Support Groups

DeDra - posted on 06/01/2011 ( 4 moms have responded )

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I said that I would post a question a week. Although no one has been on to actually see my questions, I will keep posting them. Maybe someone who really needs someone to talk to will see it ,& know that somebody in this group is still active.



Anyway.....My question for this week is about support groups. What Do you wish a support group could really do for you? Financial help, emotional support, or just someone to go occasionally? How are the support groups in your area? What would you do to make them better?

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Shaquansia - posted on 06/05/2011

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I wanted also form one in Pensacola area but its sad most people only come when you given them food or money or something most people dnt like discuss their emotional issues because people got big mouth so I said if I did one everybody will sign confidentality agrrement saying they wnt discuss what is talked about in the meeting anfd then I was gonna have them held at church that eay if people want prayer they can get that with my pastor also! So its all in how you plan it and how you advertise it we have a sickle cell disease association here but no one really gets involved in it so I was gonna form one!

DeDra - posted on 06/05/2011

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I ask because 10 years ago, a group of SCD patients that I know attempted tom create a support group, a non profit. It was a wonderful concept, & they had some people in their side backing their vision. Unfortunately, it didn't succeed. Most people didn't feel as if they needed emotional support from others, they thought they needed help in other areas, like financially, help with finding jobs, obtaining health insurance, & other issues. It was a great idea, & one day I hope to start my own non profit. But I now realize that it's hard for many people to talk about their own feelings & issues, let alone anyone else's when they're worried about how they're going to make it to their next doctors appointment, or worried about if their heat is going to get cut off this winter.

DeDra - posted on 06/05/2011

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When I wrote this question, I was wondering what do others with SCD want from a support group. For example, if I could create a group, it would hold maybe monthly, or every other month support meetings for everyone to discuss what's going on in their lives, how's everyone feeling, who's in the hospital, basically a supportive social group. They could hold luncheons, prayer breakfasts, seminars educating the public, dances, & all kinds of social events. But if I needed help with finding a new car, they would be able to point me to different sources that could help me reach my goal. That's my ideal support group. What about yours?

Shaquansia - posted on 06/02/2011

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A support group is great for all those reasons listed and then some! its an awesome idea and we do need make this group more active so I will post on my facebook so people can respond! I know personally its good to talk with ohters to get their opinion and support on certain situations that people may not have anyone else to go to! So great idea Dedra!

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