Concerta has stopped working

Janice - posted on 03/23/2011 ( 38 moms have responded )

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My 13 year old son has been on Concerta for about 3 years now, in varying doses. He's currently on 72 mg and I'm reluctant to up it again. It doesn't seem to help any more with his classroom concentration though - although it does help to keep him more grounded than he would be if he wouldn't take it. However, it doesn't help at all with his schoolwork. He takes no interest in or responsibility for his schoolwork AT all. Has anyone else found that this has happened when their child has been on Concerta long term? There is no way he can't be on medication as then he would be just impossible and wouldn't be able to focus at all. What is the solution to this issue?

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YT123 - posted on 04/09/2013

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Hi,

My name is Yvette and I have been taking Concerta for the last 11 years and USED to love absolutely love this medication. My life literally changed in a million ways after I began taking it, because I could actually achieve my goals. My sons (who are now grown) also took Concerta all of their life for ADD & ADHD.

I am writing in because I feel this medication has completely changed and is not the pill it used to be. I noticed this change about a year ago. I was put on the generic when it came out and that was a nightmare. I went back to brand ($100 per month) but found it just doesn't work the way it used to.

In my experience, I used to be able to feel the pill kick in. It's like I went from completely scattered to, "o.k., I am ready to learn, do my job, get focused, etc." It's like you are "present" like the information you are hearing is actually going into your ear, processed through your brain, analyzing what you will do with it and then putting the information in its place and moving on, and its effortless, its awesome!

With the pill now, I never feel it kick in, ever. Some days I'm focused, some days I just can't get it together and I am frustrated. Because I have ADD I don't even connect the dots that maybe my pill isn't working, instead I just keep working harder to focus until I am mentally burned out. At that point, its like "duh" this pill is not working!

The other thing I noticed is that I am hungry, all the time. This was NEVER the case in the past 11 years. I have always eaten on a schedule because I was always aware not eating was a side effect of this pill and I became very mindful to watch that. Before, you had to MAKE yourself eat so you didn't get headaches, otherwise you just wouldn't be hungry and you would forget to eat. Now, I can eat all day long 24/7.

My sister who has been on Concerta since it went on the market, almost maybe 15-20 years? Over the past year and half has gained 30 pounds and is emotionally up and down like a yo-yo. Prior to this time her weight remained the same. she was very balanced and was on an eating pattern as I have been. The difference between my sister and I is I am a work out freak and my sister doesn't exercise at all. My weight has stayed the same, however, I have had to up my exercising from 1 hour to 2.5 hours per day to maintain my weight. (I'm 41)

School has also been very, very challenging. In the past I was able to breeze through school with Concerta, now its so much work, because I just can't get there and with the new semester coming up I just have to make a change because just thinking about another year like the last is very demotivating. The focus is just gone and I am mentally drained because I work so hard trying to stay focused when it used to be a piece of cake.

I called the Concerta manufacturer and they could care less about my experience or helping me. I am thinking about trying adderall but I don't personally know of anyone who has liked it.

I was hoping that maybe someone on this board has a success story to share with me.

Thank you,

Yvette

Jeanne - posted on 04/07/2013

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I had the same problem. My daugther is 12. She is now on Intuniv with the Concerta. She needs both. We were told the concerta is a stimulant and over time especailly @ puberty the conerta wont give full effect by itself. We found the the Concerta keeps our daughter calm but not focusing well

Jamie - posted on 04/05/2011

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I have two ADHD kids and both are on Concerta. My daughter started on it when she was 5 and is now 12. I just lowered her dosage to 27mg, she was on 36 mg. My son, who is 10, is entirely different. He is on 36 mg and sometimes I think he needs a higher dosage, but I think after a while their bodies get use to the medication and doesn't work as effectively as before. You may have to look into a different type of medication.

Inez - posted on 03/25/2011

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Mine does that too. I've heard some other kids use "gaybo". The more you react, the more they use it. I just tell him we don't use that word in our house, because it's mean. We have a simple rule on what you can say about people: 1) is it true? 2) is it kind?
If it doesn't fit the bill, then you don't say it.

