my ped said if it doesn't improve by nine months he will need more testing, what are they looking for?

Makayla - posted on 07/04/2012 ( 2 moms have responded )

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So my son was diagnosed at 3 weeks with laryngo traceal malacia. We have been very lucky that we haven't spent time in the hospital. So far he seems to be growing normally and is very active. His chest cavity is flaired from the stridor when he was younger and he has difficulty with any texture and could never take a bottle due to flow issues.

At his last visit 7 months the per said she heard clear breath sounds when he was on his stomach, but was concerned that he was still audible upright. She said if it continued at 9 months we would have to go for additional testing. When I asked what they would be looking for she said underlying causes and said we would go into it more when we got there. Of course now I am freaked out . Any idea what kind of tests or what they are looking for?

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Sandi - posted on 07/06/2012

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What is means in lay woman's terms is his air pipe, the tracia, is soft and probably is minorly collapsing and not allowing air through. Was your son premature? Sometimes, babies body parts have to grow a little more. To make sure that the tracia is attached properly is probably one consideration and to look for any other structural conditions, and lung conditions. My premature daughter's valve between the lungs and her heart needed to grow. At 9 months old, she had a minor procedure done. She then thrived! I understand how freaked you are right now and dealing with the unknown is even scarier scarier because we want to have control....and ultmately we do not.....God or a Higher Power does.
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~~I did know know as I had never gone and read the 'about' section~~thank you for being so open and based on your post here, I now pray this prayer~~
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Melissa - posted on 07/04/2012

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My 10 year old had laryngobronchotraceomalacia as an infant. Turns out it was caused by his in nominate artery compressing his trachea. He had numerous bonchoscopies done, along with a cookie swallow and MRI done of his neck/chest. He was followed by a pulmonologist for this. At first they thought he had a vascular ring, but after more testing discovered it was a compression instead.

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