ADHD and SSI Disability

[deleted account] ( 139 moms have responded )

Someone told me today that if your child has been diagnosed with ADHD that they could get put on disability and would also qualify for medicaid. Does anyone know anything about this subject? Thanks and God bless. :O)

MOST HELPFUL POSTS

Anna - posted on 05/01/2013

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I am considering applying for ssi for my 2 boys they were diagnosed with adhd, odd and one of my boys has a possible learning disability in language. Im just wondering what their chances are of being approved for ssi? And how do I go about this entire process? The boys have me to the point were I cry and cry on an almost daily bases, dont get me wrong they have their good days but but their bad days are bad. I feel so overwhelmed...

Ella - posted on 03/03/2013

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i pray and love and keep seeking help because all my son has is me i dont get free housing, but he does get medicaid i only get 10hours a week working because it s hard to work with him some times its mentally hard but as long as i have god i cant go wrong!!!!

Samantha - posted on 02/25/2013

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I encourage anyone to keep trying for SSI for their child. Make sure you talk to your child's physician or psychiatrist and let them know of your intentions to apply for your child. Stress your need for the insurance to help with these major costs with your child. Don't give up! It is so easy to throw in the towel, if you don't succeed on the first try.

Many people who are not approved the first time are often approved the second time. When it comes time to filling out the application, make sure you document everything. I mean everything in full detail. Describe how their condition affects school and home life. Don't leave anything for them to guess at about your child's condition. Often information is forgotten or not written down on the documents by the doctor, that "gap" in information can be filled by you.

Also include how their behavior affect their interacting with their peers, parents and siblings. Just because they do not ask for the information on the application does not mean you can't offer them a bit more information. Remember when applying for SSI your income also plays a great part into being approved.

lifechanges2day.blogspot.com

Jennifer - posted on 01/20/2013

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Kim C - how can you speak for or know what anyone else's circumstances are and why they are applying for SSI? I'm happy for you that you have two children with a disability and you can afford the medical bills that go along with it, good for you! For the record you do have to apply for SSI at least in PA in order to get MA. I originally applied for SSI 3 years ago because I didn't know about medical assistance, and my husband's work insurance doesn't cover any medical expense related to ADHD including doctor visits, and perscriptions. That was the only reason I applied for SSI, but he was rejected. Then someone told me about medical assistance, so I applied for that. I can scan the paper on here to show you, that I HAD to apply for SSI. My son didn't have to be accepted, but we had to show proof that we were in the process of applying for SSI in order to receive medical assistance. To my surprise he is now receiving both. There are so many different levels of ADHD, how can you say that a person doesn't need supplemental income to help their child? We use the money were are receiving for my son for weekly tutoring and other helpful programs such as the Total Transformation. Not to mention with our state insurance for my son, even though behavioral therapy is covered, the only places that I can take him are either 2 hours or more away, or won't take him because he also has my husbands insurance which is automatically his primary insurance. The place is called RedCo and they only accept Medicaid and that's his secondary insurance so they flat out said sorry he can't come here! So in order to get him behavioral therapy I have to pay my co-pay for our primary insurance (my husband's insurance through work, which I can't take my son off of I tried, as long as my husband's still working and my son still lives under his roof he has to remain on his insurance), because I can't afford the gas or wear and tear on my car to take him 2 hours away once a week, not to mention I can't keep taking him out of school to go to these appointments because he can't afford to miss school. He's FAILING because he struggles so much. Please don't judge other people or assume that just because we accept help from the government that we are using that for our own needs and not to help our children! You have no idea what you're talking about........ I'm happy for you that you don't need to supplement your income and that you can help your children out to the best of your ability with your income alone. Don't assume that we're all exploiting our children with disabilities to better ourselves. We are all on here asking these questions because we want what's best for our kids! Shame on you for being a teacher and judging the parents of your students, you don't know their history, you have no idea of their struggles even if they seem like the most put together family! It's not your job to judge, just to answer the questionnaire your given from SSI honestly! I didn't expect my child's teachers to lie for him!