I went to a ADD/ADHD seminar last year, and they talked about having "coaches" for your kids, who make contracts with them about getting stuff done. i.e. what does success look like to you? what do you have to do to get there? are you willing to do that? What would a fair consequence be if you do not follow through? etc. I'll try to find my notes.

Sarah - posted on 03/23/2011

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My ADHD son will be turning 12 in two weeks. I found when he went through growth spurts and/or hormone changes that we needed to alter doses or change them completely. He was on Concerta from age 8-10, but then we changed him when he turned 11 to Bifentin (after several other trials with other meds). The doctor told us that as his body changes, it will be likely that his medication will need changing as well. Like us, you might have to go through a trial period again to find something else. We also made other adjustments too like having him finish his school work while at school.

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Jack - posted on 02/16/2015

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"My name is Yvette and I have been taking Concerta for the last 11 years and USED to love absolutely love this medication. My life literally changed in a million ways after I began taking it, because I could actually achieve my goals. My sons (who are now grown) also took Concerta all of their life for ADD & ADHD."

Whole, family just happened to have ADD. Dr's these days lol.

You can't go above 72mg no clinical trials have ever been done at a dose higher than that 72mg is the max dose you can have so don't worry he/she wont up it for you.

They may switch you to adderall. You guys should really go to a drug forum you all sound like un educated addicts who have no idea what you're talking about.

Jack - posted on 02/16/2015

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"My name is Yvette and I have been taking Concerta for the last 11 years and USED to love absolutely love this medication. My life literally changed in a million ways after I began taking it, because I could actually achieve my goals. My sons (who are now grown) also took Concerta all of their life for ADD & ADHD."

Whole, family just happened to have ADD. Dr's these days lol.

You can't go above 72mg no clinical trials have ever been done at a dose higher than that 72mg is the max dose you can have so don't worry he/she wont up it for you.

They may switch you to adderall. You guys should really go to a drug forum you all sound like un educated addicts.

Your kids sound like lab rats, and you have no idea if the drug is to blame for these issues or not. I couldn't imagine taking something and having no idea what it's chemical properties are and what it does what it does. Which is clearly the case in a lot of posts here.

Cynthialee3128 - posted on 02/15/2014

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My eight year old son has adhd and he's on concerta, for awhile it worked out great for him, but now that he's getting older I don't think it's working anymore. It wears off about 2 or 3 in the afternoon. After that he's hitting people, running away from me, yelling, and kicking doors. I don't know if I need to change his meds or just take him off of it. I really need some advice. Can anyone tell me what I should do. Im worried about my son.

Tiffany - posted on 12/09/2013

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Thank you Yvette!! You have dittoed to my what my daughter is telling me. She is eight. I appreciate your comment more then you will every know. We are also going to change!

Patricia - posted on 11/26/2013

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yes this has happened to my son. My 16 year old son has been taking Concerta for the past 3 years and yes he to was on the generic brand and then like you said in the march of 2013 he started to gain alot of weight and I was concerned that this medicine had stopped working. Like you I tried the $100 origanal concerta and it was way worse. I would like to know what you are using now and is it working better for you?

Liz - posted on 04/07/2013

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How are your child's sleep habits? Kids from ages 10-18 require at 8.5-10 hours of sleep each night. 80% of high school students are sleep deprived. SLEEP DEPRIVATION AND ADHD HAVE SYMPTOMS THAT ARE NEARLY IDENTICAL. Use of lighted devices like ipads, iphones, and tvs can inhibit your child's production of natural melatonin and prevent proper sleep. Sleep is a big, big deal. I run the non-profit Foundation for Sleep Awareness and am trying to get this message out. I have some sleep diaries I can email people so they can evaluate their child's sleep AND before I would consider giving my child any additional medication I would take them to a sleep clinic to evaluate if they have sleep apnea. Sleep apnea is easily corrected and yet most people don't know about it and most doctors don't test for it before giving Adhd medications.

