which meds for ADHD work for you?

Jennifer - posted on 01/04/2010 ( 570 moms have responded )

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I have struggled with if I should use meds or not but I have tried everything else and nothing seems to help. So after seeing the dr today they want me to see what meds I like best out of concertra, dexedrine or strattara (I hope I spelled them right..lol) I am so confussed and would love to know what others used or are using and if they work or not. I am new with this and could use all the help I can get, any info would be great.I don't know if it helps or not but my son is 8.
Thanks,Jen

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Linda - posted on 01/05/2010

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My son is almost 14 now. He was diagnosed when he was 7 and put on Stratera. He did well with it but had no appetite and wasn't growing at a normal pace ( for him). His skin also had a pasty gray color, so I took him off after 3 years. He did great for a long time, grew like a weed and had a great appetite. But as puberty hit, so did the ADHD, in full force. Last year his doctor suggested Vyvance. It has been a God-send. My son is so much happier, he really feels the difference when he's on it or off it... he still has a reasonable appetite and is still growing like a weed. I would strongly suggest it for successful treatment of ADHD. Sign me, a Happy Mom

Jennifer - posted on 01/05/2010

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My son is also 8 years old and has ADHD. I have tried strattara (not sure of the spelling either) It worked for awhile but then stopped working. I have tried a couple other meds with him and didnt like the way he acted on them. So now I am just giving him fish oil once a day and that has worked for about 1 year but just talked to the doctor and we are going to try strattara and fish oil mixed to see if that helps him in school.

Every kid is different with what works and what doesn't or how they act on them. I always make sure that when starting a new med I write down everyday how he is acting good or bad to see what the change is and if it is working, and always start at the lowest dose of the med.

Hope this helps alittle.

Tokisha - posted on 03/24/2015

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Hi. My 9 year has been on vyvanse going on the second week and it has been the best thing ever. It doesn't take his personality away , he still have his appetite, his bed time maybe 1hr or 11/2 pass his bedtime . He also get up in the morning without a fuss :). I've tried all the others you have tried and they didn't do to well . Every child us different , but I pray you find the right one . I also explain to him that we are not depending on a pill to help you behave , it just helps you focus better . :) pray this helps . Moms have to stick together . This is the first time he has been on any meds in about 2 years . I was skeptic also . He going to be fine . Take care .

Zach - posted on 10/04/2013

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We tried all three of those and they didn;t work. On the stimulants he stopped eating, was awake at 11pm talking to us about astrophyics and was anxious all of the time and what was worse they didn't stop the compulsive talking or moveing around in class. Strattera was useless. We finally started him on Intuniv and between that and turing 13 he's been so much better in school I can't believe it. He's still a typical 13 year old complaining about the things he doesn't like and that school is boring, but he does his homeworks, he doesn;t lose things, he writes down his assignments and in general life is a lot better - and he's not even on a full dose of Intuniv yet. Note that I had to switch pediatricians because his first one was a big fan of concerta and when I told him that it wasn;t working he would just say "we'll increase the dosage.." even though my son is too thin already -- the stimulant drugs made every meal a painful ordeal begging him to eat. So if your Dr. is not open to Intuniv, my advice is to find another Dr. -- good luck - I know exactly how hard this is.

Karlie - posted on 07/21/2015

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My son was on Focalin as well, and the come down was very hard, we ended up taking him off the meds once he started having suicidal thoughts, He is 11 years old, happy and loving, but the meds and coming down off of the meds changed him completely. The Physiatrist we saw stated that Focalin is basically Ritalin with a few tweaks in order to change its name, but the way it breaks down in the body is what creates this issue with children. Our PCP had been treating our Sons ADHD until that point, we’ve tried Quillivant and Concerta as well, all had negative side effects that became intolerable as the dosage was increased.

We are now OFF all meds while we try to re-group and figure out what to do next.

570 Comments

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[deleted account]

Hi Victoria.

I am going to give you very honest communication and I hope you can be willing to accept it.

These drugs that your child have been put on are extremely dangerous. I know that you don't realize this because you were told that he needed medicine. You're a mother and you want what's best for your child.

