Almost 8 week old diagnosed with a heart murmur...

Alicia - posted on 06/24/2009 ( 9 moms have responded )

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My daughter went to the doctor yesterday evening for some constipation and the doctor ended up finding a heart murmur, and now they want to do an EKG to see just how extensive it is, has anyone else gone through this or know anyone that has? I'm really looking for people who have been there and can give me words of encouragement because I know it can be something simple all the way to something requiring surgery. I'm just so scared and nervous I really don't know what to do. Any help is greatly appreciated.

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Kelly - posted on 07/10/2009

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My oldest daughter Sadie had a heart murmur and had to have an EKG at 6 weeks. She had to see a cardiologist. After the EKG, they decided they needed to monitor her every 6 months. At 18 months of age her heart murmur, that they decided was from a hole in her heart, was closed and she was released. She did have to take antibiotics when she went to the dentist at 12 month and 18 months of age to protect from infections.

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Ann - posted on 07/10/2009

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My daughter was in the neonatal intensive care for 10 days. She went thru a lot and was also diagnosed with heart murmur. Pediatric cardiologist was following her for a while, also EKG was performed. Last visit, her pediatrician says that the murmur is very small, and most likely will grow out of it. So, don't worry. Just deal with it when it comes.

Frances - posted on 07/10/2009

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my son is 2 months old they told me he had a heart murmur when he was born they said he should out grow it now at 2 months he went to the doctors and found out its still there they want him to go to a cardiologist to see if it ok or go any further and i'm scared and nerves on what they might find i dont want to lose my son his uncle was diagnosed on his dads side with that and eventually passed away but that was when my husband was a baby. but if you want to talk about it i'm here

Sabrina - posted on 07/02/2009

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My daughter was born on May 2nd and just a few days after her 1 month "birthday" she was diagnoised with a heart murmur. I paniced and since then I've been doing some research and it seems as tho almost 50% of children have a heart murmur at some point in their childhood and usually grow out of it. If your doctor didn't seem worried about it or rush you for testing I wouldn't be too worried about it. We had our EKG done last week and the technician told me if it was serious I'ld hear from the pediatric cardiologist within 2 or 3 days, it's been over a week now and they haven't called. I have a follow up appointment with her pediatrician on the 15th. Hope this is a little reasuring.

Kirsten - posted on 06/30/2009

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I'm not too much help, but my mom had a heart murmur as a baby and they didn't do anything and shes fine.
:)

Melinda - posted on 06/30/2009

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I was told my daughter born on the 24th of may had a heart murmer within 24 hours of her being born. It was the scariest thing I've ever heard. She had a scan straight away and we were told she has a tiny hole in her heart. I felt sick to my stomach at the thought of something being wrong with her. I was back at the hospital last week for her to have it checked and the murmer is still there. They say it's very common and there was quite a few mums there waiting for the same thing. She has to go back in sept for another check up. Although it sounds scary I'm just sticking with the thought that the doctor knows what he's talking about and he's not really worried and besides she's growing fine and she's having no problems. She's even started smiling at me. She's perfect. I'm sure your daughter will be fine. Good luck and try not to dwell on it too much and just enjoy her.

Fiona - posted on 06/27/2009

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Hi Alicia,
Sorry to her about it. With my first son I found out that it had a murmur in the first 48 hours after he was born. I know how it feels, like someone has just ripped your heart out when they first tell you. But trust me it is better to know. At first they where checking it all the time. And it did finally close by its self.

He is now turn 3 and still gets checked every year by his doctor and a heart specialist. Since Zach has been born I know of 2 other babies who have been born with one as well it is very common. I was told by the head midwife when my son was born that 1 in 5 babies are born with heart murmurs.

I have just had my second baby and I was so scared that it would happen again. But when he was born they checked him and found no murmur. Just make sure that you tell people she has a murmur such a teacher, dentists, childcare, etc.

One last thing the heart specialist told me as long as your child is happy, active and growing. Then there is nothing to worry about, so just think positively. If you need to talk about it I will listen and tell you what I have learned in the past 3 years

i have also found a couple of communities, these might also be able to help

Moms with kids who have/had VSD's or ASD's or other genetic heart defects

Moms of Kids with Heart Defects

Fiona

Alicia - posted on 06/24/2009

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Ok thank you. I actually keep going back and forth on the phone today with the doctor to find out when they are going to do the EKG and where it is going to be because the doctor doesnt know if her hospital is capable of doing one on my daughter because she is so young or if they are going to refer us to an actual pediatric cardiologist. But thank you again, I didnt know anyone that had had one but come to find out my daughters god-father actually has one but his is a severe case. But thank you for your insight as well.

Darci - posted on 06/24/2009

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I had a heart murmur as a child, and I grew out of it. My son (who is now 2 years old)has a benign heart murmur. My family doctor was pretty sure it was harmless, but he suggested we see a pediatric cardiologist (specialist) to make sure it was. The pediatric cardiologist confirmed it was harmless just by listening to his heart. The pediatric cardiologist listens to baby/kid hearts everyday, and I am confident he knows what he's talking about when he says it's harmless. He did give us the option of doing an EKG to be sure, but we declined that test.



My daughter (who was born May 13th, and is now 6 weeks old) also had a heart murmur at 1 week old, but it was quieter at 2 weeks old. My family doctor said that this type of murmur was common in newborns. He said he'd keep listening for it at each appointment until he didn't hear it anymore. If it doesn't disappear, we'd probably see the pediatric cardiologist to confirm that it is harmless. Hope this helps.

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