Does anyone else have a baby or family member with Hirschsprungs Disease?!
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Vera - posted on 12/07/2011
Hey. I know it's been a year since this post. But my 7 month old is pending results for HD. He's had 5 surgeries for imperforate anus and had a fistula pull through already. They won't do a take down of his colostomy until they get the lab results for the HD though. They think he may have HD because when he did his 5th surgery the tissue came back negative for the nerve cells. I guess Im just trying to get a feel for what kind of issues and what's its been like for other kids and families with HD. If you are willing to talk about it I would greatly appreciate it.