Intuniv Anyone?

Kari - posted on 12/05/2009 ( 568 moms have responded )

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We switched 3 days ago to Intuniv and was wondering if anyone else had children on it. Anyone know about Intuniv side effects? Any Intuniv reviews would be helpful.

thanks, Kari

MOST HELPFUL POSTS

Nicole - posted on 04/04/2013

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I would love to...
I cut out all dyes, artificial flavors, preservatives, processed sugars...basically ALL processed junk. The best way I can describe it is we went back to real, whole foods. Of course we did this in stages. First, with the Feingold diet. Then cutting out glutens, dairy, and anything with MSG. Now we only eat FOOD. I found by giving my son fermented cod liver oil, it has GREATLY improved symptoms as well. This provides necessary and essential omega-3s for brain function, but also tons of other vitamins/minerals that we just don't get anymore (A, D, K...etc). We thrive on grass-fed meat, free-range poultry (especially egg yolks), full-fat grass-fed butter and coconut oil, organic veggies and fruits. There are SO many pesticides, toxins, and JUNK in our food nowadays that our babies are not nourished. How do we expect them to thrive and "get better" if their brain isn't even getting the proper fats it needs to flourish? This is my passion, and I have greatly turned things around for my son (whom had dyslexia symptoms as well). Check out my blog if you'd like. Good luck!

Christina - posted on 05/12/2010

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My 11 year old son has been on Intuniv for about 7 months now and I think it was a God send. We tried 6 different prescription meds and 2 herbal and nothing seemed to work or if it did the side effects were horrible. He had terrible mood swings , a bad attitude and didn't want anyone to touch him. He had become a loner. I believed the stimulants were the problem and took him off all meds until a new Dr. told me of this new drug.. My son is back to his old self. He loves everyone and so sweet now.. I tell everyone I know that has had the same issues with their children.. I don't know what we would have done without this medication.

Stefany - posted on 07/02/2010

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lol. ya ok. i have great parenting skills. i have worked in child development facilities for over 4 years and have my AA in child development. i know my stuff. today however i got my call back from regional center (you should know wht that is if you work with children) and they said that he is autistic. i do what ever i can to control his behavior, but he just has certain things about him that me nor his father can control. and yes its ADHD as well. he was examined by a psyc 2 times at 2 different facilities. plus, the only reason i felt the need to attack you is because you attacked that other woman like you knew it all. And you dont. i need to see yor PHD before i give you a LITTLE credibility.... and another thing, every child is different. so dont base ur accusations on the few cases u heard of.

Heather - posted on 01/27/2010

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I tried Intuniv with both of my kids. My son, 11yo, was on Daytrana with Tenex, but we wanted to try him on just a non stimulant. Didn't work for him, we titrated up to 3mg and he was on that for a few weeks, but it made him too tired and did nothing for his focus and hyperactivity. He is back on Daytran and Tenex, and is diong well. BTW, he can not take Tenex by itself, it does nothing for him without his stimulant. My 14yo daughter has ADD inattentive type, and was on Vyvanse 50mg for about 18mths until she asked to go off because it was making her very emotional and irritable. She titrated up to 4mg of Intuniv and is doing well on it alone. She said that she does not have as much focus as she did on Vyvanse, but she feels much better. From what I have heard so far the Intuniv seems to work well for inattentive type, but not so much for hyperactivity.

Donna - posted on 06/23/2010

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Tracey, ease up, you may be right, but no need to scream at Stephany.....there is already so much anguish in having to deal with this, no need to add to it. we are all learning, and seeking answers - that's why we come to this blog. a little less self-righteousness and a little more compassion please!

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Amy - posted 4 days ago

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My son is 7 he has epilepsy a cognitive delays and ADHD severe tried all natural first did behavioral programs but there was still some things he was having a hard time with right now he is on dexedrine and intuiv 3 mg since he has started he is able to focus wants to be around his peers is more kind his aggression has come down and is learning to think before he acts and I noticed his confidence has come up I find that the 3 mg will make him sleepy so we give it to him at night and he has bin sleeping so much better. I also struggle with ADHD I know what it feels like and I can relate to my son I chose to go on medication first befor giving it to him it is so nice to see him so happy now and feeling proud of himself in the things that he does. To all the moms out there that have tried everything it is about your kids we want them to be happy and feel good about them selfs yes medication is scary you can choose to use it or not it is are decision. no I dont like giving it to him but its not fair to him if he has to struggle and we are doing everything we can to help him succeed. Please if you dont have a child that struggles with autism ADHD cognitive delays or any other disorder please do you research first before criticizing all the moms out there for what they're doing yes you are entitled to your opinion for sure but just imagine if it was your child and you had done everything you possibly could first before medication so to all the moms out there that just want the best for there kids keep being strong dont let people tell you what you should do or not do if it works thats amazing if it doesn't just keep trying . Peace and love to all the moms that just keep working hard

Eman - posted on 03/23/2014

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My son 7 years old, diagnosed recently with ADHD and he is on his second day of Intuntiv, 1 mg.
I would like to ask after how many days I can see effect on his ADHD behaviours?

