need feed back on Vyvanse........

[deleted account] ( 46 moms have responded )

my daughter just started Vyvanse 20mg once a day, after trying foclin xr for a month and did not last long enough .

MOST HELPFUL POSTS

Casey - posted on 12/04/2009

22

23

1

Quoting Nancy:

Well, today is day 2 on Vyvanse. I dont see a big diffrence, but what I do notice is that Chloe seem's nasty. Is that normal ?


I am no Dr. by any means but, in my situation, you should have started to see some kind of improvment and in CAms case the nastyness came because the dose was to high.  If I was in your shoes I would keep a chart of what your seeing and at the end of the month go back to the Dr. and let him know it isnt working for your daughter.  Maybe a week or two in youll see some changes.  I just wouldnt wait to long.  School work is hard to catch up

Kim - posted on 01/20/2010

17

4

5

My son is 13 and has been on many different medications. He has been on Vyvanse for about 1 1/2 yrs.It has been the best for him so far. He is up to 70mg now and it has seemed like it hasn't been working as well lately. I have decided I'm not giving him a higher dose... all of it has made him have sleep problems and a lack of appetite. About 3 weeks ago I started researching other options and have been amazed at all the info on how their diet can make a difference. I purchased a book they had all the info I found in my research in more depth and really explains things better for me. It is "Dr. Bob's Guide how to eliminate ADHD in 18 days. I have been following the book and it has been 3 weeks. I don't think I'm ready to stop him meds completely yet, but I will be getting him a lower dose. I can see the difference already and wish I knew this stuff when he was younger! You can find the book on Amazon it's only $14.00!

Barb - posted on 12/04/2009

14

5

0

I have two daughters on Vyvanse and we have had good luck. Our younger daughter has been on it for two months. She had problems sleeping for a bit but otherwise is doing well. Our older daughter has been on Vyvanse for over a year and has had really good success with it. They are both able to focus and had the best report cards yet at the end of this years first quarter. We have had good luck with Vyvanse and Adderall. I hope this helps. I think it is a matter of finding the right meds and the right dose.

Elizabeth - posted on 12/04/2009

16

7

0

For my son it was the worst one yet. I swear he was hallucinating and zombi like, even the teacher said he's calm but comatose. Told me he heard voices and away it went. I really hate all of them but so far the Straterra although does not make him focus as well he has retained his personality. Metadate made him so intense anti social and amplified tics and other stuff. Good luck, its hard but there is a lot out there now.

Donna - posted on 12/04/2009

1

24

0

my son is on Vyvanse 70mg, and Stratterra 60 mg. we've been on Concerta and adderall Xr and i just love that the Vyvanse helps him so much better and school and not stomach problems like some of the others can have.

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

46 Comments

View replies by

Amanda - posted on 08/14/2012

11

0

0

For all of those concerned with the weight issues our pediatrician recommended pediasure shakes. Let your child drink one a day and you will see a HUGE difference in the weight issue. Our 6 year old son has ADHD, mentally delayed, and ODD. We have struggled with him for the past year. His first medication to control the ADHD which was OUT of control was Dexmethylphenidate 2.5mg tablets at 7.5 mg a day. He did ok on this one but it wasnt enough to last thru school and the teachers were having a very hard time controlling him in the afternoons. The dr then switched him to 10mg of focalin xr. This was the WORST medicine for him. It made his symptoms worst and it was like you were giving him a sugar pill.He did lose about 5 lbs since May 2012 -Aug 2012 on this one. Once we tried the pediasure shakes the weight stayed stable and hes getting the nutrients he needs if he decides not to eat much for the day. Now we are trying vyvanse 20mg a day. Its too soon to tell if its working but we are hoping to find the right one for him. Also play therapy for your child will help as well with some of the anger issues or emotional roller coasters as some children dont know how to truly talk about their feelings depending on how severe the ADHD is. A play therapist can tell whats going on with the certain items they play with. We are all in the same boat and I hope we can all get some success from one of the MANY meds out there! :)

Rosemary - posted on 02/06/2010

8

18

1

My son went on Vyvanse for just a short while. the difference was shocking. His whole behavior changed, and he started talking about suicide. (He was 9 at the time.) My mother-in- law often compared him to a zombie.

Stacy - posted on 02/06/2010

4

19

1

my son has been on vyvanse for a few months now he started with 30mg it helped alittle but didn't last long enough at his month checkup the doctor increased the dose to 40mg we just went for our month checkup again this week and he is doing so much better i got a letter from his teacher -he is paying more attention in class and doing better on tests and focused reading -he is finally were he needs to be for his grade level. the first day i gave him his meds he talked nonstop all day i dont think he stopped to take a breathe then the second day he was real thirsty, he has lost weight since he started taking it also. but other than that he hasn't had any real side effects so since its been working so well the doctor just made it very clear to him that he has to eat even thought the meds are making him feel full he still has to eatevery meal and snacks. which he is old enough to understand this hes almost 11.

