.  Looking forward to chatting with this group.

Deborah - posted on 02/02/2009

my son has an 'intolerance' to gluten and milk....it took us to the point of having to have one of those surgical things to take a biopsy of his intestines to find out...he is now on elecare formula and not gluten, dairy or nuts....it is frustrating but now he eats 3 times as much and is gaining some weight and we are almost off baby food! he was pooping 6/7 times a day and it overflowed out of his cloth diapers..so that is a lot and he would occasionally vomit and wouldn't eat much and pretty much wouldn't eat anything but baby food....I am only 2 months into the special diet and it is sometimes overwhelming...

User - posted on 02/01/2009

I'm so glad u mentioned u have problem with wheat & Corn. It took me 2 years to work out what the offending problem was with our 2 year old. Cause I was breastfeeding new baby who I guessed would react to cheap eggs; dairy ; wheat. Then one night I over did it with a bag of popcorn OMG she was ill! Got some pretty outa space looks from the ped & dietician - like I cared was strting to get some sleep!

Been experimenting sounds way out but Organic Milk helps with us - kinda strange doesnt leave an after taste. Also organic oats & spelt.

Still going with the Chiropractioner and the reactions are down to 2 fifths as bad as they were.

Been given PEPTI milk, not tried yet.

Tamara - posted on 02/01/2009

My son 1,5year and my daughter 3months are cow milk intolerance.  That is avoidable but my son also has an intolerance for sugar and chocolat.  That part is the hardest.. In many kinds of cookies there is milk of there is sugar (most off all bove).  Its not easy to give him some cookies but now i buy italian grissinis (small long stripes based on oil and wheat)

Now my daughter gets special milk (very expensive) it is a milk without cow or soythings in it.  Its an industrial milk.  But to save a bottle we started with fruit at noon when she was 2,5months and were lucky cause she likes it!!

We also find a nice way to make pancakes!!

instead of milk you add effervescent water and instead of white sugar we add sacharinne and a drop of vanille essence (on taste)  And its so much beter!! cause u know that u are eating very healthy!!!!

Jennifer - posted on 01/24/2009

He has always spit out eggs--always. He eats them in things of course--but maybe this makes his gut sick?? So perhaps any proteins are a problem for this guy???

We tried alentium this week. No gut reactions, but full on facial rash. The fact that he wasn't screaming was good, but the rash and dry skin can't be good. I guess if we continued it we'd be look at a severe case of dry skin/excema. Now is face is back to soft and pretty :) thi is hard work

Michelle - posted on 01/23/2009

You still handle them the same way. The difference between an allergy and an intolerance is what part of the body is reacting to the food. In an allergy there's an immune system response, in an intolerance it's the digestive system that is responding.

The thing with intolerances though is that a person might be able to handle small amounts of the food without problems. Typically with an allergy, even a tiny amount can cause a reaction.

All his reactions are valid and probably related to his intolerances. I learned with Logan to trust him - if he refused an item it has typically been because he can't have it. I know it sounds weird and yes, I know kids refuse foods in general, but he does just seem to have a keen sense for foods that bother him. Once we figured out Logan's major offenders and elminated them, his entire mood and behavior improved. Kids can't always express what they are feeling inside and they may not even know that it's the foods that are making them feel so bad, so when they are uncomfortable they act out.

Leslie - posted on 01/20/2009

My daughter and I both are classified as having food "intolerances". We were diagnosed by a Naturopathic M.D., so our normal Kaiser M.D. raises eyebrows when we say we have food "allergies". We just treat them as "allergies" and tell people they are "allergies". We cannot tolerate wheat, corn and sugar (and I can't do dairy). The sugar makes her like ADD-hyper and me mean, and the wheat and corn both constipate us badly. Do we cheat? Yeah, every once in a while, but we try to do our best to stick to the plan. We feel so much better when we do!!

Trisha - posted on 01/19/2009

Same boat here!  Check out my blog for help with recipes that don't contain any of the most common allergens.  I've found this helpful for those of us with "only" intolerance.

http://funkyfoodallergies.blogspot.com/

User - posted on 01/17/2009

yeap all 4 of mine are the same. But just  having a set of sessions on each with a chiropractioner specialising in pediatrics and have noticed the difference in 4 months, A VAST DIFFERENCE AT THAT! With a little bit of wind and hardly a moan at all now.