Lisa - posted on 03/15/2014

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My daughter is 9, we have went from 1gm to 4gm and it does work with ADHD but she also has O.D.D. And when she is taking the Intuniv she is calm but has big anger issues, and she does get sleepy. There are 4 other siblings with her and it just takes a toll on them. They don't want to be around her.

Debra - posted on 02/25/2014

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Gosh!! This is my first time seeing a forum about kids with ADHD. a lot of the stories here sound so similar to mine!! It is VERY difficult! Mine son is 12. Trying to find solutions is daunting. ....I'm trying intuniv.

K - posted on 02/16/2014

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My 7.5 year old son takes 25 mg Strattera (on his 4th week) and is on his 2nd week of Intuniv (just increased dosage from 1 mg to 2 mg). I feel like this is the combo we have been waiting for. He had severe tics and appetite loss on Ritalin, Vyvance, and Focalin so the doctor decided to go the nonstim route. Strattera takes 4-6 weeks to be fully in the system so my son's ped prescribed Intuniv as an adjunct while we wait. I told him that I will probably want to keep it though - my son's appetite is back, he is sleeping well, he has great impulse and emotional control, is very happy and mood is balanced. The two together are like a dream team. Just one mom's opinion!

Rhonda - posted on 02/15/2014

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I took mine off. He blew up like Mrs puff. Was super lethargic and kept having "accidents". I have him on regular methylphenidate where I can control the dosage as needs and I took him out of public school to homeschool him. We are all much better.

Michael - posted on 02/11/2014

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My 11 year old has just been perscibed intuniv and our doctor said to give it at night before bedtime

Christine - posted on 01/09/2014

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My son is almost 16. He's been on intuniv for about 6 years. He's also on concerta. Noticeable difference in behavior. I still wonder about long term effects. I'm thinking of taking him off intuniv, with doctors ok. I heard there was just an article in the nypost about intuniv. I haven't read it yet. Maybe get some information from it.

Linda M - posted on 01/08/2014

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My son is ADHD along with Autism and some other issues, He is 7, it took a yr and then some to get to where we are today. It' was Hell! For him and I was a reck. Trying to work, being called to the school, meds changing side effects which was horrifying needless to say. It was truly a nightmare. I had to give up my job and give all my time to finding a dr that dealt with just children and meds. Along with others. It was not easy. But then I found him. Long story short we are on a much better road today. Today is my sons first day on intuniv along with focilin and with some other meds. I can honestly say I see a difference. Without being so tried and moody and anxiety is way way done. I hope after a few weeks it will be just what he needed. It has been so hard on him. At first I did not want to hear anything about meds for then, 5 and half year old. Adhd is the thing they tag your child with. Well I'm here to tell you if you think something else or something is just not right. Find a new doc. You may even see 3or 4 before you get the bigger pic. There may be underlying issues that your doc is not really educated on. Because we could have been going thru this for years and never had known about the Autism, severe anxiety, severe ADHD, along with a few other things, that I was concerned about, told the school....nothing until I got him into O.T. And she validated what I thought all along. It is truly a journey. No matter what the diagnosis, but without the right docs, meds and whatever your child might need it will be a hard one, for sure.

Diane - posted on 12/30/2013

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We've been on Intuniv for about a month. He is napping more but not sleeping through the night he up about 4am every morning with a very loud laughter and jumping all over the bed, i give him food to come him down and give another dose of Intuniv to get him back to sleep. it's like he has these highs and lows all throughout the day.

Kelisha - posted on 12/21/2013

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no it's not normal for your child to sleep all day while taking intuniv. i mentioned to my daughter's doctor when she began sleeping more after d/c her vyvanse. while just on intuniv she began sleeping more. after about a week, it got better. you should definitely mention this to your child's doctor.

APRIL - posted on 12/16/2013

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My 8 year old son started Intuniv 6 weeks ago,first 1 mg for a week,2mg for a week,now 3mg for a month,the school is seeing a great difference,I don't see a great deal but he takes it in the morning so I wouldn't.The only thing I am noticing is weight gain,increased appetite and trouble staying asleep at night.

