Does anyone have a child with Epsteins Anomally?

Christina - posted on 05/10/2012 ( no moms have responded yet )

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My son was born with Epsteins Anomally which is a very rare heart defect that has the right atrium enlarged and left ventricule to small. He had open heart surgery at 9 days old and had a BT Shunt placed in. He will be having more surgeries to replace is Shunt as he gets bigger? Anyone have anything similar. I know its rare but I have yet to talk to anyone with the same problem....

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