Kids wh da ave um. LoL

Aubrey - posted on 01/17/2009

This is what my youngest has had since a newborn. While I was nursing they asked me to stop eating many different foods. Now that he's 4 we've decided it's apples and grapes, but it is so frustrating to continually have to figure out if he's really sick or if he's eaten something he shouldn't have

Fleur - posted on 01/16/2009

hi i have an 8 year old boy who was born 7 weeks early and developed NEC,he got over that i dont know how but with no ongoing problems,he was fine at pre school and then started primary school,and thats where the problems started every day he would either get sent home with euans had an accident(this being that he hadnt made the toilet)he was so embarressed,i tried cutting out fruit as it was the only thing that was new everyday,in the end i went to the doctor he was useless,si i tok him to health shop who do allergy and intorences,cows milk and red colouring within days there was an improvement,milk gives him the runs and anything red god help you,my problem schools because its JUST an intolerence they dont watch him at lunch so he gets the wrong foods,i want him to be able to make that choice,he knows what he cant have,anything with red in it is like a hit to him but what goes up but must come down,but if he can get his hands on it its his,i wish they would understand  that although he seems fine at school its me that cleans the crap up when he farts its me that has to put up with screaming of tummy pain and its me who gets that very hyperactive boy at the end of the day,i know they cant watch every child,i dont expect miracles but how will he learn to make the right choices when they offer him yogurts and others he should not have

Karen - posted on 01/15/2009

It's nice to know I'm not alone.  I didn't have any problems with my first 2 kids, but with my third and fourth kids, I've had to cut out all dairy and gluten foods from my diet, and could have very little soy, because even them going into my breastmilk caused colic, rashes, diarrhea, and just general unhappiness for everyone.  The allergy tests came back negative, and the allergist said it was either an intolerance, or an immature digestive/immune system.  Doesn't change the fact that eating without these items is really difficult!  I did find a cookbook this time around called Special Diets for Special Kids b Lisa Lewis, PhD, that has recipes that are gluten, casein, and often soy free, but still taste good.  I'd definitely recommend it!

Nicky E - posted on 01/11/2009

Well if he dont consume milk cow and consume meat like steak or similar, probably he is intolerance of cow protein: casein, whey and lactose.... When Oskar has 4 month his diagnostic are intolerance and the gastro-pediatriacian recommended almond or rice milk.

I suggest you talk to the ped and make an appoimment with the specialist....

Today Oskar eat veggies, fruits, cereals and drink cow milk ( in my case I alternate the milk)

Its hard I know but talk to the doctor...

Good luck

Jennifer - posted on 01/11/2009

Thanks

Chris, thanks for reminding me about going out to eat. IT's so hard, but there probably is options. I will start a new post for that :)

Chris - posted on 01/11/2009

Hi there. I have a 12 yo son with a milk intolerance. Your little one sounds just exactly like him when he was a baby. I remember before I went off milk, breast-feeding him and him getting an upset tummy from the milk proteins in my milk, so he would want to nurse again for comfort for his tummy, but was getting more milk proteins. It was a vicious circle.



A true allergic reaction is different from an intolerance reaction. But...that doesn't mean that the child is any less uncomfortable and distressed.



My son still has not "outgrown" his intolerance. I'm thinking he probably won't.



Milk intolerance is really not as bad as you think. Mind, I have been doing it for 12 years so I may be a bit biased. There are many, many alternatives for cooking, baking and eating out. Please don't hesitate to contact me if you need any recipes or suggestions, I would love to share!



As for food refusal...that just a normal stage that kids go through from time to time. Today they will eat something and love it, tomorrow not a chance! At least mine do!

User - posted on 01/04/2009

I'm on the same situation with my 3 month old and I'm breastfeeding. She reacts to both soy and milk severely, but tests were negative. I've been told the tests aren't always accurate and reactions trump test results, so I'm back on my terrible diet (also off eggs, nuts, and all fish). Hang in there, you aren't alone! It is nice to have someone who knows what you are going through.

Kirsi - posted on 12/24/2008

My son's allergy tests said negative to everything. With babies who react with the stomack thats typical. Only way to discover the intolarances, is keeping food and reactiong diary. It's frustrating but it's the only way. Puking can be symptom too. food refusal can be result taht your son knows he gets sick from food.

Keep your menu simple, give only one new food per couple of days. Then you can be shure, if its ok or not. When you find the right diet, things get easier. Hope you have a good allergy doctor.

Your son will grow out of it. My son is three now and it's ower for most part. He's intolerant to natriumglutamat E631 and red color E 120.