“We do not have an independent, valid test for ADHD, and there is no data to indicate that ADHD is due to a brain malfunction.”— National Institute of Health (NIH) Consensus Statement


That being said, you need to go to this website and watch the videos on these medications that children are being put on. That's all I ask. Go to this link, watch the video "mothers' stories". At the end of it, you will be enraged at the Psychiatrists and, better yet, will be ready to do what's best for your child. If I could make an understatement, that would be the above.


https://www.cchrint.org/2014/05/15/215/

Victoria - posted on 03/06/2016

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My son did not respond well to concerta. They have him pounding headaches. (which he said nothing about) That, in turn, caused his anger and aggression to amplify. The same happened with stimulants. I actually had him swabbed to check his genes to see which meds have the best odds of working. Strattera was the only adhd medicine listed as few-none side-effects. Everything else was listed as moderate or severe. Today we started the Strattera with his Abilify... Here's to another experiment that hopefully less to success!

Debra - posted on 02/26/2016

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Thank you, I gave her one pill of Concerta and she was wound so tight, non stop talking,kept kicking her leg and major lip smacking and tongue protrusions..I cried and couldn't wait for the medicine to wear off. I tried adderal and she was a hot mess when it wore off in afternoon. I was thinking of starting her on an extended release . We did tenex,and intuniv and she gained 20 pounds in 6 months. STRATERRA has been working for her, I may just go back to 25 mg, that doesn't seem to affect her as much. I know the stimulants work better but she doesn't seem to tolerate them

Debra - posted on 02/24/2016

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My 10 year old has been on straterra since kindergarten. We up the dose to 40 MG last year and now we seem to be having a lot of urine retention and diarhhea. Anyone else have side effects like this? We went to lunch at a restaurant and she had to pee 6 times, the first 5 times nothing comes out, we've been to her dr, evening clinics and evacuated her bowels but the problem persists. I have a GI appt fri and urology on monday, her urine comes back clean so its not a UTI.

Rukhsana - posted on 02/02/2016

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hi my son has ADHD and is on medication. I am currently giving him Concerta xl in the morning before he goes to school and honestly it has made a difference. Concerta xl is a slow releasing med so while at school helps him concentrate better,and when he gets home he is not bad.

Kristeen - posted on 01/23/2016

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Please try a diet.
Ritalin is like cocaine. If you look it up all these prescribed drugs are actually like drugs used on the street.
Plus the side effects are not known after a year of use.

Paola - posted on 01/07/2016

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Hi Kristie! My son is 9 years old and just started Vyvanse too but is complaining of dizziness. Did your son have any initial side effects?

Krystal - posted on 11/30/2015

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Carol altermat I'm having issues with my 6yr old.my 10 yr old was diagnosed ADD so he's in Ritalin. Email details on natural med
aydansmyson@hotmail.com

Lovemykids - posted on 11/10/2015

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That sounds more like a side effect as it wears off..I would talk to your Dr about trying something different. Has he always been like that throwing things, being angry or did it start after the medication

Ivy - posted on 11/10/2015

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Hi Jen...my 5 year old daughter has been diagnosed with ADHD and sensory processing disorder. The doc recommends meds, but I also have reservations about putting me daughter on meds at such a young age. I've been reading about a food supplement Vayarin that has been shown to help with ADHD. It is a prescription, and not really covered by insurance, but seems promising. Has anyone tried this and can you share results?

Ivy

Lovemykids - posted on 11/08/2015

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I would call your doctor to at least give him a update. He may want to dosage changed or even stopped.

Nicole - posted on 11/08/2015

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My 7 year old just started on Vyvanse 20mg 3 days ago and his focus is 100 times better - almost too focused lol. His appetite was decreased the first day completely but is now eating again, he is having trouble sleeping but the biggest thing is the angry outbursts. Does this subside at all or should I be calling the doc to change him to something else?

Lovemykids - posted on 11/06/2015

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When Adderall was wearing off after school my child was uncontrollable, angry, cry, etc. It was horrible. He is not normally that way. So I called the doctor and the nurse said to stop it. Should find out Monday the next plan.

