New here and 18 weeks pregnant-baby diagnosed with Gastroschisis-need insight

Laura - posted on 04/11/2012 ( 6 moms have responded )

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Hello all!

I am brand new here because I came across this site while doing a goodle search on Gastroschisis. I had an 18 week ultrasound done yesterday and the doctor told me my baby had this. I got so scared when she first started describing it that I sort of went blank and tried to comprehend what she was saying but don't fully understand and the lack of knowledge is scaring me. How do I deliver? WIll this close on its own before baby is born? Is my baby going to be ok? I am so worried. Can any mothers with babies born with this condition please give me some insight on what happens during/after birth and onward? Any advice is GREATLY APPRECIATED! Thank You.

Laura

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Ashley - posted on 06/09/2016

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I'm Ashley and I'm 23 I found out I was pregnant when I was 22 and after being with my boyfriend for 1 1/2 years we were scared but excited about our new bundle of joy as soon as we found out all the excitement starting flowing in of a new child from thinking about names to wondering what there little face will look like to how we wanted to raise him but we never thought about the fact our baby might have something wrong with him everything seemed fine I had no sickness I was just exhausted but everything seemed fine when your first pregnant the biggest fear I had was a miscarriage but at 19 weeks we had our first ultrasound although we already knew we were having a boy from a harmony blood test we did wich should no defects and and that he should be a healthy baby so me and the dad go to the ultrasound so excited so see our baby and the tech seemed kind of vague and like she wasn't telling us something was just saying that she was going to schedule us to have a 3D so we could see things better because Cooper (baby's name)was moving a lot making it difficult to see things but she ddnt say anything bad so we were happy nothing was wrong a few days later I get a phone call while I was at work from my doctor wich automatically is scary right off that bat because no news is good news is what I always went by he starts off by asking me how I was and then breaks it to me that my baby has gastroschisis I broke I was crying and so scared not knowing what that was and just freaking out because my poor baby had something wrong he explained to me it's a small hole in the baby's belly that the bowel comes threw but that nothing else was wrong with my baby (like that's not enough) and he seemed healthy otherwise I was heartbroken I had no idea what this meant I ddnt know how to feel besides helpless because I had no control over this situation I could do nothing but prey and wait for answers.
My boyfriend took off work and him and I headed off to the doctor the next day to talk and really learn more about the situation everything was explained to us that this is a defect that has no relation to any other defect and most babies born with gastroschisis would live a healthy life after a surgery and a stay in the nicu but also the negatives of a higher chance of a still birth or miscarriage and pre term labor It was all so overwhelming started scheduling appointments for weekly ultrasounds and high risk doctor appointments and trying to stay strong and sane threw the whole thing so many days I spent googling the defect and reading all of the horror story's and watching videos and breaking down lots of breaking down not that us pregnant women are not emotional enough lets throw this in the mix. I started seeing a doctor at Cardinal Glenon children's hospital (wich may is say is a blessing of a hospital) they helped me threw the ending of my pregnancy with people to talk to about how I'm feeling and making me feel like things would be ok I still had my doubts that I might lose my baby and just feeling so scared for him and wishing I could just take it all away and make him ok.
I was schedule to be induced at 37 weeks because going full term with a gastro baby is not the best because it leaves more time for the bowel to be damaged by the amniotic fluid. This whole pregnancy was just so hard to enjoy because I was so scared the whole time I felt so helpless everyday but I had to keep hope and stay strong for my baby and just hope for the best that he would be ok.
It was the week of my induction date and my nerves were shot I was worrying about everything and just so stressed out by tried to stay relaxed so he would be calm and my belly it's now Wednesday 2 days before my appointment and i woke up like any other day and was planning to get lunch with my best friend and do some shopping with her but something didn't feel right Cooper wasn't moving wich was very weird for him he was a very active baby in the womb always kicking and punching but today nothing I tried everything ice chips sugar and laying on my side but nothing he just wasn't moving I was getting scared but tried to relax so I went with my friend hoping everything would be ok when I got home I started getting really scared I started having pain in my back and he still hadn't moved so I call my doctor and my mom and we all decided it was time to go to the hospital my boyfriend was at work so I called