Samantha - posted on 02/10/2013

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Jeannie and Shaun make sure you have documents of everything. I found that is was good to talk to my child's doctor and find out what their perspective was on me filing for SSI for my child. Your child's doctor's have a big play into your child being approved. Many times it is how things are worded on forms the doctors fill out which will determine whether your child is approved or not.
Remember assets also play a huge role in whether your child will be approved or not. SSI is mainly for low income families. I know with all the bills we have and purchasing items for our children, we all feel like low income families. You have to almost be dirt poor to get SSI for a child. Also, when feeling out your child's SSI claim application it is important and I stress important to fill those pages up with information about how their lives are affected by their disorders. (Take a close look at what the therapists information they are providing, assets, school and what the doctor's are putting on the forms.)

I remember asking a doctor long before I even applied for my child what did he think about me applying for SSI for him. He told me you can try but I doubt if he will be approved. That let me know right then and there he was not going to do the necessary paperwork to get my son approved. So, a year past and I started taking my child to a therapist and a different doctor(psychiatrist). I talked to the psychologist and told her of my intentions to apply for my son. She said you won't have a problem. I am just so happy I didn't give up with that first doctor. So, don't give up! I know for a fact there is special way those forms have to be filled out by the doctors. Some little birdie told me that.

It's difficult I know. I am a single mom and as for working, after I go through the meltdowns, the school calling for conferences, breaking up fights between my two kids and cleaning up behind my little special one; my nerves are just shot. So, I stay home and work from here. I try to not feel quilty about not being out in the world working, but I do. I miss getting up and going to work, but it is so hard. You do feel like no one understands, but every blue moon someone will come along that will lend a sympatheic ear. Wow, guess I just needed to vent a little this morning. Sure did help :-)

~Sam~
www.lifechanges2day.blogspot.com

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Kellieh - posted 3 days ago

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I have been fighting for disability for my son since 2012. My son has ADD/ODD he has set fires harmed others and animals. He has been proven incompetent by a Juvenile Judge.He Has a Learning Disability. On a IEP program in school. On Vyvanse and Intuniv. I had him checked in to the hospital a few months ago and was to there is nothing they can do because its a reoccurring issues.He has been in and out of counseling since 2005 he was only 5 years old. I received a denial letter saying my son has these issues but not severe enough. I do have an attorney and filed for a hearing back in oct 2013 still no word of a hearing. Is there any help out there for my son.

Karimargott - posted on 10/07/2014

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I.have been fighting dissability for almost three years and tomarrow is my final hearing im very nervous i just found out she also has to be at the hearing does anyone have experience with child disability hearings and might know hoow it is conducted?

Elizabeth - posted on 08/16/2014

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In PA if you have a child with an issue... my daughter is almost 10 and has ADHD
I was talking to my caseworker from DPW CAO.. and she sent me a form for our physiatrist to fill out next time we went in. which she did willingly then weeks later I got a call from my caseworker saying I *HAD* to apply for SSI .. I said to her "there is nothing wrong with her expect ADHD" and I was told it is the rules now.. so I filled out the paper work for SSI ...we have hour hearing on Monday, its a phone hearing because I have to work and in order to take time off I have to give plenty of notice.. they were more than understanding for that .. but what are the odds of getting it the first time.. she attends out patient therapy

Heather - posted on 07/18/2014

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when my son was little his first diagnosis was just adhd i waited about a year of treatment before i applied for ssi and they told my adhd was not a disability i told them they have never seen adhd then

Kalila - posted on 07/17/2014

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I just apllied for my son disability. HE has been diagnosed with adhd, anger management issues and need speech therapy. He is 4 and been showing it since he was two. I have asked his daycare and pre k teachers if he was, they told me no. BUt when I took him to a doctor for children it didn't take 2 minutes to diagnosis him. so I learnt sometimes you cant trust daycare and schools to help you or support you u have to do it urself. I told all of them he gets us kicked out of public places, have to miss days of work or have to quit just to take care of him, he cant make any friends for two years . Since I had a second child its even worst so I said do it on your own. Tell them everything he has done and how it affects you and your family cause nobody deals with it but u and you need help.

Krista - posted on 05/15/2014

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My son has a mood disorder, he has been in therapy for over a year and just recently was put on an antidepressent. For 3 years his teachers have said "I believe he has adhd", 2 psychologists ruled that out (using evals filled out by myself and the teachers and daycare providers), then the pediatrician ruled that out and when I told his school teacher he was diagnosed with a depressive disorder and put on a low dose antidepressent she grimaced. She said she didn't think he had depression and that it was adhd and thought we were incorrectly medicating him. Finally, we went to meet with a behavioral specialist, he increased the antidepressent dose and completely ruled out ADHD. He said that schools (especially in my state which is MN) try to push an adhd diagnoses onto any kids who struggle with hyperactivity at an early age.