Michelle - posted on 12/12/2013

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My mother, who is a nurse, recommended that for you son. it does caused droziness, its recommend to give it to the child at night before they go to bed. the effects of the medication should last 24 hours. NOT recommended to stop taking it at anytime unless told by doctor, should take three days for noticeable improvement.

Lisha - posted on 12/07/2013

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My daughter is 6a i just started giving her intuniv and she has been sleeping all day is that normal

Rhonda - posted on 11/21/2013

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Plexus has magnesium in it. Many kids that have adhd and autism are super low on magnesium. I will bet that is what is helping her kiddo. I wish I could get a real health drink like plexus for my son tho because he tries to steal mine bc he loves the flavor! Lol

Janette - posted on 11/17/2013

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TCA =warning by Australian government


I have been giving my son with aspbergers intuniv and I weigh the pros and con's. He sleeps much better but has a melt down or gets angry before sleeping. I agree with someone else he is less restless during the day and focuses better in school he isn't as distracted. What I hate tho is my doctor wants a blood draw every six mos to check liver, kidneys and blood cells. This continues to worry me. We already have him on a gluten free casein free diet. The casein or milk made his tantrums plummet so we saw huge results from swit Ching him to almond milk. I personally prefer more natural whole food supplements because these kids need a TON of extra vitamins
I am going to talk with our Dr after putting him on isogenix shakes daily which will give him the daily dosage of vitimisns his body needs, adding the cleanse before bed which will aid in cleaning out toxins he faces everyday and strengthening colon, and digestive system. In my opinion these meds have toxic properties chemicals and serious side effects. I wish I would have heard about isogenix before now we have to slowly take him a ff of this. Isogenix also has a natural herb called product b. Do some research on it. I will be giving it to my son. Anyone with chronic illnesses s inc ADHD or Autism etc can majorly benefit from telomere lengthening. I do not sell isogenix in fact I hate that this product is sold in multi level marketing industry but I believe I is the best natural product out there by far! II'll let you know how it goes.

Janette - posted on 11/17/2013

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I am confused as to why you are giving your children a weight loss product? I see that plexus is approved by the FDA but several other countries will not approve it because an ingredient can cause psychiatric issues, stroke, and even heart palations. I suggest looking up plexus side effects and what the TCA has to say about this t

Karen - posted on 11/13/2013

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If any parents would like an all natural way to help your child there is a product called Plexus Slim that can help. In no way am I saying it will cure any medical issue. Like any other medicine I would recommend consulting your childs physicin. Here are a couple of testimonies from parents with children with ADHD and how the product has helped them. If you have any questions or would like more information you can email me at kazmir1313@yahoo.com. This is not spam its an acutal product that works. I would be more than happy to send more testimonies or add you to the testimony page on facebook and you can read the testimonies yourself.


Jenny Colding
Okay so I am going to brag about Plexus a little bit more.... Guys Aiden has been having a tough time in school and they were telling me that he had ADD and that they thought that I should put him on meds for it. Well I hate those medications and I did not want to put him on something that was going to make him feel like a zombie for 8 hours of his day. They were in talks of retaining him in kindergarten because he was testing low in all subjects. Well I was doing some research and noticed that on the testimonial page for Plexus, people were giving just the drink to their children who had ADHD.... So in March, (with thee approval of his pediatrician, who buys Plexus from me as well) I started giving Aiden on half a bottle of Plexus in the am before school. When I met with his teach a couple weeks ago she said that he was doing better, but that he had one more set of test to take and then she would evaluate him then. As of his last 9 week report card they were referring Aiden to be retained. I met with Ms. McCall yesterday and after Aiden's test scores in the high 70 to low 80, I AM PROUD TO SAY I HAVE A 1st GRADER on my hands... I am so proud of him and so thankful for Plexus and what it is doing for my family in so many different ways. His teacher thanked me for working hard with him and I said you should thank me and Plexus.... So Excited for him...



