Holly - posted on 08/25/2010 ( 1 mom has responded )
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Hi, my names holly
I am 30 weeks with a little girl who has Gastroschisis.
we found out at my 19 week scan & are quite comfertable with the fact now.
I'd like to meet other expectant mum's with bubs who have a Gatsroschisis. =)
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Andrea - posted on 01/03/2011
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My Daughter Jaya was born at 36 weeks she was 3lbs 8oz and 16in. With a birth defect called Gastroschisis.. ( her large,small Intestants,bladder, stomach,overies, and galbladder were all out side her belly) she sepent 7 week in the NICU, wasn't aloud to feed for almost a month, ( i pumped) Had a silo put on her inside to protect them from harm.. Had surgery when she was 7 days to put it all back in but there wasn't enough of her to cover everything so we could see inside our little girls belly for 2 1/2 months.. Got to hold her on a pillow when she was 8 days old.. was on a vent for 11 days.. When she came home we were up every 1hr to 2 hrs for feedings the had med every 3, 6 and 12 hours.. Had to change her dressing ever 12 hours to start and then every 24 hours then every other day and had to do it in a starile way.. Plus i had a 19 month out little boy with me at all time.. i was able to stay at the hospital with my mom there to help me as much as she could.. So i was just courios if any other moms babies had any other problems... Jaya is now almost 2 years old is 31lbs and 28in ... has problems with moving food ....Hope all is well with you and your little one... best wishes and take care... Feel free to contact if you would ever like to talk...
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