Michelle - posted on 05/02/2014

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My child is 9.. Has ADHD.. Has been on every med possible .. Some work for awhile! He is a nightmare! Now being evaluated for possible other issues.. Spoke with a lawyer in NYS was told he may get SSI only if we are very little income and he is 18! Does not sound right to me

Leah M - posted on 04/29/2014

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Seriously people... PLEASE... learn to be a little more sensitive or actually show some compassion, for those who are OBVIOUSLY struggling~

Everyone has some dysfunctions rather one cares to acknowledge them or not! For those who choose to think otherwise...that in itself is called DENIAL!! Another form of a dysfunction, just in case u weren't aware~

To the person I'm responding to right now... the one who seems irritated with the system helping out those with children that are listed as a.d.d ,or a.d.h.d getting assistance... your dysfunction in my opinion.. would be that your a very judgmental person. Just sayin.

Leah M - posted on 04/29/2014

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TO those of you who wonder why there are people gettin ssi for children with add or adhd... its because MOST of them are NOT add or adhd. MOST of them have state insurance and it was the schools who deemed these children this way without doing all the evals they should of been doing because they COST TO MUCH. Sooo they just guess its one or thee other cause after all they have all these signs. Well... when OTHERS... ( SSI interviewers) hear these parents nightmares.... at times... they get an understanding of ... hey this case is not like the rest. Reason being all that is collected... info on kid... appears to have a MAJOR negative impact on the childs life. Therefore... they GIVE the families of these children whatever help they can give. Cause thats what THEY ARE THERE FOR. To assist anyone who has a disabling CONDITION! Where is all this matter of fact stuff coming from u ask??? FROM THIS MOTHER OF A CHILD ON THE SPECTRUM. Mostly... his issues is all related to Sensory Processing Disorder... Look it up... Also verbal and comprehension delay. His working memory they didnt find out til I DEMANDED MORE FROM THE SCHOOL... is below avery I think 68 or 71. My point... it was GUESSED that my Son has ADHD... they drugged him with a variety of crap that did NO GOOD.... and after he was accused of a crime which he was COMPLETELY INCAPABLE OF DOING... neighborhood kids didnt know he was ALWAYS WITH ME... it was then .... that the STATE was forced to do a COMPREHENSIVE EVALUATION to see if he was CAPABLE... of what was alleged. Longer story short... everything that I said... thought.. wondered (other parents thought he was high functioning autism) I was validated. So at 13 almost 14... I FINALLY get the right diagnoses and can NOW attempt to LEARN MORE about how to handle my son and help HIM handle the world!!!!!

Celeste - posted on 04/02/2014

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Have you considered looking into alternative therapies ie: Young Living Essential Oils? You can look on-line to see what essential oils are and then you can look into getting some educational tools that would back up their claims. If you did like what you read, the best way to test is to buy some. The "oils" are fabulous. They are more expensive but that is because they work in seconds to days (less then a month) you would see some positive results. The best way to get a better deal is to of course become a distributor. That's what I did just to get the best price. You do not have to sell and I think they might have a money back guarantee if you were unhappy with any of their products within 30 days.

Julia Parker - posted on 12/10/2013

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I have daughter with ADHD andTwo boys with diferent disabilties one with eplipsey and I believe he also has ADD like his daddy the way acts sometimes. My other son has A learning disbility mostly with speech problems and he can't get on SSI and he will have problems soically working for jobs. I'm thinking of moving to murray utah so my boys can attend the jones center like I did. That's the program that helped me learn to work on a job and make lots of friends. I have learning disabilty and have never had SSI and could've used it many times but I learned to be independent and smart on my own without it but now being a parent for kids with disability is good and not easy at times. But hopefully my example is that they will not give up so easliy. I just wish i understood my daughter with ADHD she doesn't listen and she doesn't take our advice alot. she forgets things and assgnments at school are boring and not important enough to turn in. what do you then as parent I wish knew the answer but i don't.