Lovemykids - posted on 11/06/2015

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Started my 7 yr old on Adderall and after his very first dose...that evening was a nightmare, he was angry, cry, screaming uncontrolled mess. That is not his personality and he will not take it again

Nicole - posted on 09/25/2015

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We are having a similar situation, have you had any luck with no meds? I hear the teacher each year makes a difference for children .

Linda - posted on 09/03/2015

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How sad hearing so many littles on heavily addicted meds. In the absence of any objective medical tests to determine who has ADD or ADHD, doctors rely in part on standardized assessments and the impressions of teachers and guardians while the they administer leave little room for other causes or aggravating factors, such as diet, or environment.

Hence, diagnosing a child or adolescent with ADD or ADHD is often the outcome, although no organic basis for either disease has yet to be clinically proven. Psychiatrists may then prescribe psychotropic drugs for the children without first without making it clear to parents that these medications can have severe side-effects including insomnia, loss of appetite, headaches, psychotic symptoms and even potentially fatal adverse reactions, such as cardiac arrhythmia.

And yet, despite these dangers, many school systems actually work with government agencies to force parents to drug their children, threatening those who refuse with the prospect of having their kids taken away.

Sherry Denise - posted on 06/28/2015

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My son is 6 yrs old, he's artistic. His doctor tried him on several different types of meds., with some he's was really out of control screaming, making sounds, body tics, jerking. I prayed and the doctor told me about the meds, tenex and clondine, he's doing better, he's calmer, no body jerking or tics, he takes naps and sleeps at night. Tenex and clondine works for my son, each child is different in their own way, so I don't know how it will do for your child. You may can mention it to your child's doctor. Good Luck!

Feistylady75 - posted on 06/25/2015

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My boys are 10 and 8. They both have ADHD, but it is different for each. My oldest takes 15 mg of adderall xr. For a while I had him on risperadone to control his anger. I took him off last December and only on occasion does he have an outburst. My younger son started out on adderall but was switched to concerts. Also in December I took him off of intuniv. My point is that every child is different. Even siblings. Treatment should be just as individualized for each child.

Vicki - posted on 06/17/2015

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I have a 8 year old grandson that is currently on 20mg. Focalin xr. At 2:00 pm he takes a 10 mg. methylphidate. I do notice that the late afternoon "rebound" can be challenging at times. I tell you the best thing for me at that time is to kick in my skills and stay calm myself. He then takes 0.1mg of clonidine at 7:00 pm and by 8-8:30 he is asleep.

I too talk to him about his medications and that we use them to manage some of his symptoms of ADHD . He also goes to a therapist for anger management and social skill building.

Carol - posted on 06/10/2015

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Hi if interested in all natural products let me know, I am with a US company for all natural products that help various medical conditions, too many to post all but one product helps for concentration/ focus like ADD ADHD. If interested let me know,I would be happy to share more information. I cant add attachments here, but children have gotten off ritalin by using our product. Thank you

M - posted on 04/23/2015

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My four year old son just started 1.25 mg of Adderall for his ADHD on 4/21/15. He slept from 8pm-6:45am.:) Yesterday I gave him his 1.25mg dose at 11:30am and he napped from 2:30pm-5pm. I did have some troubles getting him to stay in bed. I didn't give him another dose until this morning at 7am. I know it's too early to tell, but I do see slight improvement, thankfully! This morning, I did stay at the lower dose. I will call his doctor tonight and see if his dosage needs to be increased. I'm really scared, this is all new to me. He has been calmer and still has his appetite so far. There are many great posts here that I will be looking into as far as a natural route. Thanks to everyone for posting and good luck! :)

