How do you deal with ADHD and Tourettes

Heather - posted on 07/29/2009 ( 15 moms have responded )

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My son who is 13 has ADHD and Tourettes. He makes minor vocal noises, rapid blinking and facial movements and sniffing down his nose. It is so hard to deal with. Don't know if there is any medication out there anyone has used to help with this. They seem to be getting worse and worse and I feel for him as although he can't help it, it drives us mas and he always has people judging him and looking at him. He is so much worse with his ADHD when he is not at school and does not have the structured routine as much as we try to keep a routine at home all he wants to do is play computer games or watch tv. He has no interest in going out and limited friends also contribute to this. Please give me some advice thank you Heather

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Louise - posted on 07/22/2013

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My 9 year old is dx with ADHD and Tourette's. Our neuroligist stated that sometimes kids with these movement disorders as well as others like restless leg syndrome and parkinsons have ferritin protein deficiencies. Ferritin is he protein that allows iron to bind and to store it long term in your body. If you have this deficency it affects the motor cortex and increases movement. Our neuologist did a ferritin blood panel that included alot of other blood measures too. He also said its not the same as checking iron blood level or the hemoglobin. The blood panel looks at a bunch of factors. The cure is iron with c we did a chewble vitamin over a period of 6 monhs his tics almost completely disappeared. He even learned to play baseball tic free... huge.. His ferritin level now is normal but on the low side. we have been off of the iron plus c by natures plus for about 2 months and only eye blinking has come back, for which our Neurologist wants him to take 400 mg of magnesium and 50 mg of b6.
so we r trying that next. he also stated not to take iron and magnesium b6 at the same time as they cancel each other out. Hope its helpful.

Janice - posted on 09/12/2013

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Hello Heather, my son just turned 15, he has global developmental delay with receptive, expressive language delay, cognitive delay, Tourette's, ADHD, and recently diagnosed with complicated migraines with pseudo seizures and sleep apnea. My sons tics are some minor vocal , sniffing nose, cracking his neck and shoulder, eye blinking. as far as medication my son has been on lots of different antidepressants, sleep meds, anxiety meds, meds for ADHD. also Ativan when needed for seizures. Personally nothing really helps the tics, anxiety meds can calm them. Just recently we finally got him in to a psychiatrist for children with Tourette's, it is the best thing that has happened because this DR. know more about how to treat these kids. We just took my son of the clonazepam because it is addictive, he is of the Elavil and has lost weight ( he gained weight from the meds). so now he is on Zoloft, Iron , B2 and a new med to help him sleep called trazadone. I just recently found out that my sons Iron level should be 200 his was 20 so he is on 2 high dosed iron for a while and take blood in 3 months. well just to let you know that kids with Tourette's usually have low iron levels for some reason they do not absorb it. you might want to check in to that because the iron level can affect there tics. I hope all this helps in some way, especially the iron that alone could help your sons tics. Take Care
Janice

Louise - posted on 07/22/2013

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Hang in there it's tough but the positive influence from a group of people he lives with may just be the thing that moves him to make little changes. It is hard not to feel like a failure but I have decided myself to live by there is no failure only options keep going till something works for everybody.. Ts and ADHD takeover the family life I have had to dedicate my time to teaching him sports like swim team and cross country running basketball boogie boarding board game playing while doing the same with his brother so far for us it's been a good plan but this is my career.. But a treadmill has been also a great tool he hops on and runs and feels in control of his energy.. It's a balancing act and a experiment.. TS runs in my husband family back to the 1800s we found a great grand mother in an asylum for nervous disorders for women.. So we think this gene is here in our legacy and so we need to make the most if it .. I tell my kids everybody has something about themselves they would change and sometimes you just can't always see their thing... We all at some point have to find our own way.

Suzanna - posted on 08/02/2009

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My daughter is 8 and 1/2 and has a diagnosis of ADHD, Tourette's and an anxiety disorder. We have tried several different meds and nothing is really making the tics subside completely. Right now, she takes Concerta for ADHD, Prozac for anxiety, Clonidine to help sleep last night and slow the tics and most recently, Risperidal for tics also. I was very hesitant about the Risperidal, because my daughter has been on it in the past and gained 15 pounds in 3 months and it tends to make her tired all the time. I asked which she would rather have, the tics or not feel good and she said not feel good. She has vocal tics, such as a hiccup noise, yelp/scream, repeating words, eye tics, head jerks, arm jerks and recently has started jumping one to three times in a row. When they first started, the hiccup noise drove us insane, but after a while, I learned to ture it out. Her tics seems to worsen during the school year and lessen during the summer months when we can relax a little in our schedule. She is beginning to worry more knowing school is right around the corner...she worries mostly about being accepted by her teacher and the other kids in the class. We have been told that treating the ADHD is important and does not increase the tics...this is newer research and many doctors still think stimulant medicine can increase tics. Our doctors have told us it is better to treat with medicines than to let things go, because of the self esteem issues than can arise from letting her be self conscious about the tics and her school work surffer from ADHD. They said anxiety also makes the tics worse. Our developmental pediatrician advised us to have our daughter see a counselor so that she could work out how she felt about the Tourette's and other things that bother...she tends to bottle everything inside.