Julia Parker - posted on 12/10/2013

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That's discrimination against disabilities act. I would go to your law office and report them for denial or move Utah because kids with disabilities that are treated well get help here. If you need help but don't want move call someone under the divisibility law just go higher then a judge. you can do it.

Julia Parker - posted on 12/10/2013

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My daughter also is not meds and she fines except moments when she forget assignments and things I told her or is distracted at school alot.

Julia Parker - posted on 12/10/2013

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I agree I don't know anyone getting ssi because of ADHD I mean my daughter is taking regular classes and she's not on medication ether. People believe kids have to be on it but it depends how sever they are. Savannah Reminds me of her daddy who has ADD and he has learned without Medication. I can't say it's easy ether. I have one on ssi because he has epilepsy and his brother whose a twin a learning disability and can't qualify and he will have problems in his life the ssi could help. I have no idea how Jaxson is going to work at job. We are going to keep testing because my husband has in his side of family is autism and he wonder if Jaxson has a little of that too like his grandpa. I just don't want him to have difficulties. i can already see has he mingles with other people the social thing is hard for him.

Rebecca - posted on 12/09/2013

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Yes, My grandson is ADHD and we had no trouble getting him on disability. Just make sure u have all the paper work u can get from his doctors. He was put on disability from the very first time we applied.

Steffani - posted on 11/22/2013

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Wow, Jaclyn! I am thinking about you. I am a school teacher (Special Education). I find it amazing that the school actually told you that your child had ADHD and that she would be helped by medicine. Schools usually frown on that one. I am never allowed to tell a parent that.

But, if a doctor has stated that they think this child needs help, then here are some steps I would try. First, I would find out what you as a parent are allowed to access. What I mean is, can you access child records at your child;s school? if you do, I would request school records and I mean request everything. You want any testing, you want report cards, you want to know if your child is receiving any services outside of a classroom, etc.

If that answer is yes, then I would contact Advocacy, Inc or even a help line to find an attorney that could help you. Just because you do not have custody does not mean that you should be shut out of your child's academics.

Steffani - posted on 11/22/2013

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I am a school teacher (special ed teacher) and also have a child who is diagnosed with ADHD/CAPD. I have never personally applied for SSI. I have had parents ask me to complete questionaires on their children. I worked as a Social Worker for several years before I became a teacher. The evaluators will look at alot of things. How severe is the disorder? Are they receiving Special Education classes? Are there other disorders present? I personally don't know of anyone ever getting a yes answer with just ADHD.

Brooke - posted on 11/20/2013

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I have a six year old little girl she has add/adhd and asma as well and she has a lot of breathing problems so I am thinking about filing for her ssi does anyone think that it will be worth trying for.

Jenny - posted on 11/09/2013

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i was told no,,,,, IF you get your kid the help it needs then it wouldnt hinder them but see parents dont want to get them on meds so it will hinder them and make the kids feel like out case and hinder all the other kids from learning as the kids with adhd,, and YES my son is adhd i know how it is cause he has done the NO meds and on meds on meds he has friends and is learning and has no problems except when the were off

Marie - posted on 11/04/2013

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To Jaclyn Scober, I would talk to someone about him and the situation because ADHD can really hinder a child academically and that is the last thing we parents want for our children. You may need to go back and challenge custody or at least find someone who can help you with that. A child with ADHD requires a parent to give up a lot and to sacrifice a lot and every little thing that child does has to be monitored very carefully. I say this because I have my own child whose 8 and she is the best little girl you could ever want to meet or should I say one of the best. She takes me through so much emotionally that the physical is barely manageable. I ask the lord to give me strength and to allow me to be in a position to where i can manage her and my life. Her father thought I was crazy about her behavior and he went with me the first time to get the routine evaluation of the parents with child, but he never came back to sit with us for the testing or the results. It's been 4 months and he still doesn't know his child has been diagnosed and when she has a problem and talks to him about it, he swears it's me doing things to her. I say all this to say that your child needs you to be there for her and help her through this, if she can't count on both parents then one is better than none. I will pray that things work out for your child while he/she is with the father,but i strongly urge you to TRY WITH ALL YOUR MIGHT TO HELP YOUR CHILD, IT IS GREATLY NEEDED!........SMOOCH AND LOVE

Wanda - posted on 10/20/2013

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hi every1 i have a 11 years old son nd his been havin adhd since he was 3yrs old nd he also has ashtma since he was 10 months... i just recently apply for ssi in august nd im still waitin for da respond.. do u think he'll get it...