User - posted on 04/09/2015

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My son has been on a few different medicines, Tenex, Adderal, Ritalin, to help with his ADHD and SPD with awful side effects. I have been looking for natural ways to make things a little easier. After introducing Young Living Essential Oils I've noticed such outstanding improvement with everyday tasks that tend to be more difficult, such as Going to the store, Playing with others, Focusing in class, or the dreaded BED TIME. I can proudly say he can lull himself to sleep without Momma being there, and knocks out before I close the door! These healing oils are growing rapidly in popularity because they act as natural medicine without any side effects. YL has done wonders to improve the quality of life for my family and I would love to share it with others! If you or anyone you know are interested please feel free to contact me at Ginadamiano314@gmail.com Also, my Young Living Signup Link is https://beta.youngliving.com/vo/#/signup/GinaDamiano

User - posted on 04/09/2015

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My son has been on a few different medicines, Tenex, Adderal, Ritalin, to help with his ADHD and SPD with awful side effects. I have been looking for natural ways to make things a little easier. After introducing Young Living Essential Oils I've noticed such outstanding improvement with everyday tasks that tend to be more difficult, such as Going to the store, Playing with others, Focusing in class, or the dreaded BED TIME. I can proudly say he can lull himself to sleep without Momma being there, and knocks out before I close the door! These healing oils are growing rapidly in popularity because they act as natural medicine without any side effects. YL has done wonders to improve the quality of life for my family and I would love to share it with others! If you or anyone you know are interested please feel free to contact me at Ginadamiano314@gmail.com Also, my Young Living Signup Link is https://beta.youngliving.com/vo/#/signup/GinaDamiano

Kia - posted on 03/19/2015

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Hi everyone. My 8 yr old daughter has ADHD & ODD. She was taking 10mg of Focalin RX. At first she was doing great! She was more focused, less argumentative with adults and calmer throughout the school day. Once she got home from school she was back to being hyper, purposely annoying her siblings and just being down right defiant and unruly. The doc reccomended we up her to 20mg which I was so nervous about. It was hard enough making that decision to put her on meds so him increasing the dose really had me nervous. I really don't see that much of a difference in her behavior when she gets home with the new dose. I am starting to feel that after the increase, when it starts wearing off, her behavior is worst then it was before the meds. She has severe tantrums and uncontrollable outburst that are very disheartening to watch. I really don't know if it is the meds making her worst or not! Has anyone noticed their child's behavior worsten after the meds wear off?

Dawnna - posted on 01/26/2015

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Check out www.harmonyxdiagnostics.com They offer a test for ADHD that will help find the right medication based on genetic make up.

Charis - posted on 01/25/2015

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My son used Concerta as his first medicine we he was first diagnosed. The medicine goes up to 54mg. He is now on Adderall but that isn't helping. My son is a 6th grader.

Trista - posted on 12/08/2014

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Medicines tend to scare me with all the side affects and just putting chemicals into my child's body. Lately I discovered juice plus and have been giving my children the gummies that have helped give them better nutrition from fruits and vegetables and has helped them sleep better and their attention span and many other things

Viola - posted on 12/05/2014

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My son also had a horrible experience with Ritalin. He was a boy I did not recognize - mean, nasty really scary. Then we tried Concerta and it was like, wow, my son is back! We went from constantly calling his name to calling his name one time and having him go, yeah, mom, what can I do for you? What do you need? It was incredible. I guess I would say don't give up completely. I've done both conventional and supplements for my son. Today he is 11, still on the Concerta, and getting straight As in school, has friends. We still have issues especially in the early morning and nighttime, but over all, he is doing fantastic. The biggest thing with Concerta I think is losing weight. I let my son eat late at night to get some calories in him. Good luck!

Sharon - posted on 12/01/2014

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Debating on trialing medication on my 5 year old boy. Just been dx with ADHD. He cannot afford to lose weight as he is tall, slim and only 45 lbs. Any suggestions?

Nilda - posted on 11/28/2014

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My son is 6 years old and was just recently diagnosed, it's been a very hard time. We started him with Adderall and he's on day 2 of Intuniv. What are other people experience with these medicine combine?