him to let him know what was going on mind you I had done this before where Cooper wasn't moving and went to the doctor but this time was different but my boyfriend wasn't thinking to much of it but he was always there for me so he was on his way home so he could meet me and my mom at the hospital. I was so scared going in just hoping they would find a heartbeat but for some reason felt extremely calm bu the time we got there they got me back right away and started looking for a heart beat wich they found immediately I was so relieved that he was ok but still worried because he wasn't moving still it was now 4 pm needless to say they admitted me and hooked me up and I was having contractions but only dilated to 1 1/2 but they decided to just go ahead and induce me anyways because he wasn't moving and because of his defect they just wanted to get him out so it began the longest days of my life they started by putting medecine on my cervix to soften it and that took 12 hours then it was time for potosin and the oxygen mask and the epidural the pain was to much I gave in and got one it's now Thursday night yes 24 hours later still going and now my epidural had slipped out and hear came the screams and tears again and finally they came in and out another epidural in and I could relax but was so extremely exhausted and now babies heart rate kept dropping is they gave me medecine to stop labor and he was fine so they tried again with more potosin and there went his heart rate so it was a back and forth game of this until about 2 in the morning then all of a sudden a group of doctors start pouring in my room with all these tools and the doctor told me the thing I really ddnt want to hear we are going to do a c section because labor wasn't progressing and baby was under stress I was so scared but there was so much going on I couldn't even process anything my boyfriend was putting on scrubs I was signing papers and then I was being wheeled down the hall next thing I knew they asked dad if he wanted to see his little boy but they wouldn't show me and I ddnt hear any crying and I was passing in and out just asking where my baby was and why he wasn't crying but they already had my baby in a different room 4 min between the time they cut me till now but it felt like a lifetime they brought me back to my room and still I hadn't seen my baby or heard anything about him about a hour later hear they come with my baby I could barely see him he was still all dirty and in a incubator but he was perfect and I just wanted to hole him so bad but I couldn't and they took him to Cardinal Glenon he had stopped breathing and needed compressions and more than his bowel was out his liver and stomach were on the outside to but it's almost a day before I could go see him when I finally got to see him he want moving they had him sedated so he wouldn't move I was so happy he was here but so heartbroken seeing him like this but they were able to get all his parts back his stomach and closed up as soon as he got to the nicu so i was so happy that he was so lucky to not have to have a procedure after 2 days they were able to let him wake up and take off the oxygen and then it was the best day of my life when they out my baby boy in my arms and I felt that overwhelming moment where I got to look at my boy and hold him and kiss him and nothing else in the world mattered in that moment.
And so it began the journey in front of us where we had to wait for the bowel to start working and moving thing threw and for him to poop before he could eat he had so many wires and tubes it was hard watching him be poked at and thing shoved in his throat and going home without my baby but I knew I had to be strong for him in this moment it was so hard hearing him cry knowing I couldn't be his mom and do anything but hold him and love him finally after 2 weeks he pooped never had I thought I would be so excited for poop and I thought well he's better now let's go home but no still he had more to do he had to start eating and digesting and pooping all on his own I had been pumping so I had stored up quite a bit of breast milk for him cuz I new it would be best for his sensitive little tummy after 4 weeks he was eating and pooping all on his own and we got to take him home it was the longest month of my life but he was so strong and so lucky and survived this and was ok and was coming home.
cooper is now 3 months old and has had no issues he even has a little belly button. I know I'm a lucky mom to be blessed with such a strong little man who taught me so much and such a little time that the things I used to stress about weren't so bad thing could be much bigger than me and all you can do is put your hands up and put your faith in something bigger than you and hope for everything to be ok I decided to wright this and put it out there because when I was pregnant with my little one the only thing I could find was horror story's and never a happy ending so I wanted to give hope to those moms out there that are finding out the news of gastro about there little one and are scared and confused about why this happened and they need to know they are perfect and it's not there fault and things can be ok it is a journey but these little people are so much stronger than we think and they can get threw this and be ok and the world of medicine is so advanced and amazing what they can do.