Joyce - posted on 10/06/2013

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I applied and had even more to add than ADHD but was turned down they said we made too much money LOL we are even retired raising and have adoption of our granddaughte. Just apply doesn't hurt.

Becca - posted on 09/11/2013

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Samantha reed please email me have questions
Need helo. Asap beckyrodz@yahoo.com

Jaclyn - posted on 09/05/2013

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Last year I was divorced my ex has custody of my daughter Hailey it was recommended by the school & the doctor than she receive diagnosis & treatment for ADHD. My ex doesn't believe in ADHD & heard he could have a SSI check if he refused treatment. He keeps refusing treatment due to he doesn't work & needs a SSI check so he doesn't have to. Can he keep refusing treatment just to get money? The school & doctor said all she probably needs is the meds. Can he keep refusing her treatment or will the school or doctor step in & at least see if the help? Does she have a right to that at least? It's just sad to see him try to classify his daughter as disabled because he would rather collect a check than get a job. I wish the state would look into his thought process in this & take my daughters quality of life into consideration I think that would be in her best interest. She lives with him & his parents in Keego Harbor,MI does she have any rights to see a doctor & receive meds that go above her fathers poor decision making skills? He already collects food stamps & Medicaid yet has a home paid off on Cass Lake & 4 cars he even has pool. Cash assistance is the only thing he hasn't received since I pay him child support.

Vicki - posted on 08/25/2013

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My daughter is 9 and after 2 years she was just awarded SSDI by the Judge. She has ADHD ODD and Asbergers we are now waiting to hear from SS re our income and monthly amount, etc. as far as just having ADHD it depends on the severity and what the Dr.s have documented ans if you have had any assessments done on him

Teshma - posted on 06/10/2013

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Hi samatha could you send me your email adress because i have a question to ask you my email adress is lovelordback@yahoo.com

Recenia - posted on 06/02/2013

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I have an 8 year old son with ADHD and breathing problems as well since he was a new born he has MRSA from being such a sickly child and in and out of the hospital as a child and baby numerous times literally it was bad and now he is healthier but his attitude and ADHD is very serious I have a 4 year old daughter as well he constantly is hitting her and hurting her seriously he throws things at her and me and says very very mean and hateful things such as I hate my life and I just need to kill my self Ive tried everything and nothing works he is out of control. he goes to adanta once a month and the doctor aint worth crap he just asks how he is and says ok stay on the meds. he gets in fights at school and has been suspended from school many times and kicked off bus many times for fighting. I signed him up years ago for his health conditions and got denied after going to speech doctor and many other doctors for them to turn us down after 6 months of waiting and i did not appeal it which i should have because I know my son has mental and health problems. I use to work all the time but my husband works and I stay at home now. We are a low income family and that means about 1000$ monthly and my kds draw a medical card but believe it or not they have took my sons from him a few times and we could not afford the doctors visits it was very hard on us. I also have a 1 year old wit speech and occupational therapy coming every week she is also awaitig her appointment for a orthapedic specialist for her legs she is severly bow legged and has pigion toes that point inward and causes her to fall alot and so i am going to have her therapist help fill out the paper work. THanks

Eunice - posted on 04/20/2013

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What I was told about ssi n adhd kids is that once approve and receiving ssi it will Label your kids for the rest of their life.. meaning if they. "Out grows it or learns to cope with his adhd" he will still be label n limited to where he can work... now does anyone. If this is true?

Terra - posted on 04/02/2013

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I was in the same place last year, well not the same, but similar. After 6 months of playing with meds and doage he is doing much better. It is too late in the year but we gave Brody time off of school, last year when he was 5 and restarted him in kindergarten at age 6. He also does not have many friends, but slowly are surely is getting getter better with the meds. Daytrana 30mg has worked best for the ADHD and has had a huge impact with his anger. I wish you luck.

Stormy Renae - posted on 03/02/2013

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In 2009 i got locked up and sent to prison for 2 years while there my kids got put in foster care and when i got out i found out that my 8 year old son is ADHD and he was put on 2 different meds and without it hes out of control and with it he feels different and the way he feels hurts because when i was younger i was put on meds cause i was adhd but i grew out of it.timeouts doesnt work for my son so what else can i do?

