New here and 18 weeks pregnant-baby diagnosed with Gastroschisis-need insight

Laura - posted on 04/11/2012 ( 5 moms have responded )

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Hello all!

I am brand new here because I came across this site while doing a goodle search on Gastroschisis. I had an 18 week ultrasound done yesterday and the doctor told me my baby had this. I got so scared when she first started describing it that I sort of went blank and tried to comprehend what she was saying but don't fully understand and the lack of knowledge is scaring me. How do I deliver? WIll this close on its own before baby is born? Is my baby going to be ok? I am so worried. Can any mothers with babies born with this condition please give me some insight on what happens during/after birth and onward? Any advice is GREATLY APPRECIATED! Thank You.

Laura

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Tiffany - posted on 07/04/2015

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Star,
After my baby had surgery it was hard for the first week she was under pain meds and slept a lot but after the first week if the baby is comfortable enough you can start to hold them in nicu along their side of their bed. I'm not sure if you are going to breast feed but the nurses usually encourage it because it's easier for their tummies to digest. I tried to have as much time with my baby as possible. I pumped my milk stored it in containers and brought it in nicu for my baby so when she was able to eat they had plenty for her. After she healed a little more I was able to bottle feed and breast feed her. They show you how to bathe your baby and have you bathe them and change their diaper as well. So don't feel bad your not left out in the dark but I understand the fear and frustration your going through. My baby and the baby next to my daughter that was born with it as well healed really fast and was able to come home in 3 weeks. Just be careful if you do decide to breast feed your baby because they are still very fragile and from my experience my baby was still uncomfortable when I tried and it got irritated but it healed great just a small scar along her belly button. Don't stress because your baby feels it. God will not give you anything you can not handle. Good luck moms and god bless!

Tiffany - posted on 07/04/2015

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I had my daughter 1 year ago and she was also born with this condition. I was considered as a high risk pregnancy so there were a lot of ultra sounds and making sure the baby was ok. Because my baby had this condition I had to have a c section and my baby had surgery once she was born. It was a hard road in the beginning but once she recovered completely it got easier. Now you can't really tell she had to have surgery. It's a small scar on her belly button area. She is as happy as can be!

Svetlanamoser89 - posted on 05/30/2015

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Im 13 weeks and 4 days my baby has gastroschisis . I found out 3 days ago. This baby is my miracle since for 9 years i was told i would never have children and the 2 weeks ago i found out i was pregnant. At first i was beside myself not know if my little miracle was gunna be okay but the more reasearch i do and stories i here has giving me confidence that our babies will be fine. Its not an easy road at first but it makes it that much more of a miracle :) my advice stay positive and know that they are in gods hands :)

Emily - posted on 03/14/2014

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i am 18 years old and im living a health life i am just a normal young adult not complications or anything

Star - posted on 07/06/2012

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You are 6 weeks ahead of me, and I just found out on July 3rd. I haven't gone to see the specialist yet, but I've found done a lot of reading on the condition. As far as your questions, a lot of it varies from case to case. Some say that you have to do a C-section, but a lot of people of posted that they were able to do vaginal births; it doesn't close on it's own and surgery is needed after the baby is born. I have also come across a lot of posts of people that were born with Gastroschis. They have lived happy, healthy, normal lives. The biggest concerns I saw from them were self-conscious about the scar and young women concerned about being able to become pregnant. Lots of woman had already had children after being born with this condition and their children were healthy and had no complications. I hadn't even thought about long term things like that until I saw it. The main thing going through my head was also if my baby is going to be okay. Now I feel a lot more comfortable with the situation, but still get very sad when thinking about the first few months after the baby is born. I won't get to hold my baby whenever I want to, or feed it when it cries, or change the diapers until after they are out of NICU. I think the best thing to do right now is not worry. Relax and keep your mind occupied. Everything will be okay, just keep your head up and always think of the best. We don't have more put on us than we can handle, the trick is being able to admit that you can handle it.

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