Jennifer - posted on 02/05/2010

12

6

0

My daughter has been on this med for over a year now and it has worked perfectly. I really don't see any side effects. She did for a while have to take a mid day dose but we have stopped that. She takes 50 mg 1 time a day. She is 12

Jeanette - posted on 01/28/2010

4

3

0

I have my son on Vyvanse 40 mg I think he might need a higher dose. but does any one have any bowl problems with there child like constipation on the medication?

Vicki - posted on 01/22/2010

9

31

1

and also some parents dont give there meds to there kids everyday.. they think it is ok to give them a break make sure your doctor is on board with that cause what may seem like a good thing to you is actually messing with the brain and how they need to focus for even one day..

Vicki - posted on 01/22/2010

9

31

1

my son is 6 going on 7 he has been on vvanynse for about 6 months 40 mg i think this med is doing wonders for him.. he does seem to lose the effects of it mid-day that is when i he gets into the most trouble at school.. i can deal with him at home so i wont add any more meds to him cause i love his personality and sense of humor as far as the agressiveness we just refocus him onto something else and he then in turn forgets what he was so upset about. he does talk alot even with the medication he just likes to talk and he has to get it out or he repeats it till he does. falling asleep was a problem for him but i got him relaxation books that we read that have breathing techniques for him to use when he is upset and needs to calm down. this helps him calm his mind and shut down so he can sleep we also use music he enjoys the sound of waves crashing got him a cd for bedtime he also likes to have his face touched while he is calming himself i talk to him in a monotone voice and that is soothing to him.. every child with adhd is unique in there own way and as long we parents can remember that its not there fault this is just who they are take a deep breath when we have had enough.. then they will see that we can control our selves and they will learn to do the same. he has lost some weight i make sure he eats a big breakfast b/f school cause that is all he will eat until he gets home from school then i let him eat what ever he wants.. he still only weighs 50lbs... i hope this helped some..

Jo - posted on 01/22/2010

3

35

0

We are going to be trying this med as soon as my daughters EKG test comes back. I am terrified after hearing about the tics. My daughter already has tic disorder and everything she has tried exaggerates her tics. She needs something to help the ADD without irritating the tics. We have also tried just about everything.....including having her off all meds for half the school year. Her performance and self esteem has dropped dramatically.

Richlyn - posted on 01/22/2010

4

0

0

Loved one started the meds today. I will let you know how it works. Keep trying and trusting God for an answer.

Deborah - posted on 01/21/2010

16

29

1

My son started out on Vyvanse when he was just over 4 yrs old. We were not happy with it. He wasn't eating and he was up a lot during the night wide awake. We gave it about a month to see if it may just needed time to get in his system and start working the way it should but we never saw any change. He was a lot calmer but losing weight and sleep. The doctor switched him to Focalin and of course we went through a couple of adjustments on the dosage and it worked pretty well for him He took a 5 mg in the afternoon and it got to a point where they were no longer available so the doctor put him on Concerta for the day and Ritalin for the late afternoon. He has been doing pretty well on it but we think his dosage may not be strong enough. At times he seems pretty calm but other times he seems as though he hasn't taken it.

Raynelle - posted on 01/21/2010

1

25

0

I myself take Vyvanse 50mg and it lasts a good 12 hrs. I would talk to you Ped. about upping the Mg. maybe. My son is on concerta and we had to up the mg. once or twice already. It should last the whole day for you rdaughter.

Suzie - posted on 01/20/2010

3

29

1

HI NANCY, MY DAUGHTER IS ON ADDERAL 20 MGS. A DAY. SHE IS 9 1/2 YEARS OLD THIS MED KICKS IN RIGHT AWAY... SHE DOES GOOD IN SCHOOL AND TWORDS THE END OF THE DAY MAYBE AFTER 5 IT BEGINS TO WEAR OFF. BUT SHE STILL QUITE CALM...MY DOCTOR INCREASES HER DOSAGE AS SHE GETS OLDER... HE AT ONE TIME ALSO SUGGESTED THAT HE COULD ALSO GIVE HER ANOTHER MED FOR THE EVENING OF COURSE LES MGS. BUT THAT IT WOULD KEEP HER CALM...