Ella - posted on 02/28/2013

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my son has adhd, odd, and high tendentcy of bi polar and he is on 3 different meds. he is very defiant, and have a great deal of imaginary friends, that talk and play with him all the time. he has no real friends, and doesnt want to play with anyone his age or older. he doesnt care if he misses out on fun like parks or parties( he says as long as he at home with his mom it doesnt bother him) he has put holes in my wall and lies about everything and im at his school all the time.i really dont know what to do because i feel its unfair to me. its hard to work because of him so i take what i can get. Oh and hes only 6 years old. does any one have any comforting solution on what to do....i really can go on and on...

Comedian Trese - posted on 02/23/2013

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I have a 8 yrs old son and he receive ssi for his ADHD. HE USED TO SCREAM, FALL OUT AND HIT PEOPLE AT SCHOOL IF HE DO NOT GET HIS WAY AND HE WAS TWO THEN. HE IS STILL DOING THIS TO THIS DAY. WHEN HE IS ON HIS MEDS HE DO REALLY GOOD. I HAVE TWIN BOYS WHO ARE TWO YRS OLD AND THEY ARE DOING THE SAME THINGS, BUT ONE OF MY TWINS EAT HIS BOWEL. I HAVE THEM IN A PROGRAM CALL BABIES CANT WAIT BECAUSE THEY ARE DISABLE AS OF LEARNING DISABILITY. I FEEL THEY ARE ADHD BECAUSE THEY HIT THEIR THERAPIST, BITE EACH OTHER AND LEAVE MARKS ON EACH OTHER. THEY SCREAM, FALL OUT AND DO NOT LISTEN WHEN I TELL THEM TO DO SOMETHING. THE PROGRAM THEY ARE IN WILL HELP THEM START SCHOOL EARLY. THEY ARE DRIVING ME INSANE AND I REALLY NEED SOME ADVICE. DO YOU THINK THEY WILL BE APPROVED FOR SSI WITH THEIR DAYCARES RECORD, THERAPIST AND MINE?

[deleted account]

Thank you for your encouraging post. I mistakenly posted in another area on this site (because I am new and wasn't aware there were different areas. I was given the rudest comments by someone and called names and on and on I actually deleted my profile and just came back after blocking her.

Machelle - posted on 02/21/2013

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You will need to go to your local job and family services and apply for Medicaid or Molina or care source depending on what they feel is best for your child. That will take at least a few months due to you needing to provide income verification and doctor verification. As fo SSI, you will most likely be disapproved/denied SSI the first time you apply. Best bet? Hire an attorney specifically for social security claims. It's a very long process with SSI. Doctor verifications and diagnosis verifications, one on one interviews with a social security administrator, etc etc etc. but with the way the economy is these days, they are trying to lower everyone's SSI payment.. Good luck.

Jeannie - posted on 02/10/2013

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Keep fighting the appeals...maybe if they walked in our shoes for a day they would understand what we go through with a child with these disabilities!! I work full time and get no assistance from the government. I have been told by others going through the same thing was since I don't get food stamps, free rent, free medical insurance, etc...that we would be denied because of my income!!!

Shaun - posted on 02/09/2013

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I have a 6 year old daughter who is adhd and has autism. she also has sleep apnea. she sees three therapist every week and they denied her disability. I appealed it and now waiting for a hearing. I also have a one year old with sleep apnea who has to go back and forth to the doctor. this is a everyday thing for me to the point where I cant even work a full time job anymore. so my question is what and how do I go by getting through this? what makes them feel that they have the right to tell us if our child/children are deserving of disability or not.

Jeannie - posted on 02/08/2013

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It's very stressful having a child with severe combined ADD/ADHD, Asperger Syndrome, Dyslexia, and learning disability! Typically nobody understand where you are coming from unless they have a child similar to yours, which is not often!! We have been denied twice and recently went before the judge only to be told, sorry I was going to review your case over the weekend and I just didn't have time and to have his teachers fill out the teacher questionnaire forms again! We waited 2 hours to get that answer and before that waited over a year to get a hearing... We were literally in front of the judge for a whopping 10 minutes!! We now are told we will hear from them via mail for the next hearing which could take up to 3-4 months!! I think they do this hoping you will give up!! We will continue to fight!! Everything is so redundent and has not been an easy process!!! Good luck to all!!