Leslie VanSinderen tells how Plexus has helped her 8 year old son with ADHD.
This is my story on how Plexus Slim has helped my 8 year old with ADHD. Since my son was about 3 years old, I knew he had a problem. Then, and over the years I would notice that he was overly hyper, could not concentrate, liked things to be routine, would lie and believe it, had anger issues, uncontrollable noise would shut him down. Examples, radio, vaccums, tv, people talking loudly or laughing loudly. It hurt his ears so bad he would be in fetal position. I say uncontrolable because, if he was the cause of the noise, it didnt bother him. I was told from 3 yrs. old that hes just being a little boy, he needs discipline, theres nothing wrong!! I fought with his teachers because for little things he would get in a world of trouble. If he needed to tell his teachers something important, he would try and tell them and they would very rudly tell him to sit down and to shutup (not in MS schools!!). He would argue with them so he could say what he needed to say because, if he didnt say it, he would forget it. Then that would upset him. He needs one on one and eye to eye. Comeing from a family of teachers, I know thats hard with a class full, but not impossible!
His self esteem started slipping away. As parents, we try so hard to build our children up. Because of getting in trouble at home for things he couldnt help and for getting in trouble at school for trying to tell a teacher something, he was going down. Thought the world hated him. I actually found that on a piece of paper in his room,"Why does everyone hate me"! Not cool yall, just not cool!!
I am a parent who does not like medication. Thought if I could get teachers, friends parents and who everelse, to understand and to help me, I could get away with no medication. Everyone was awesome, but the teachers. Again, not the MS teachers. I get so angry just thinking about how this one teacher did him. 2 years ago, my huband and I broke down and had him tested for ADHD. Doc confirmes our thoughts and he is put on Adderall 10mg twice a day. Ofcourse it started helping him and I was ecstatic. I did not like what he was or the side effects of it, but with the doctors assurance, we stayed with it. Plexus came into my life a few months back. I have used it, never thought in a million years of having my boy take it for ADHD. He has been on Plexus for less than a week. AND thy hyperness has cut down, but hes not a zombie! The arguements have cut down, the tantrums have cut down, his stress is gone, self-esteem is coming back up, he is sleeping at night, he can sit at the computer and play a game with out bounceing in the chair. He no longer has the dry look in his eyes. They sparkle and his smile just shines, his laugh is one of the best sounds I have heard in a long time.
When your child struggles with ADHD, ADD, Autism, etc. You, as a parent, start doubting yourself. What could I have done different, what am I doing wrong, why cant people just accept my child. Just like its not their fault, its not your fault. Be aware of the issue at hand, and do your best to help. A child with either of the above or more, is not spoiled, does not lack discipline, they are loveing and careing children, they are smart beyond their years. Give them a chance. Learn from them. Heaven knows, I have learned so much from my 8 yr. old. But please, if you dont want your child on harsh prescriptions, if you dont want them to go through the world feeling unwanted or unloved, etc. Please give Plexus a try. From mother to mother, from parent to parent IT WORKS!!

Serena - posted on 10/29/2013

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We just started our son on Intuniv about a week ago. He has ADHD and is 8 yrs old. I was extremely nervous about meds and Intuniv seemed like the safest thing to start off with. We give him 1mg at bedtime and so far so good!! His focus at school is better and he is getting his work completed! His behaviour at home is better too! Same kid, just toned down a notch! No other issues other than he was slightly tired in the beginning and giving it at bedtime, it wears off by about supper time the next night. So far I'm very happy with it! Hope this helps:)

Dini - posted on 10/20/2013

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Anyone know if intuniv is long term medication? Will soneone whostarts with it eventually be able to go off it?

Cherita - posted on 10/20/2013

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After trying a few other medications, my five year old began taking 1mg of Tenex for about a month. Also had to give him melatonin at night because he would have weird and sometimes scary dreams through the night. Because he was starting to have some mild outbursts at school and not be as focused we switched him to 1mg of Intuniv. He has been on it now for four days and he is nothing but a zombie. His eyes are glassed over and he wants to sleep 90% of the day. He definitely has SPD although most doctors won't actually recognize it. He may possibly in the autistic spectrum also but still waiting for the results. He doesn't play anymore, doesn't want to jump, swim, nothing. I know the medication won't fix him, and he does go to both speech and OT therapies but without the medication he can't attend school. Is anyone else having these issues? I saw where "M Frank" is having similar problems including getting answers as to whats going on. Sure would love to visit with you. I am so frustrated, sad and lost. Also, he can not take any "stimulants" because it makes his impulses go crazy, he would be moody, cry, angry, etc for no reason. I want him back the way he was, funny, loving, full of energy but then again, the whole purpose of this was that he could go to school and learn and enjoy it. At the same time, you feel like a horrible parent. I dread having to give him medications. Makes me so very sad every time. Any words of encouragement or other medications (even over the counter) anyone has experienced? I just want him to focus. He is NOT ADD or ADHD. Thank you.

