GERD...Cow's milk protein induced colitis(?)

Sarah - posted on 05/14/2009 ( 10 moms have responded )

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My son shortly after birth was diagnosed with GERD. He has a barium swallow study done and watched as the food not only came up but also began going into his lungs. At that time he was put on Zantac. He had been refluxing after every meal, and nearly ever time he laid down. The Zantac didn't seem to do much to help it, so I complained to his specialist and he was put on Prevacid, which he is still on today. His GERD improved quite quickly, but about 2 weeks after starting on the Prevacid he had blood in his stool. He had a barium enema and they couldn't find anything structurally wrong. (I think it was because of the rotovirus vaccine) But after the enema he became very constipated, he couldn't poop on his own and he would scream out in pain. At the suggestion of his doctor I have cut out all dairy and since I have done that he's a different child. He can sleep in his crib (instead of carseat), and he more allert and screaming less. He has even slept through the night a couple of times, plus he's been pooping on his own. We saw an allergist and he diagnosed him with Cow's milk protein induced colitis. My problem is that he is still constipated. He poops once every couple of days but it's thick and pasty and sometimes it's formed turds, it still smells a little like toxic waste and he gets cranky whenever he needs to poop. Does anyone know what I should do? Should I stop breastfeeding? Are there other foods that could be causing his symptoms? I know somethings still not right but I have no idea what to do. I'm getting very little sleep, and worried about my son's health, please help!

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Gina - posted on 06/14/2013

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Switch to Gerber Good Start Soy formula for sensitive tummies. The soy protein is hydrolyzed; meaning broken down for easier digestion. I would not continue to keep exposing him to diary/milk in any way.

Darlajean - posted on 08/09/2009

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www.saddleup4healthylife.com It help all my childern and me. Read everything on the web-site and listern to the Video. Dr. William Sears, MD FRCP is wonderful Pediation. Their are so many Doctors that support The Free Childerns Research Foundation, it Blessed us. Darlajean

Cheryl - posted on 07/23/2009

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Babies are not able to break down the proteins from most foods, especially dairy, because their digestive tracts are not developed enough to do so...they do not have all of the stomach acids like we do yet...so it is crazy to be giving babies these meds that usually would be prescribed for adults...it is just going to messing up there digestive tract and lead to even more problems in the future. When my children had diarrhea or constipation, I would give them probiotics...which are the good bacteria "Friendly flora" that are very important for many functions of the intestinal tract and help balance things out. It is absolutely safe for infants. You can find them at most natural health stores like Whole Foods or Trader Joes, etc. That is not the only thing you can do, but, it is a good start:)

Susan - posted on 07/23/2009

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What about wheat? It is a major culprit in constipation AND diarrhea in babies or anyone with food allergies, recognized or not... surprised no doc told you that yet. But not really, I have very little faith in the medical system in this world... :)

Sarah - posted on 07/22/2009

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I stoped consuming dairy, and that wasn't helping enough so we put him on prescription hypoallergenic formula (neocate). Still constipated though.

Susan - posted on 07/21/2009

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Yeah, if still breastfeeding, you need to stop milk, too.... and try cutting wheat out of your diet, as well, it comes through milk, too... just a thought. :) It will get better, hang in there!

Kimberly - posted on 07/16/2009

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If you are breastfeeding and are drinking cow's milk, that may still cause him some problems, I would think. Also, when you start him on solid foods, if the GERD comes back, talk to your peds dr about EE (eosinphylic esophogitis) *I think I spelled that right*. It mimics GERD in some ways, but it will eventually cause much more damage, and possibly cause his throat to swell and close. Just don't let them tell you he will grow out of it.... my son is 8 and I finally found a doctor that tested him instead of insisting the Previcid would eventually work.

Michelle - posted on 07/03/2009

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You need to cut any dairy out of your diet as well if you breastfeed. The protien still makes it through your milk. Also if you formula feed at all give him the similac alimentum. This is what we use for my son. He was diagnosed with the milk protien allergy as well. His constipation issues have now been resolved.

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All 3 of our kids had GERD and although only our daughter had a diagnosed allergy to dairy I'm sure the boys were too. We used a variety of medications one of which was to bulk up the stomach contents to reduce the amount being refluxed so we had constipation issues with all of them as well. When our daughter was first diagnosed with her allergies I was stunned at the variety of foods that dairy gets into from some cold meats to some "dairy free" cheeses where it was listed as casin or whey, it took me a while to work out what she could and couldn't have and even now we slip up from time to time. I would suggest going back to the doctor as there are a lot of medications to relieve the constipation and they should be able to help sort out these issues. I promise it DOES get better, with the right management of the condition. It took a lot of trial and error to get there and none of our 3 had the same solution but we got there with all of them and they are now fit healthy "normal" kids. Feel free to contact me any time if you'd like to, I've been there and I know how it feels.

Tiffany - posted on 05/29/2009

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It gets better I promise. My daughter is now 6 months old is doing wonderful she was diagnosed 4 months ago. I was breastfeeding and she started having reflux and throwing up just after birth. She would have between 15 to 18 diarrhea a day. I became very frustrated and slowing stopped breastfeeding and went to formula (even though my doctor tried to talk me out of it.) Blood began showing up in her stool. Finally they sent us to a specialist and I found out that she has GERD and a Milk protein allergy (cow and soy) that was causing her to bleed internally. As for the GERD she has been on Axid, Carafate, prevacid, one other drug and then Zantac. The Prevacid worked wonders for about 3 weeks and then just quit working. She has been on Zantac for a little over a month and is doing much better. She was a completely new child once she went strictly to Elecare formula almost all of her systems cleared up no more bleeding, vomiting, diarrhea. She has became constipated (which can be caused by the Prevacid) a few times I just put a couple of good squirts of Karo syrup in every other bottle and usually it helps her out. I hope this is helpful. If you have any other questions or if I wasn't clear on something please let me know. I totally understand what you are going thru sleepless nights and long days it is a very hard process. I remember the day Avery first got to sleep in her elevated crib! It will get better just hang in there.

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