Megan - posted on 07/31/2014

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Jasminka Karic - My son was the same exact way. We had problems with him starting from when he was very young to still dealing with him now, he's almost 8. We couldn't do stimulants because they amped him up and made him nuts. What started to work for him was actually Intuniv, he's also on Straterra, and Hydroxizine now. In addition to ADHD he has ODD, OCD, and apparently some Anxiety disorders so they want to put him on another med but I'm drawing the line there because after letting the dr push me into putting him on Zoloft we had a bad time and my son spiraled badly from the time he took his first pill until she took him off it, which was a month later, and things were bad. I've never seen him like that. He wasn't my little boy, yes he can be an aggressive little rage monster at times but he was depressed and crying all the time and it wasn't pretty. Things were out of control, and this is was a fresh 7 year old we're talking about all this happening to. And things just kept going from bad to worse until we finally got that crap out of his system, and now this same dr wants to put him on a different type of 'anti-depressant' for his 'anxiety' so I'm saying no thank you mam. Until it gets to the point where he absolutely needs another pill I'm not giving him anything, the kid takes enough pills throughout the day. I say if you are leery of medication then don't do it, listen to your gut. I didn't and my child actually ended up in the hospital (as i said things got bad). You don't have to do medications, we did play/behavioral therapy with our son for 3 years before we even got him diagnosed/tested then we started the meds prior to kindergarten incase he needed them because his aggression and behavior wasn't getting better. Pills aren't always the answer for everyone, sometimes they are sometimes they aren't. You as a mom have to do what's best for your kid, who knows maybe therapy will work for your child.

Paloma - posted on 05/20/2014

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Priscilla Jean - posted on 05/13/2014

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I'm in the same boat with my 12 yr old, she was just diagnosed Adhd/Odd last year & is not medicated. Been trying GABA but things have seemed to spiral downhill since diagnosis. There seems to be so much more going on that im sure follows adhd. She is so hard to live with & makes fAmily life miserable for everyone

Jasminka - posted on 04/21/2014

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My son is going to be 6 in june and he was diagnosed with adhd 2 years ago. He started kindergarten in September and it is very difficult for him to be good. His school calls me almost every day to pick him up. Recently he got susspended and we had to visit his psychologist again. He put him on Adderall xr and I am afraid to start this medicine because 2 years ago my son was put on Ritalin an it was a horrible experience. I heard from you guys so many different stories but I am still not sure what to do. It seems that medicine is my option if I want my son to fit in and be like everyone else. Also, I decided to change the school so that he can start fresh his first grade because right now soon as I show up at his school kids are running to me to tell me how bad was my son and I hate it.

Jason - posted on 04/21/2014

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Katie - posted on 03/06/2014

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Well, they say, if it isn't broken, don't fix it. So the opposite is true, I guess. If the side effects are more disturbing than the benefits are helpful, it's probably time for a change. Remember to not downplay the importance of common sense and gut instincts. I know I can easily get caught up in my head and forget that. :)

Sandra - posted on 02/28/2014

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My 7 year old son was diagnosed with ADHD when he was 4. He was on Focalin and then Imitrex and then most recently our new doctor put him on Adderall with Intuiniv. We had tried Ritalin and it was a nightmare. He did well for a while but his stomach ached everyday for a couple of months. He was also rude and angry and talked back and cried a lot and just seemed overwhelmed with every little thing. He wasn't sleeping and so the doctor took him off the Adderall and started "new". It was like I had a new child. He was less emotional, less angry and calmer. Clearly the stimulant is a problem for him. Intuiniv does the job for us. We take it at 7 am so he is set for school and it wears off before nighttime so he can sleep. He still has defiance and the impulse control for things coming out of his mouth is still a challenge but he is doing really well at school and sleeping soundly all night. I have also learned my son needs his sleep. He crashes at 7:15 and sleeps till 6:30 am. You see problems if he doesn't get enough sleep. We increased to 3 mg in November and we are having problems with him falling asleep in class or at 4 pm ….so we will try reducing the dosage. (A side effect is sleepiness…but it comes and goes.)
Good luck. Do your research and YOU take control with the doctor. Go with your mothers instinct and if you are not comfortable with something speak up.