Angie - posted on 10/18/2013

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Try Buying the meds from a canadian pharmacy you will not beleive how cheap it is there are many I trust NorthWestPharmacy.com. They do price match so I go to pharmacychecker.com there you find the lowest price then I send them the address where is cheaper and they equal the price.

M - posted on 10/06/2013

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My 6 year old son(who is the youngest of the boys in his class by almost 6-9 months,of first graders ...hes the tallest , 4'6") is currently on 2 mg of Intuniv...we tried increasing the dosage by 1mg(for 2 days) and I give him the dosage at night time after having him take it in the morning for 2 weeks ...i have been going crazy the past 2 days on the 3 mg he has been getting very upset and crying and sensitive and angry then falls asleep but only during the morning. He was falling asleep in school at first (on 1mg)and a little weepy in the morning according to teachers and his aide. His dr said that this was normal and the sleepiness would go away. It did but then i was getting reports from the school that he was hyper and not so focused.,,the dr increased to 2mg...this is an on going issue and my son has an iep and an aide but Im feeling like Ive tried every medication!!! Either too sleepy,aggitated,sensitive,crying or angry!!! Ive tried adderrall,ritalin,vyvanse which he was on for 1 day and immediately taken off from that,focalin and now intuniv which i thought was the miracle drug!!! But now im having doubts again. I also tried herbal supplements from the internet but it was just a waste of money. Tried gluten free and it seems like he got more cranky. I am now in the process of getting an appointment for him to get retested using Quotient. Im hoping this will give us the information that we have been looking for...does he have adhd? or is it just SPD???Or does he have a form of autism??? Is he on the right meds? and what dosage should he be getting???Right now the school is saying that he has ADHD(got him tested outside of school also),SPD and maybe a high functioning form of autism??? Hoping that all the money.time and testing he is about to go through again can get me the answers to how I can help him??? this medication is driving me crazy!!!! and him too :( I genuinely feel for all of the parents on here...this is HARD!

Linda Joann - posted on 10/05/2013

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Our son was perscribed this a few days ago. Reluctant to start him on it after telling me about blod gressure risk. Our son at 2 months old had open heart surgery. So little sceptic. Still waiting on Cardiology to clear the med.

Thanks, Linda Smith -- Fl. Keys

Monica - posted on 09/21/2013

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We have a 10 year daughter with RAD and ADHD, PTSD symptoms. We tried Kapvay for about 6 weeks. We started with 1 pill in morning and 1 in the evening. At first it was great. Tantrums subsided, constant motoring about stopped, but after about ten days we went back to the normal crazy unpredictable antics of before. We upped the dose to two pills in the morning and two in the evening, and again we had great improvement for about ten to twelve days. She was sleeply for the first few days but it was an okay trade off. We then went to three and she became a zombie. She lost her smile, fell asleep in school and everytime we got in car. We have now moved on to Intuniv and her smile is back and she has ALOT of energy, but is not so oppositional, argumentative and unpredictable. The only bad side effect for Kapvay was the sleepiness but in the end e good effects never lasted more than twelve days and the sleepiness got worse.

Lisa - posted on 09/16/2013

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Has anyone tried Kapvay or Focalin for their child for ADHD? I have a daughter, age 7, who has been taking Intuniv, 2mg in the morning, and does well in school, it has also calmed her down from being so hyper, however, the moodiness, and anger outburst have become more and more frequent. Can't live like that. Thought I would ask about Kapvay or Focalin to see if there are some better alternatives than Intuniv.

Kathy - posted on 09/06/2013

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My 12 yr old son is also on Vyvanse in the morning and Intuniv at night. He was doing good in the beginning but I noticed that he was having a hard time after school concentrating on homework. We decided to put him on a short acting Adderall 5mg tab after school. That has helped with the ups and downs that the ADHD child gets when the meds wear off. My son has been on meds since he was 5. It started out he was on Adderall XR but he kept needing increases. We switched to Vyvanse and he has been on the same dose for 2yrs. Clonadine was his night time pill but he was getting crazy night terrors. Switched ti Intuniv and problem solved. Good luck with the medications I know the struggle moms go through deciding what is best for our children with ADHD.

Latoya - posted on 08/28/2013

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I found my child to be an emotional wreck no matter what she is on. Trying intuniv one more time if this doesn't help, I've got to find a natural way to handle it. Any suggestions?

Dads Care - posted on 08/21/2013

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Find out how much it costs first and go to the manufactures website, sometimes they have programs that help lower the cost of medication when needed. Good luck !

Dads Care - posted on 07/05/2013

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As an adult are the side effects similar to those experience by children on these medications ?

Chris - posted on 06/25/2013

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Intuniv has made a huge difference in my 8-year-old's life. It has allowed him to focus and he is right where he should be academically.
Side effects are: trouble sleeping, but we deal with that with 1 ml of Melatonine.
Also, when he was on 2 mg of Intuniv, his blood pressure got too low and he seemed sleepy too often. We lowered it down to 1 mg and that is not an issue, although the blood pressure is still on the lower side, just not alarmingly low

Arian - posted on 06/19/2013

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Vyvanse was horrible for my son who is 8 and about 65 lbs. He was angry all the time, had nightmares and would wake up screaming. I have had 4 other ADHD parents tell me the same about their kids on Vyvanse.

Dads Care - posted on 06/19/2013

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Don't let the teachers tell you how to dose medication. His doctor should be able to manage any increases or decreases. Only parents with special needs children understand what is like to try all these meds until you find something that works. My son was on focalin and 5 1/2 mg twice a day while he was calm in terms of behaviors he had an anxiety of being outdoors and developed a fear of bees. We started him on Intuniv about 1 month ago he is on 2 mg a day works good in that he has a personality and can control his impulses we tried at one point the Intuniv with 1/2 focalin but oddly enough he developed a facial tick .. It was awful, but thankfully it disappeared as the focalin wore off... He is just on Intuniv and doing good.. Just look out for side effects if any doses are increased. But most important let YOUR DOCTOR manage your child's meds not his teachers.

Christina - posted on 06/09/2013

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My son takes intinuv as well and played baseball past season and did fine just made sure he stayed hydrated

Kimberly - posted on 05/28/2013

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Tried this with my son who is 7 and he literally stayed up ALL night and said he wasn't sleepy and went to school and did fine all day. I took him off of it and he now takes vyvanse 60 mg every morning and clonidine hcl 0.2 mg at night to help him sleep. The vyvanse wears off about 4 pm everyday and he goes completely crazy! Like screaming, fighting, breaking things, and hitting and cussing me. He has ADHD, odd, OCD, and interminnent explosive disorder. Dr won't try anything but the vyvanse and he is up to the highest dosage for his weight and age. Anyone else know of anything I can try? I'm desperate!! I have 2 other children and this is effecting all of us!

Becky - posted on 05/27/2013

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My son has been on Intuniv since 2009, he takes this along with his Focalin XR. Intuniv has worked really well for him. Prior to starting Intuniv his teachers were constantly asking us to up his Focalin XR. Our doctor felt he was on a high enough dose of the stimulant so he wanted to try Intuniv since it is a non stimulant. He has been on 1mg since starting Intuniv. His teacher's noticed a difference in him and stopped asking us to increase the Focalin XR.
Unfortunately, I just found out that my insurance company will stop paying for Intuniv in August so we are praying that my son will do well without it.

Becky

Alexz - posted on 05/23/2013

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My son has been on intuniv for about a month and a half and the past two days he has been complaing about a pain in his leg I noticed that it's a bit swollen idk if it has anything to do with this medicine... if anybody has any information please let me know

Nonnie - posted on 04/25/2013

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Very true Terri. We are all not Dr's. I am full of questions as well. we all need some help sometimes

Deirdre - posted on 04/22/2013

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Try removing dyes with numbers after them to address in aggression and anger issues. If it works, then your child is hyper-sensitive to dyes and they should be avoided. Won't cure the ADHD though.

Amber - posted on 04/22/2013

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My son just started on 1 mg of intuniv, then upped his dosage to 2mg for almost 3 weeks. I can tell that he is a little better at home, but seems to get irritated and angry very easily. So far, his teacher has noted his angry behavior, but his focus issues are a tiny bit better. Just wondering if anyone has had the same issues, we see his doctor tomorrow for more guidance.

Kim - posted on 04/08/2013

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I found out my bby girl has adhd the dr started her on intuniv so any feedback about this med would be greatly appreciated

Karolyn - posted on 04/08/2013

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My 9 year old son just started Intuniv (2mg) yesterday, I was reading that they should avoid dehydration and getting "overheated". My son plays baseball (and the season just started). Was wondering if anyone else on Intuniv is into sports and has there been any cause for alarm?

Karolyn

Jose - posted on 04/04/2013

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thank you! Im sure I will have more questions cause I don't know how to get most of the things you have mentioned. That is for another day. Again thank you so much for the information

Jose - posted on 04/04/2013

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Thank you for your response. I did read the lierature. It sounded alot better than Vyvanse. My son also has dyselixa and Nystagmus and great fear of everything. We are going to seek therapy for him. But please explain how feeding my child better food will help?

Nicole - posted on 04/04/2013

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I'm sorry the physician told you this...unfortunately it is not the only drawback. I suggest you download this full safety information sheet straight from the Intuniv website http://pi.shirecontent.com/PI/PDFs/Intun... . This medication was originally formed for blood pressure regulation, so I assure you sleepiness is not the only drawback. We have almost weaned our son off all medications, including Intuniv a long time ago. I've found with a special nourishing diet and the right coaching/mentoring/counseling/therapies, our child has never thrived so well. All parents here need to look into what we are feeding our children...and change that first and foremost. Many times ADHD symptoms are their little bodies reacting to the toxins we are stuffing them with. If you're interested in natural healing, I write about our journey and many other things at naturalemama dot com. But, the least you can do is check out that safety guide.

Jose - posted on 04/04/2013

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My son just started intuniv today 1 mg. He had being on Vyvanse 40 for two years. the last couple of weeks were a complete disASTER. The only draw back our doctor said was he might be sleepy. Is that really the only drawback? If that is the only drawback I would welcome it!!!!!!!

Thanks

Julie - posted on 04/03/2013

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My son is 14, he has been on many different things for his moderate ADHD. He has had side effects with everything. This year he is full fledged into puberty and has developed depression and anxiety. He has had suicidal thoughts. We took him of all ADHD meds as they an cause or heightened anxiety. He did ok for a while, self regulating but recently the impulsive behaviors have increased and we are just starting intuniv, only because the behaviors at this age may effect his self-esteem. He has been taking an antidepressant for about a month and is in counseling. I believe his mind and body are in conflict and that is causing the anxiety and depression, as he is not maturing as quickly as his body is developing. We are providing all the love & support we can give to help him through this tough time. I think when his mind & body catch up with each other, he will be fine. I hope this helps.

[deleted account]

From the WebMD Intuniv reviews, I decided we would not try it. As I read along and see all the postings, especially from frustration, I have to ask, who has tried adapting thier childs diet? You have to completely eliminate artificial food colorings, eat as much organic fruit as you can, especially if you eat the skin or it does not have a protective skin. ($ this helps with cost of organic). All organic is probably best, like those veggies without a protective peel as well. Anyway, before or while you are intruducing medicines, please work on diet. Look into a great resource I have used...3 Steps to Conquering ADD/ADHD. website is www.3stepsadd.com, I believe. Kids with ADd/ADHD need to watch thier diet, and get good vitamins. I am just a mom, who has had great results for my son, with a variety of diet changes. Look up the Brain Balance Center, or the book by Dr. Robert Melillo, Disconnected Kids. I continue to find ways to help my son, without the medicine. Though I understand it is needed, and a must sometimes, but youshould try to do all the other things too. You might find you dont need meds as often, or as much. I have read about Intuniv side effects including "accidents". Many kids wet themselves and do not even know it. Blood pressure, all of those listed are important to watch for. Can be so stressful, good luck, and report your experience.

L - posted on 05/06/2011

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Why in the world would you agree to giving your child a medication without thoroughly researching it?



Intuniv side effects are MAJOR and can be easily found on the manufacturer's website or by simply reading the prescribing information that comes with this medication.



I am truly amazed when a parent doesn't do due diligence BEFORE any medication change.



Really????

Lori - posted on 03/30/2011

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I just found this fine, fine print Intuniv review on the internet. I guess I have my answer:

"Intuniv Side effects



Different studies show different side effect profiles for Intuniv. Some say that it has about the same rate of issues as placebo, while others show that around 10-15% stop using it because of some side effect. As far as psychoactive drugs, a 10-15% discontinuation rate due to side effects is on the lower/medium range.



The side effects of Intuniv also depend on its particular use. When used in combination therapy with stimulants, for instance, it has much less rates of sedation and sleepiness, and users seem to report less problems. This is probably because its sedative effects that lower blood pressure are counteracted by the stimulants effect of raising it.



Some of its side effects take time to start showing up, with sedation in particular starting after 3 weeks of treatment.

Most common:



30-40% report sleepiness



25% report headache



17% in one study reported upper respiratory tract infection



10% report sedation



Other common side effects include dizziness, nausea, irritability and reduced salivary flow.

Concerns



In one study, 5 participants out of 262 who took Intuniv experienced syncope, or “temporary loss of consciousness.” In layman’s terms, they fainted or blacked out.



The clinical trials dedicated to exploring safety did not have such incidences, and it’s possible that the syncope events were environmentally based. One of the sufferers, after all, had a history of such issues. And guanfacine has a long history of use. So while those numbers are alarming, they are explainable.



Other possible side effects that may be an issue: head injury, suicidal ideation.



Like with all psychoactive medications, people using Intuniv should be monitored for anything abnormal like increased feelings of depression."

Lori - posted on 03/30/2011

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My 9 year old son started taking Intuniv 1 year ago after becoming increasingly impulsive. He had an evaluation & EEG & was diagnosed with (their words) a sub-catagory of ADHD with an emphasis on impulse disorder. At first it really helped him but slowly lost effectiveness over time. It was the 1st medication we tried after 1 1/2 years of trying everything else. We slowly increased his dose until we reached 4mg. About a month ago he threatened suicide (was on 3mg at the time) & his emotions were all over the place. His pediatrician did not think at the time that it was a side effect of the medicine so we increased his dose to 4mg. For 2 weeks he did awesome then his emotions tanked again. He was never depressed before. He is being picked on & we have been dealing with that. This past Friday he wrote out a plan for suicide so we ended up in the ER for a psychiatric evaluation (5 hours). They determined that he was not a threat to himself & discharged him saying that they believed it was an Intuniv side effect. In some rare cases it does cause depression & mania. We were advised to stop taking the Intuniv. Tomorrow we are going for another full scale psychiatric evaluation. You just never know how a medication is going to affect your child. I did not ever dream that it would cause this depression. Good luck to everyone. It really is a journey.

Teather - posted on 03/21/2011

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My daughter is almost 9 she was on Vyvanse and that was a HORRIBLE experience. So the doc. put her on Intuniv, it was going well for the first 2 or 3 months but now, it is hard to get her of the couch and play she is gaining wait, she is just to tired, falling asleep in class. She is constently complaining about stomach pain and headaches, She's not eating as much either. We dont give candy, extra sugars, our pop. We have a very well rounded diet. We are going in to change meds due to Intuniv side effects.

Renee - posted on 03/19/2011

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My 9 year old has ADHD and I am sure he is ODD as well, I believe they go hand in hand. He has been on Adderoll, and Concerta since he was 7. I tried all of the behavior Mods out there. We went to UB and went through their ADHD program to avoid meds, but in the end, he ended up on Adderoll. We did not like this med, so many side effects. It controlled his hyperactivity and focus, but his mood swings were horrid and he tantrummed constantly. Then we went to Concerta, which is what he is on now, and it has worked better than the first. But I hate the fact that he is on a stimulant, he's still so scrawny and his focus is beginning to fall apart again. he still has major melt downs and it is so frustrating for us. His teacher tells us he is one of her brightest kids but he can't focus long enough to take the tests, he rushes through and makes careless mistakes. When she verbally asks him the questions, he knows the answers but cannot sit long enough to put the correct answers down. We are frustrated with his behavior, his lack of caring, his nastiness and aggression. I am always looking for non-stimulant meds, someone told me about Strattera and then the doc said they didn't like it. So I am wondering about Intuniv because I just saw a commercial for it. I just don't want to put him in unnecessary risk of heart problems. So far, all sounds great with the Intuniv.

My son's behaviors started early too, actually by 2 or 3. I had him in the ADHD UB study at age 4, and we went through all of the behavior and indepth positive behavior reinforcements and by age 7, it was clear that he had to be medicated because he could not control it. In the beginning, the behavior issues and hyperactivity issues were controlled by the positive reinforcements and IT was a LOT of work, constant reinforcing the behaviors we wanted to see and giving kudos and prizes when we saw them and then consistently blocking the ones we did not want. I believe you may not be able to diagnose a child early, but with two boys three years apart, you can definitely tell at age 2 or 3 that there is a problem. They go beyond normal terrible two and terrible 3 behavior and hyperactivity. They do everything to the extreme and their tantrums are unbearable. We chose not to medicate because he was too little and when we did medicate him at age 7, it was the most difficult decision I ever had to make. I am a teacher of 2nd grade children and I know and see the side effects first hand and I vowed to never medicate my child, until I had one with ADHD. Let's not judge people, we all know how devastating, demanding and taxing it is to have a child with ADHD. We should just help one another deal with what God gave us. So I am going to talk to my doctor about Intuniv reviews and try it before the summer, because I do not medicate him in the summer. I just let him be a boy.

Kristi - posted on 02/10/2010

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update...we went to the dr yesterday and the intunive is causing my sons blood pressure to drop and his pulse. We left him on it as its not too alarming to remove but we were not able to increase it. This is something you must monitor when your taking it.

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