Tara - posted on 01/15/2010 ( 1 mom has responded )
My son was diagnosed with Hirschprungs Disease when he was 2 days old. My husband and I felt at a total loss. It was something that we had never heard of, and when we researched it, it sounded like we would be losing our son. And after a lot more research, come to find out that a lot of web sites scare the bejezzers out of you!
I found that we (here in Canada) really didn't have much to go on, we don't have any real doctors specializing in this disorder, we might have great general sergions, but thats all we have to go on.
I felt like I had no where to turn or even to ask other parents advice in Canada. Fortunately, my doctor introduced me to another mommy whose child has hirschprungs as well. I found it a great relief to be able to discuss with her the never ending diaper rash situation or the delayed potty training, or even how the heck this happened!
I felt it was time that other moms in the area should be able to connect to other moms in the same situation. And not feel like they are the only ones going through it.
So I hope mommies in the ottawa- gat. area feel comfy enough to join the group, and share your stories.