I have to throw in that my nicu nurse Diana was the best thing in the world she was so caring to baby as if he was family to her and treated him so good not like a patient but as family she was there to talk to me and make me feel better and I will always be thankful to her and love her as a part of my family

To all you moms out there
There is hope you have strength
And your baby is so much stronger
Than you would ever think

Tiffany - posted on 07/04/2015

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Star,
After my baby had surgery it was hard for the first week she was under pain meds and slept a lot but after the first week if the baby is comfortable enough you can start to hold them in nicu along their side of their bed. I'm not sure if you are going to breast feed but the nurses usually encourage it because it's easier for their tummies to digest. I tried to have as much time with my baby as possible. I pumped my milk stored it in containers and brought it in nicu for my baby so when she was able to eat they had plenty for her. After she healed a little more I was able to bottle feed and breast feed her. They show you how to bathe your baby and have you bathe them and change their diaper as well. So don't feel bad your not left out in the dark but I understand the fear and frustration your going through. My baby and the baby next to my daughter that was born with it as well healed really fast and was able to come home in 3 weeks. Just be careful if you do decide to breast feed your baby because they are still very fragile and from my experience my baby was still uncomfortable when I tried and it got irritated but it healed great just a small scar along her belly button. Don't stress because your baby feels it. God will not give you anything you can not handle. Good luck moms and god bless!

Tiffany - posted on 07/04/2015

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I had my daughter 1 year ago and she was also born with this condition. I was considered as a high risk pregnancy so there were a lot of ultra sounds and making sure the baby was ok. Because my baby had this condition I had to have a c section and my baby had surgery once she was born. It was a hard road in the beginning but once she recovered completely it got easier. Now you can't really tell she had to have surgery. It's a small scar on her belly button area. She is as happy as can be!

Svetlanamoser89 - posted on 05/30/2015

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Im 13 weeks and 4 days my baby has gastroschisis . I found out 3 days ago. This baby is my miracle since for 9 years i was told i would never have children and the 2 weeks ago i found out i was pregnant. At first i was beside myself not know if my little miracle was gunna be okay but the more reasearch i do and stories i here has giving me confidence that our babies will be fine. Its not an easy road at first but it makes it that much more of a miracle :) my advice stay positive and know that they are in gods hands :)

Emily - posted on 03/14/2014

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i am 18 years old and im living a health life i am just a normal young adult not complications or anything

Star - posted on 07/06/2012

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You are 6 weeks ahead of me, and I just found out on July 3rd. I haven't gone to see the specialist yet, but I've found done a lot of reading on the condition. As far as your questions, a lot of it varies from case to case. Some say that you have to do a C-section, but a lot of people of posted that they were able to do vaginal births; it doesn't close on it's own and surgery is needed after the baby is born. I have also come across a lot of posts of people that were born with Gastroschis. They have lived happy, healthy, normal lives. The biggest concerns I saw from them were self-conscious about the scar and young women concerned about being able to become pregnant. Lots of woman had already had children after being born with this condition and their children were healthy and had no complications. I hadn't even thought about long term things like that until I saw it. The main thing going through my head was also if my baby is going to be okay. Now I feel a lot more comfortable with the situation, but still get very sad when thinking about the first few months after the baby is born. I won't get to hold my baby whenever I want to, or feed it when it cries, or change the diapers until after they are out of NICU. I think the best thing to do right now is not worry. Relax and keep your mind occupied. Everything will be okay, just keep your head up and always think of the best. We don't have more put on us than we can handle, the trick is being able to admit that you can handle it.

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