Fiona - posted on 07/30/2009

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My daughter has very similar problems, although she is only 6. She sees a developmental pediatrician because she also has Asperger's Disorder. She has vocal tics, throat clearing, coughing loudly for hours, and head shaking. Her doctor suggested guanfacine. I was so scared to put her on meds, but this med is used for high blood pressure and given to these children in very low doses. It has been used a lot with children who have ADHD and tics. My daughter's tics have disappeared on the meds! It's been amazing. The staff at school noticed an improvement in her ability to focus and a decrease in her anxiety. When she started taking it, she became a bit emotional, crying when she wouldn't normally, but after a couple of weeks that stopped. Other than that, there have been no side effects. Good luck!

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Janice - posted on 09/12/2013

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to Louise Bounds, I just found out that my son's ferritin was 20 when it should be 200, the Dr. told me that most kids with Tourette's do not absorb iron, so he is on ferritin supplement twice a day, they say it also helps with the tics.
Janice

Louise - posted on 07/22/2013

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Hang in there it's tough but the positive influence from a group of people he lives with may just be the thing that moves him to make little changes. It is hard not to feel like a failure but I have decided myself to live by there is no failure only options keep going till something works for everybody.. Ts and ADHD takeover the family life I have had to dedicate my time to teaching him sports like swim team and cross country running basketball boogie boarding board game playing while doing the same with his brother so far for us it's been a good plan but this is my career.. But a treadmill has been also a great tool he hops on and runs and feels in control of his energy.. It's a balancing act and a experiment.. TS runs in my husband family back to the 1800s we found a great grand mother in an asylum for nervous disorders for women.. So we think this gene is here in our legacy and so we need to make the most if it .. I tell my kids everybody has something about themselves they would change and sometimes you just can't always see their thing... We all at some point have to find our own way.

Louise - posted on 07/22/2013

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Hang in there it's tough but the positive influence from a group of people he lives with may just be the thing that moves him to make little changes. It is hard not to feel like a failure but I have decided myself to live by there is no failure only options keep going till something works for everybody.. Ts and ADHD takeover the family life I have had to dedicate my time to teaching him sports like swim team and cross country running basketball boogie boarding board game playing while doing the same with his brother so far for us it's been a good plan but this is my career.. But a treadmill has been also a great tool he hops on and runs and feels in control of his energy.. It's a balancing act and a experiment.. TS runs in my husband family back to the 1800s we found a great grand mother in an asylum for nervous disorders for women.. So we think this gene is here in our legacy and so we need to make the most if it .. I tell my kids everybody has something about themselves they would change and sometimes you just can't always see their thing... We all at some point have to find our own way.

Heather - posted on 07/22/2013

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Thank you it is hard not to feel a failure or feel you are a bad mum to be doing this. It is one of the hardest decisions I have had to make but it is either him or my marriage that goes. Hopefully in years to come he will thank us and not hate us xo

Louise - posted on 07/22/2013

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Also, it wasnt just my sons tics that improved / almost disappeared he also became less ocd more socially appropriate, more logical and less fly off the handle able to handle lifes ups and downs. But we all know tics wax and wane.. I am still hopeful that magnesium and. b6 will have an effect. Maybe at some point testing for ferritin may calm them down? I also do remember seeing somewhere that Tourette symptoms are worst at 18 ish? I do hope options become available!

Louise - posted on 07/22/2013

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Wow sounds like lots has happened in 6 years.. I think you have done all that you can while giving him a home. Sounds like a group home/ alternative would be better? I am sorry he isnt wanting to take the meds. Hpoefully he will find a team of healthcare professionals who won't give up.. within his new housing. New life new chances dont give up hope but stay safe and let go of his struggle and heal your family. You all deserve the best!

Heather - posted on 07/22/2013

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Thanks he is now almost 18 and things have got worse as he refuses to take any medication. He did take an anti the sychotic for a while which reduced the tics and moods but now he no longer takes anything. We had to call the police out last year as his behaviour got so bad he threatened his brother with a knife, verbally abused me and pushed me against a wall and hit his dad. We got it calmed down again but the past few months have been he'll. His tics are in overdrive, his language is appealing and he is going out and staying out several nights a week. We are now at the point where we are looking to have him put out of the home as we cannot cope anymore. He says he does not feel welcome.e in our home but that is largely down to his behaviour. We have tried everything we can and done our best for him but it is going to wreck our marriage and has a serious impact on his 16 yr old brother. We are meant to be going on a family holiday in 2 weeks but it looks likely that he will not be coming with us!!!

Cathie - posted on 09/07/2012

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I feel you,I have a 12 year old granddaughter that I am raising that does the same thing and now is gettin violent with hurting herself when sheets mad .she is also is hurting her brother and sister now too. there has to be help out there for them and us.

Mary - posted on 08/01/2009

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Hi,

My son 12 has same Dx along with OCD . The summer is very rough without the school structure,( I here you.) We just try our best to limit the video games/T.V.(2-3 toal screen time.) and increase his exercise. Luckily our son has a few friends some with ADHD and one with ADHD and Tourettes too. Perhaps try a local support group to hook him up with some new friends. Our tics are transit, pending his stress level. So no med for that. Bring that up with his doctor they do have a med for those. We also see a very child psychologist for Cognative behavior therapy. This has really helped us and our son learn to cope. Hang in there.
Good luck. =)

Heather - posted on 07/31/2009

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Thanks we are due to see his consultand in a couple of weeks so we will suggest this if it is avaliable for him. We tried an anti-psychotic drug a while a go but to no effect. He is so bad at the monent and I know it will only get worse as he gets anxious about the new school term.

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