Samantha - posted on 02/04/2013

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I totally agree Kath. That amount of money is not a lot when you think of all the bills and other things that have to be taken care of. I am however happy that your son has been approved. I know they will not even allow you to have over 3000 dollars in assets at any given time. Since it is federal government I am only guessing that limit is the same everywhere. We as parents still need our income to pay our household bills and take care of the needs of other children if any. The money from SSI is a great asset to help with medical needs and other certain things the special needs child need, but you practically have to have nothing to get it.

Since the money is so little from SSI, you still end up paying for other out of pocket costs. Even your life insurance policies are scrutinized. If you have a policy that can be cashed in well that is counted as well. If you make over the amount of money allowed during any given month, SSI will deduct it straight from your child's check. :-). So, really you can't own high valued property, no life insurance that can be cashed in, can't make over a certain amount of money. These are things people need to know before even trying to apply, because the long wait is frustrating only to be denied later. I have gone through the process for SSDI with my elderly parents as well as SSI for my son. I know the struggle(smh). Keep your chin up. Keep in mind what you know now about their income guidelines. Those things are not going to change but look at your assets. Many people do not know that there is a limit to what you can have on top of having income. Assets include, car value, home, property, life insurance that can be cashed in, owning any of these items on top of your income will reduce your chances in getting approved.

Samantha
www.lifechanges2day.blogspot.com

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Thats totally why I hate Risperdone! And, I got a letter in the mail Friday. My son was approved on the disability end, but they said we make too much money in a month which would be around $1800 and they say it was $1900! Thats the second time I have applied. I give up. How is $1800 or even $1900 a month too much? Just plain nuts!

Samantha - posted on 02/03/2013

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Please ladies check out the side effects on that risperdone. If you have a young boy on the medication monitor them closely. Male gynecomastia which is male boobs is a side effect. My son was on the medication and I begin to notice a slight change.

By the way those who are trying to file for SSI a friend and I wrote an ebook about what steps to follow and the different information you need. I won my son's case the first time around. I share everything in the book. I just thought I could help someone get through the process. It's called How to win SSI Benefits for a Child With PDD-NOS "No Lawyer Needed" on Amazon. It's short and to the point. Trust me if I got my son approved the first time around anyone can. You just need to be prepared. I am sure it will help those who have children on different parts of the spectrum. If you need any help figuring out the process send me an email. I will gladly help answer questions if possible.

Samantha

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I live in Central Pa. They are on (not sure of spelling) Vyvanise? And my five year old is on Risperdone, and clondine. Do you have an email or facebook account? I would like to chat sometime.

Jennifer - posted on 01/30/2013

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I think you have a better shot the second time around. I don't know how they can say you make too much money.... where do you live? We live in PA, and my husband makes around $5000 gross/mo...

The side effects of the meds scare me as well :( What are your sons on?

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And I totally agree with your long posting above. People shouldn't be judging us. They have no idea what its like dealing with a child with ADHD currently we just found out 3 of my 5 boys have it. Its not fun and all 3 are on meds which dont seem to be helping much I have to say the side effects are more scarey to me than the benefits. Ugh such is life.....

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Hi Jennifer,

Thanks for the info. Yeah, they tell me I make too much money! My son gets child support which is only about $277 every two weeks but at the moment his dad is paying an arrears so its around $300 to $415 depends it varies and I am on unemployment they say Im also making to much money thats around $840 a month. So I just give up. I have applied a second time and I am awaiting the phone interview. However, my unemployment runs out in a few weeks.

Dorren - posted on 01/30/2013

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Yes this is true, but you be denied automatically if you apply by yourself. You need to hire a disability attorney like Binder & Binder. the payment for attorney 33%, come's out of the retroactive check you will receive from the date of the child first diagnoses.

Jennifer - posted on 01/27/2013

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We live in PA and WERE required as of July of last year, so maybe it's a new thing. My son only has ADHD and is 9, therefore has never worked, and we receive money through SSI monthly...... We don't receive much, because my husband makes about 60000/year (it's income based). I know if you have little to no income the maximum benefits you can receive are $771 I believe. Did you apply online? Just go to the website and send the application in. I had someone call me for a phone appointment after the application was submitted. Like I stated in a previous post we were rejected the first time and the accepted the second time.

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