[deleted account]

Quoting Sabrina :

my son is 9, he has also been on a vatiety of different medications. He now has been on vyvanse for 5 weeks...so far everything is going great! he did forget to take it one day and wow did i see the differencce in his behavior. but besides that he does just fine. Not only does he have adhd but he also has troubles sleeping at night and since being on vyvanse he has had no probles at all.
Good luck to you!



This is great news.   My son is 10 and has had short trials on just about everything.  They all either seemed to not work at all,  make him sick (VERY), or only helped for a week or so......so he has been pretty much a no meds kid for over 5 years. Recently HAD to take him back to the Dr. and only thing we have not tried is Vyvanse.....AND he has NEVER slept through the night or been able to GO to sleep in less than 2 hours and ALWAYS is up before the sun comes up.     Think the Vyvanse may be worth a try for us!

Latasha - posted on 01/01/2010

7

12

1

well my son took focalin xr for a month and got a tick from meaning immuned!!!!Then he started vyvanse he took it for about 6 months and then it stopped working. Overall it worked pretty well not alot of side effects but take into consideration every child different.Now he is taking adderall xr and been taking that ever since.

Marlene - posted on 12/29/2009

44

46

6

My daughter is on Vyvanse 20mg .. that's the lowest dosage, she may need to be increased. Focalin XR does not last long enough but if that worked the doctor can prescribe another dosage of Focalin 10mg for after school. That's what I do with my other daughter. The Focalin lasts for school but homework time can be a bit touch and go so she'll get an additional 10mg (not xr) for homework and it lasts for 4 hours.

Jennifer - posted on 12/29/2009

12

6

0

My daughter has been on this med for 2 years now and she seems to be doing great. I do notice that in the evening that she does get more irritable. We just make sure she has down time. IT seems to work. Now she does seem to take awhile to go to sleep but I just thought that was the ADHD not the meds. All her life she never seemed to be in a deep sleep. You could hold conversations with her in the middle of the night. She is always tossing and turning. Good luck. I now for us it is always a work in process.

Georgette - posted on 12/27/2009

7

22

0

My son was on Vyvanse for a few months but it had several side effects like really suppressing his appetite and it didn't last all day. But he's on Adderall XR now and it works great for him. Hope it works well for you daughter.

Paige - posted on 12/25/2009

2

21

0

Hello! My son has been on Vyvanse for almost 2 years, and I have loved it, but in the last couple of months, he has started to tick...so, they are taking him off and trying our Concerta...I hate that we have to take him off of the Vyvanse, because it is worth its weight in Gold!

Shelia - posted on 12/25/2009

21

68

0

My son started Vyvanse this month also. The first week we saw a change but it didn't last long enough so by the secound week our doctor advise us to increase from 30mg to 60mg and it worked great. His teachers, after care providers have all seen a huge change in him. He was on straterra before and the did not work. We kept a journal of our son's reactions to the meds and how long it lasted and shared this with the doctors, this helped us to get to this point. We are still monitoring this dose to make sure it will work for him. Let ur doctors know how long the meds are lasting and see if it could be a simple as a dose change. Good luck

Linda - posted on 12/07/2009

6

20

0

My son is 13 and have been taking a low-dose of Vyvanse for the past year. And what a great year it has been for him! His grades are back on track, he played flag football and was a great addition to the team. He's making better choices and has improved socially (getting along better with others). It definitely has not stopped his growth, he grew 5 inches this year alone but he lost about 10 lbs along with that and is very lean now. He eats but it doesn't seem to stick. You need to be aware of the appetite issues with any ADHD meds, they all seem to affect it. But my son eats well. He's not always hungry but has recognized that he feels better when he eats regularly.

Becky - posted on 12/07/2009

1

17

0

my son was on it for a year and it was the best we had tried then we went to Adderell because of money issues and it is just as good ...so give it a try

Jeanette - posted on 12/07/2009

3

11

0

in my opinion it doesn't last my son went up the ladder he is now on 70mg of it and to some degree i don't see improvements they just added another for the afternoon just to get him thru the day

[deleted account]

Both of my daughters take vyvanse... my oldest has been taking for almost 4 years, started w/ 20mg and is up to 60mg. My other daughter is on 30mg and has been taking for apx a year... Have used other adhd medication, and this seems to work the best. Lasts until apx 6:00 in the evening... They have no severe side effects either, i hightly reccommend...

