Van - posted on 01/29/2011 ( 3 moms have responded )
Hi my son has long segment hd. He has the ileostomy surgery at two weeks old. He is now 13 months old. Our surgeon recommended waiting until potty training age to do the pull through surgery. I am anxious about the future of my son's health. Do u know any other hd family that waited till potty training age for the pull thru surgery? I am worried! Is it uncommon. I live in Los Angeles CA. R there anyone out there like me?