My baby has Aortic Stenosis

Melony - posted on 01/14/2011 ( no moms have responded yet )

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I was looking for other people to talk to about my baby. He has Aortic Stenosis. We found out when he was 4 months old.He is 2 now. Only after changing Docs. The Dr in the hospital said that she heard a murmmer and we need to have it checked. He Dr said he was ok but i just didnt feel like it was. So we changed Drs and his 2nd on heard it right away and sent us to the Hospital to have it checked and then to a Specialist. Right now we are ok he will not need a valve relpacement or anything done right a way. That is only because he is still growing and everything. They have said if he stops growing or it changes it will have to have something done cuz he is right on the line now. I worrie every day about someone giving him meds that he cant have and it hurting him or me missing a sign that something is hurting him. I would like to know that im not the only mom that worries all the time.

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