Stephanie - posted on 12/05/2009

30

19

2

Wow, I see a lot of people who really like Vyvance. Both of my sons tried it and I had their medicines changed after about a month and a half. They were both having tics severe enough that they were disruptive in class and they both suffered severe mood changes. We also tried Focalin and had similar results. Both helped with concentration, hyperactivity, and impulsivity. However, the side effects were unacceptable to us. They are both on Concerta now and I am happy with it. Every child is different. Keep an eye on her. Hopefully it will work for her, but do not be afraid to ask for a change if there are side effects. I know several people who's children take the Vyvance and it works great and another who's child has great results with Focalin. My half-sister takes Stratera and it has been the best thing for her. You just have to decide what is acceptable and what is not. My boys being teased because of their tics was unacceptable.

Janet - posted on 12/05/2009

14

16

0

We are now doing Vyvance at 70mg in the morning and 25 mg of Strattera when he gets home from school because by then the vyvance benifits were gone(he is 16 yr.). Doing much better. The concentration is there for home work/ driving lessons. Without the extra at night, it's bad. You can ask about the mg dosage with the docs.

Rabecca - posted on 12/03/2009

520

15

70

Quoting Julie:

COMPLETELY depends on how the child reacts to the meds! My oldest stepson took it ONE TIME...because after 20 minutes of it being in his system, he couldn't stop talking! He was definately high! He talked nonstop (no exaggeration!) for 6 hours. He was following his brothers around the yard preaching the dangers of smoking, as well as any other topic he could think of. I actually pretended to fall asleep next to him thinking he would stop talking if I was sleeping...NOPE!!! We never tried that one again! Vyvance was an awful experience for our entire family!!

But then again...one of my daycare children is doing really well on it! No negative reactions at all! Just completely depends on the child's make-up!



 HAHA this made me laugh because that was my son before meds I mean you dont know how many different topics one kid could discuss in a matter of min. he would want to instruct everyone on every topic how to do things right things he heard on tv you name it . which he can have days where hes still like that if I say back back kind of hurts he would say thats because you need a temerpedic or if I cant find things in my purse its most likely that i need one of thse purses you can organize 100 things in and still have room for a bottle of water and n umbrella but it will be berbatem like he was doing the comercail himself it was enough to drive a person crazy LOL

Julie - posted on 12/03/2009

61

4

5

COMPLETELY depends on how the child reacts to the meds! My oldest stepson took it ONE TIME...because after 20 minutes of it being in his system, he couldn't stop talking! He was definately high! He talked nonstop (no exaggeration!) for 6 hours. He was following his brothers around the yard preaching the dangers of smoking, as well as any other topic he could think of. I actually pretended to fall asleep next to him thinking he would stop talking if I was sleeping...NOPE!!! We never tried that one again! Vyvance was an awful experience for our entire family!!

But then again...one of my daycare children is doing really well on it! No negative reactions at all! Just completely depends on the child's make-up!

Rabecca - posted on 12/03/2009

520

15

70

My son was on Vyvance and we loved it at first probably for the first year I would say and right off a major improvement in all areas for him but after the first year we started to see his behavior become worse and worse and I just didnt understand he was doing so extrmly well and by the time we took him off off it he was acting worse then he did before meds .

What I was told was yes he was burning it off way to fast and his issues always started around 2 or 3 in the afternoon when his meds should have lasted at least 3 more hours and when it did he would get what the doctors called a rebound effect so his symtoms would just hit him and hit him hard and he pretty much was not incontrol of himself which was depressing because I thought finally this was it we found what worked but guess not .

And becuase it was supposed to be the longest lasting his doctor decided to not try anymore long acting meds so he now takes just adderal 3 time as day and has been for the last 5 months and seems to be back to his sweet self again but all meds are different and we did love it for quite awhile so who knows it may be just what she will need

Sabrina - posted on 12/03/2009

1

21

0

my son is 9, he has also been on a vatiety of different medications. He now has been on vyvanse for 5 weeks...so far everything is going great! he did forget to take it one day and wow did i see the differencce in his behavior. but besides that he does just fine. Not only does he have adhd but he also has troubles sleeping at night and since being on vyvanse he has had no probles at all.
Good luck to you!

[deleted account]

Well, today is day 2 on Vyvanse. I dont see a big diffrence, but what I do notice is that Chloe seem's nasty. Is that normal ?

Tammy - posted on 12/02/2009

59

21

9

I don't want to be the only person on here that talks bad about Vyvanse But I am going to.....I hated it for my son,He took it for 3 mos and He looked like a junkie on it, Had so many ticks and his eyes always were wide and he looked wild,He totally stopped eating.My son is only 7 and he lost like 10 lbs(he only weighted about 65lbs to begain with)He got so thin and so white.We put him back on the concerta 18mg and he is a back to his old self.I really believe it's the child who picks their meds,you will find one that your child thrives on,and that's the one you have to pick!and The people here who said they liked Vyvanse ...it really worked for them and that's wonderful...but it did not work for us.I hope this helped !!