Katrinamoog - posted on 02/23/2014

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I think that all of the meds out there work differently on each child. Every situation is different. With my son I am learning that although he may have ADHD, anger and mood swings could be a mood disorder that usually develops in children after the diagnosis of ADHD. It's difficult because you don't want to change the med that has helped his grades but you don't want him to be angry and withdrawn. Such dual diagnoses as ODD, dysthymic disorder and bipolar are very common disorders that are found to become apparent after the diagnosis of ADHD. We have only had one visit but it's scary to know this stuff. I just want my son back!

Joanne - posted on 02/22/2014

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My son is 5 and has been on Kapvay 0.1mg one in the morning and one at night, and it has been working great for the last 8 months. He was doing better in preschool and could set through church. Then about 2 weeks ago he started getting aggressive and not sleeping at night again. We went back to the Dr and he put him on Concerta 18mg (methylphenindate). After the 2nd day it is horrible, he is a mess. He cryies, hits himself, c/o headache, stomach, don't want to eat. I'm so confused about what to do. I feel so helpless to help my son and not sure if I'm doing the right thing. I guess I'm asking should I try something else? Or go back to the Kapvay? Any advice on this would be helpful.

Fayeanne - posted on 02/20/2014

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How old is your son? My son is six and has been on meds since he was 3, focalin is what we first used and now the company has decided to stop making it, he was doing great on focalin but now he was put on concerta and I do see a total difference in him, he is bouncing off the walls... help? ??

Donna - posted on 02/01/2014

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My son has been on Strattera for 3 months now and the improvement in his behavior and ability to focus has been remarkable. The problem I'm having is that he's lost a lot of weight. We are going to try to lower his dose and see if that helps. He's 7 and weighs 45 lbs now. He's been on 18mg which is a low dose but we are going to try 10 mg and hope his appetite increases.

CHRIS - posted on 01/28/2014

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To all the moms here, check Youtube:

psychatry, the truth.

You will find interesting things about adhd.

Kim - posted on 01/07/2014

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My son has adhd and is 7 years old he'll be 8 in June. We tried about many medicines since he was 5 1/2 and most had side effects that were to overwhelming than the benefits. We tried Concerta, Vyvanse, Kapvay, Intuviv, Stattera, etc. I asked the doctor for Adderall immediate release 1 pill the first 4 hours and another the 2nd four hours. It's been amazing and no side effects. He had no appetite on Vyvanse which worried me and his anxiety was overwhelming , all the other medicines had similar results but Adderall was our greatest pill. We have been on it since the beginning of school "September" and it's been amazing and my son has thrived in school and has no anxiety and is now very active and confident! Best of luck on your journey as it can be difficult to find the right medicine.

Sarah Elizabeth - posted on 01/04/2014

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My sons specialist suggested trying stratera for his meltdowns but the concerta he is on works wonderfully. And although I know its sounds strange, I'm am very nervous to try anything new because of how it might affect him. I myself, being a child with ADHD. And being put on so many diffrent medications, know how awful that stuff can make you feel.

Did your child have any issues with meltdowns and if so did the stratera help?

Terri - posted on 12/18/2013

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I did the stimulant route which really calmed him down but he stopped eating and he still didn't have much focus. We tried Strattera which was better in some ways but it took a couple of tries to find a dose he could tolerate with out an upset stomach that still gave a benefit.

A few months ago I ran across Nuaxon, they are a company that manufactures an herbal product called Nurofocus. I wanted to try it so I emailed and talked to the company. They said that taking it for 90 days had been shown to bring focus and attention back to normal.

I didn't want to buy 3 months worth cause it's pricey but with the new copays on Obama Care I figured it would be about the same price. Well it only took 2 weeks to see a difference and it never bothered his stomach, his appetite got better. It really worked!

Now that its been almost 3 months and he is doing great.

Suly - posted on 11/29/2013

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I have an 8 year old son that does the same thing, at his after school program..i know it's not easy, specially when you want to be around him to help him behave better and be nicer to others...sometimes I feel like the teachers have it with him since they know his condition...they blame everything bad that happens on him..brings tears to my eyes because I know he is craving for attention...sometimes I pick him up and he tells me mommy I have no friends,no one wants to play with me...I just want to see him happy

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