Jeanne - posted on 03/22/2013

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This has happened to my 11 year old daughter. We r taking her to a new doctor to see if we can put her on something new

Whatever - posted on 11/27/2012

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eek, i have some bad news, and unmeasureable conjecture as a statistical "shot near stuff to sell and help,.is doctors practicing medicine, and God bless them, no one is smart, or measured to be, and God is smarter than we might :logically conclude". I'm real old and my own parent, fro the "me" released from a pretty unjust life, and left THE Ohio State U bar, w/nice scholarly activities to accompany or complement the drinking and trying to find rather ID centric happiness, or perhaps liberty, but listening to kids was very clear before I stupidly left to "marry" and be nuts in tandem, and a nice very young swell girl... I climbed around and got the gift, traded a silver fox to die for, but "no contents". I'm not sure how we are so needful to rule parentally and know so much, but "professing too much"is very very near protesting much, and there is some help in being direct and honest wit5h EACH prson, thery are a mess and horrible and we're DYING.. so "whatever", try to ask more doctors, they "practice", and need help, and ask the kids who you regard "stupidly choosing maturing"? what they feel, then think, then let's all think it thru and regard time a bit "quantum ignorantly", it's very smart and - a person w/no analytical clue, who found deals shopping, but could NOT divide, told me, afte serious old school days of "main streaming" anything but trouble left, they just need ENOUGH love, so, probably not anty "too much of that then" danger, but it's a hard loof at oneself, before it really matters - we are such things as dreams etc. - round it up afte to love them and feel free to ask more questions and learn from mistakes made with the most loving conviction you chose in a system of two people, don't even get me started with system theory and "not possible math" and each person "whole", if you notice - but worry is reactive, don't worry unless you fear loving them, or unwisely accept some "fake authprity of mumbo jum-theory and dplesin zone hope, hope God loves you, and chose a mistake - report back, so far lots of begged drugs returned muy gift PERFECt, where he began years earliuer, 3 bucks for 2 and ~60. The docs and careful comtrol he failed to not buy, ah... ain't testing it. I keep uppin' doeses and lovin' the burn, but I seem to go faster not slower, what are the odds, I'm weird.. so I'm letting the 72mg go maybe and trying "3 bullets" and loving more children and had 58? ADHD on ludes, and too fast there. I can't quite find the positive vigor to "I'm So Wrong, and Victem Magnety", but i like being one of you, very very much, so make me proud and love the children, if you can handle it.

you can, and I think thopse "dogs" might be wiser, they don't shoot one another in batdog capes, so... we could swap collar positions, maybe. keep the ideas churning - A Dave - hiding in numbers, and another one i named because a Karoakian nice climb of a strange self honest afflicted girl, traded the boy - named Austin for the town "much like Columbus" - get it? big U stakes a capitol,and good influence and people and "nice dogs"... be one!

Franca - posted on 11/10/2012

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I have the same issue.. My son is 9 years old and has been on 27mg for the past year and a half and I noticed the same thing..... He was on 36mg, but his doctor told him to decrease it b/c of his weight issues... What drives me the most is his immaturity.. He sometimes does not think before he says something... This could get him into alot of trouble... I dont know what to do... I see his doctor this week and if his weight is still the same she will not increase it to 36mg.. Maybe he needs to be on a different medication all together....

Sarah - posted on 10/25/2012

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Sorry for the delay in responding Candy. I spelled Bifentin wrong - it's Biphentin. Check out http://chealth.canoe.ca/drug_info_detail... as it gives you the details. My son was on it for a year and I found it better for his sleep and stomach.



Since my last post, I've put my son back on to Concerta 54mg and we've noticed a world of difference from the Focalin. I think the break from Concerta did him some good. We still have the teachers ensure he gets enough time to do his work in class as homework is hopeless at home. I also had a psychologist do another assessment so we could understand the way he learns and adjust his program accordingly. As a result, teachers provide written notes, he uses a laptop and he doest more verbal tests. He's in grade 8 now and he's a solid B student. Hang in there Moms!!

JACQUELINE - posted on 10/24/2012

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My son is only 4 years old and is on Concerta. He's only able to take 18mg pills. He is not as hyper on the medication however his listening skills are still not good. I'm not sure if his therapist will up it again, we may have to try another medication completely.

Leonie - posted on 09/22/2012

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My son is 10. Diagnosed asd and ADHD at 5. Recently he has become violent, swearing and oppositional defiant. Swearing at me and hurting his twin. Is on concerts but lost as to what to do next.

Karen - posted on 09/12/2012

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My 13 y/o is also on 72 mg of Concerta. We have continuously increased dosages since he was 10, from 18 mg. I spoke with a developmental pediatrician (my son also has Asperger's Syndrome) who advised that 72 mg is the highest she would go with dosage on this med, though his pediatrician would keep increasing if I let him. I think we may be trying Focalin soon, as he has told me he doesn't think the Concerta is working very well again in school because he is not able to focus or concentrate on anything. I have researched different meds and I feel as though that would be our next choice for him.

MbcsMom - posted on 04/05/2011

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My son had appetite issues with Aderall and it also stopped working very shortly after we started so we took him off. We have been using diet instead of medications for almost 11 years now. We don't do the gluten/dairy free thing - we use the Feingold program (www.feingold.org) which eliminates synthetic food additives (and depending on individual sensitivity maybe a few foods too). I highly suggest it as a first try to anyone whose medications are no longer working or having unacceptable side effects

Tara - posted on 04/01/2011

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Same with my son....He was on Concerta for a few years and maxed out so we changed him to Vyvanse and this med made his more impulsive and kick started sexual tendencies at age 13. I would recommend Focalin....My son only has to take 10mg XR and he is 13 and 6'1 and 160 pounds. This med has been great for him.

Tanya - posted on 03/31/2011

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Hi! The same thing happened to my daughter. We switched to Vyvanse and that has been working quite well! I wish you luck!

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I f your child has been on the same medicine but different doses for 3 years you are doing pretty good.My son is 10 and has been on ADHD medicine since he was 7.We first tried Ritalin and Aderall but they made him violent.Vayvanse worked for the first year.We have been through every protacol of medicine that the doctor know.He is at 54mg of Concerta,which wears off by lunch time so we added a 5 mg Focalin then.He could not tolerate the 72 mg of Concerta.We are being sent to a behavior theropist because we are running out of options and his body seems to adjust to the meds too fast and he has to be on meds,otherwise he can not function properly enough to be productive in anything.He is also on Risperdone to help with the angry outbursts that they diagnosed as IED

Meghan - posted on 03/30/2011

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My son will be 11 in a month and he is currently on 27 mg of Concerta. It seems to be working for now, I'm a little nervous now that people are posting how it stops working after a while. The 72 mg does sound like a high dose. Good luck in your search!

Becky - posted on 03/30/2011

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My son was on 2-36mg Concerta every morning, and burnt through it too fast. He started at 27, then moved to 36mg, that was pointless. Went to 54...nope...72mg was good for a while...then burning through too fast.

Laurel - posted on 03/30/2011

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How large is your son? I am a pharmacy tech and 72 mg seems like a VERY high dose. I was not aware they prescribed that high of a dose, as I have never seen a script for 72 mg. It could explain his lethargy. My children are both on Concerta and my son who is also 13 is currently on 27 mg Concerta with a 5 mg Ritalin boost for homework.

Christie - posted on 03/30/2011

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I feel the same way with our son. We only medicate during school hours.. not summertime and not on weekends. He's 16 yhrs old and he has told us he thinks he's too immature to start driving... and I agree. Accident rates in ADHD kids are higher than kinds without ADHD...

Becky - posted on 03/30/2011

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The other thing too, at least per our psychologists, is do not medicate unless he/she is going to school, or doing an activity such as driving when older that requires a stronger focus. It gives them the chance to gain some weight with a normal appetite, and it gives their system a small break. I do no medicate my son on the weekends unless we have a function, I do not medicate during the summer unless for the same reasons. My son is 13, 5'7" and 112lbs. He's put on the last 12lbs since starting his Vyvanse because his appetite is back :)

Becky - posted on 03/30/2011

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He's probably approaching puberty, or advancing further through it. My 13 yr old had to be taken off his 72mg of Concerta because he was at the medication cap for his height/weight and he was metabolizing it far too quickly. He's now on Vyvanse, we've moved up to 50mg, and now going to add Zoloft for the emotional rollercoasters and some of the "tics" that can happen with all these meds. But Vyvanse is definitely better for him, he's more focused, he has his appetite back, and it's cheaper! Good luck! :)

Bellece - posted on 03/30/2011

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Unfortunately for us parents there is no easy answer. Just ALOT of trial and error. I just recently put my son (10 yr old) on a gluten an dairy free diet. It's been a month and his teacher has said that he isn't less hyper but seems more focused on his tasks and less distractible. I've noticed at home he has been less impulsive. He is currently on 27 mg of Concerta. Which he has been on for 3 years. His dr and I are very hesitant to increase dosage at this point because he has only gained 3 lbs in 4 years. In the last month of being on this diet he has gained 1.5lbs. I'm going to continue on this diet thruspring break and then take him off his mess while not in school to see if the diet has made a difference while he's not medicated.

I know it's so hard. It seems we find the perfect combo of med and routine and then something changes and it's up to us to find a new routine that calms the waters again. Keep at it. And don't be afraid to try something different. You can always go back if you feel you didn't make any progress. Good luck and you have all of us.... In the same boat.... With a short paddle.

Erin - posted on 03/30/2011

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Concerta stopped working after 2-3 years, too. Tried Adderall and Focalin...now on Vyvanse. We area looking into new med, Kapvay, for mood...anyone used it?

Donna - posted on 03/30/2011

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we found that too.....my 10yo is back on Ritalin and coming ahead in leaps and bounds :)

Christie - posted on 03/27/2011

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my son was on ritilin and concernta for years. It has been researched for YEARS and is safe. However it seemed to stop working. then the psychiatrist put him on strattera and that was a disaster. our next psychiatrist (we moved towns) told us that strattera doesn't work when a stimulant has already been used. That cost us a year of his school performance trying to get the strattera titrated. we then tried adderall for most of this school year and it made my son irritable. so we have just changed to intuniv also because he's having problems with emotional regulation.

Inez - posted on 03/25/2011

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There is a great resource in the Seattle/Tacoma area, and they have a website if you are not from this area.



Attention Deficits Disorder Resources, A Non-Profit

223 Tacoma Ave. South

Tacoma, WA 98402



http://w3.addresources.org/index.php is their website.

My former boss and his wife are on the board of directors - Kathy and Steve Engle. They have wonderful resources!

Chris - posted on 03/24/2011

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My son says some pretty mean, crazy things to when he's mad.. and we have tried everything. For example he would call everyone and everythig gay which was so upsetting to me, we would punish him for it and now I find that he will just move onto a new word and use it over and over again, but he's gotten smarter about it.. He no longer says it to us or in front of us, he shouts it outside or in his room where he things we won't hear him. I think getting a tutor is a good idea and I never thought of him doing better because of a different voice teaching him and telling him what to do..

Inez - posted on 03/24/2011

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My 14 year old son was on Concerta for a couple of years, but our Dr. switched him to Vyvanse about a year ago and he tolerated it much better. (no stomach cramps & headaches) As far as the school work, ours is lazy... He too takes no interest, but his social skills seem to be catching up to where they need to be. We hired a tutor from our church to work with him 1 day a week. He seems to listen to her more than us (different voice) .
He still says some pretty disturbing things about people when he is frustrated with them and tends to not take ownership of his lack of motivation or concern. On the other hand, he is super creative and just needs help getting the ideas from his head to the paper. We found that "mind-mapping" really helped, as he is very visual.
Hang in there!

Sarah - posted on 03/24/2011

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By the sounds of it Chris, you're doing all the right things :) We also tried Adderall but he had significant mood swings within days - even had hallucinations which freaked me out. Let me know how Vyvance works as this is one we haven't tried.

Chris - posted on 03/23/2011

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Same thing happend to my son.. He had been on it for four years.. three years of just 18mg which seem to work very well for him.. the doctor up it to 36 mg this year.. It helped but not like it use to.. His grades wern't that good, getting him to do homework has been hell, an no matter what punishement we would try as far as trying to make him be responsible for not doing his work, not completing it or refusing to do homework.. nothing has worked so far other than he likes to play baseball, and baseball practice has started so I use that as motivation to get him to try his best and do his work on the way home from school or as soon as he walks in the door.. So far so good..My son's doctor tried him on adderall and on the 8th day he turned into this raging monster, who took one heck of tantrum.. Now we are going to try Vyvance.. I would recommend seeing a behavior specialist or psychiatrics... that's what we are doing.. The therapist my son is going to see makes weekly home visits and she will visit his classroom to see how he's doing..

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