Toni - posted on 12/02/2009

149

34

15

My 11 yr old son has tried everything, Focalin, Ritalin, Concerta, Strattera, and Daytrana patches etc. The only two he hadn't tried was Vyvanse and Adderall. So, we put him on Vyvanse about 9 months ago and I love it. There is no miracle cure, but so far Vyvanse has been the best for him. Just always remember you are your childs only advocate. Good luck and God bless.

Katherine - posted on 12/02/2009

6

4

1

Concerta, that's it, gotta write that down....

I was quite frankly amazed by this... but Zoloft has calmed down my sons aggresiveness!, along with his strange terrors, etc. Zoloft seems to be a very mild med though, and so I wonder if it will easily combine with your adhd meds. (Can't tell for sure, our doctor is a bit too careful for me!... though I have been glad of it before now :)

Katherine - posted on 12/02/2009

6

4

1

From what I understand, you have may have to try a couple of different meds and different doses before you find the right one. We tried vyvanse, and it was horrible. We tried another one, that I can't remember the name of now, and it was good (just wasn't treating the aggresiveness like we needed at the time.) Now our doctor isn't willing to add a thrid med to what my son is already taking.... so I guess I need to find something OTC...

Peyton - posted on 12/02/2009

3

4

0

My 8 year old son was on Vyvanse 30mg for a little over a year and so far it has been the best one. I wish it still worked for us. They bumped him up to 40mg but it didn't work at all. Recently he was also diagnosed with Bipolar Disorder along with the ADHD. He is now on concerta 36mg, which doesn't seem to be helping with his attention or impulse controls at all. He has been on Focalin XR, Metidate (sp), Vyvanse, and now Concerta.. So our options are running out. Good luck to you and I pray she does well with the Vyvanse!

Casey - posted on 12/01/2009

22

23

1

I love vyvance! My son started out on a dose that was to high to start with and when he came down in the evenings he was angry. After adjusting his dose, I am very happy with it. this is the third med we have tried and were very pleased. The only thing I found was he has a VERY hard time falling asleep. After doing some research I found 3mg of meletonin an hour before bed time worked wonders!!!!! I ofcoursed asked his Dr. first (who was ready to perscribe something for sleep) and he said since our bodies make meletonin, it would be absolutly fine to take. Now he wakes up ready to start the day and WANTS to go to bed by 8:30 at the latest!

Misty - posted on 12/01/2009

17

30

3

my son has been on Vyvanse for a year now and it has definitly helped. he is 14. good luck

Christie - posted on 12/01/2009

70

17

22

I forgot to add one thing....I saw that you stated the other med didn't last long enough...Both myself and my daughter were told by our doctor that we are fast metabolizers which could be the case with your daughter. In other words when we take our medicine our bodies process the medication faster than most people leaving us feeling the adhd problems again around 6 hours after taking our morning dose. So we take a second dose around 2 or 3 in the afternoon and have an all day relief. I was a little concerned about this when he first said this but he said it's not like taking a 40mg dose that your body just processes all the medication out of your body so it's still just taking 20mg. We starting taking the 2 doses of the 20mg's since day 2 of the 9 months we've been on it...we noticed right away that the "focus" was gone mid day and this was the answer for us. It hasn't effected our sleep in any way either.so if you notice that your daughter is still running out mid day mention to her doctor the possibility that she's just metabolizing it too fast..

Christie - posted on 12/01/2009

70

17

22

Both my daughter 8 and myself have been on vyvanse for about 9 months now and it has completely changed my daughters life. She was starting to have some social issues from lack of focus when talking to her friends, stopped tumbling after 4 yrs and just really had a hard time with her emotions. Since being on the vyvanse she is now back to tumbling and her self esteem has returned with no tantrums. The only thing is now I have to watch her diet and make sure she's eating right/enough. After about 2 months on the med she started eating less and lost 7 pounds. Which may not seem like a lot but when you have a child that's the exact weight she should be 7 pounds was too much. I started adding extra peanut butter on her sandwiches and every morning I have her eat some almonds with her breakfast...and I just talked to her about how the med can make her feel full but she still needs to eat to have energy. So she's made an effort to eat and after about a month put the weight back on. So my main advice is to just watch her diet and I hope you have the same good luck with it as we have:)

Zeudi - posted on 12/01/2009

33

17

3

My friend's son is on it and she says it works very well. My son is on Adderall XR and it works well also. I would give it a try and see how it works on her. Just make sure there are no side effects that u can see. My son's doctor says that sometimes these meds can cause them to tick, but that did not happen to my son so he continues to use his meds. Seen great changes in him. Good luck.

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms